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Matt_C

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      Matt_C
      Participant

        Ask your oncologist about the National Cancer Institute at the National Institute of Health in Bethesda, MD.  They have a melanoma clinic.  What an amazing federal program that appears to be somewhat of a secret.  NIH was in the news quite a bit during the government shutdown because they were unable to accept new patients, current patients were treated however.  We had never heard of NIH until we ran out of aggressive treatment options after unsuccessfully trying high dose IL-2 and Yervoy (Ipilimumab) without success.  Much of the talk of long term treatment options revolves around immune therapy and NIH seems to be on the leading edge of this therapy.  My wife, stage 4, is currently in a trial at NIH using BRAF inhibitors (not available for all patients, requires genetic disposition) and TIL (Tumor Infiltrating Lymphocyte) therapy.  They are doing amazing things there and the program features are amazing too.  Her TIL cells are growing and she will be undergoing the 3 week inpatient TIL therapy soon. We have hope now!!!

        Matt_C
        Participant

          Ask your oncologist about the National Cancer Institute at the National Institute of Health in Bethesda, MD.  They have a melanoma clinic.  What an amazing federal program that appears to be somewhat of a secret.  NIH was in the news quite a bit during the government shutdown because they were unable to accept new patients, current patients were treated however.  We had never heard of NIH until we ran out of aggressive treatment options after unsuccessfully trying high dose IL-2 and Yervoy (Ipilimumab) without success.  Much of the talk of long term treatment options revolves around immune therapy and NIH seems to be on the leading edge of this therapy.  My wife, stage 4, is currently in a trial at NIH using BRAF inhibitors (not available for all patients, requires genetic disposition) and TIL (Tumor Infiltrating Lymphocyte) therapy.  They are doing amazing things there and the program features are amazing too.  Her TIL cells are growing and she will be undergoing the 3 week inpatient TIL therapy soon. We have hope now!!!

          Matt_C
          Participant

            Ask your oncologist about the National Cancer Institute at the National Institute of Health in Bethesda, MD.  They have a melanoma clinic.  What an amazing federal program that appears to be somewhat of a secret.  NIH was in the news quite a bit during the government shutdown because they were unable to accept new patients, current patients were treated however.  We had never heard of NIH until we ran out of aggressive treatment options after unsuccessfully trying high dose IL-2 and Yervoy (Ipilimumab) without success.  Much of the talk of long term treatment options revolves around immune therapy and NIH seems to be on the leading edge of this therapy.  My wife, stage 4, is currently in a trial at NIH using BRAF inhibitors (not available for all patients, requires genetic disposition) and TIL (Tumor Infiltrating Lymphocyte) therapy.  They are doing amazing things there and the program features are amazing too.  Her TIL cells are growing and she will be undergoing the 3 week inpatient TIL therapy soon. We have hope now!!!

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