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Maxapooh
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Maxapooh

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      • April 23, 2016 at 3:01 pm
      Maxapooh
      Participant

        Hi Ed! Thank you for the information. I' ve been on Braf/mek since last August, they added Keytruda this March. My last ct scan showed spread to lungs, spleen and groin. As for now I have leptomeningeal metasatses , metasatses in liver, ovaries, lungs, spleen, bones and lymph node in groin. My hip bone has been destroyed by radiation. I have nothing to lose. I'm gonna go for this trial and if it doesn't  work for me, I have an option to try Temozolomide.

         

        • April 23, 2016 at 3:01 pm
        Maxapooh
        Participant

          Hi Ed! Thank you for the information. I' ve been on Braf/mek since last August, they added Keytruda this March. My last ct scan showed spread to lungs, spleen and groin. As for now I have leptomeningeal metasatses , metasatses in liver, ovaries, lungs, spleen, bones and lymph node in groin. My hip bone has been destroyed by radiation. I have nothing to lose. I'm gonna go for this trial and if it doesn't  work for me, I have an option to try Temozolomide.

           

          • April 23, 2016 at 3:01 pm
          Maxapooh
          Participant

            Hi Ed! Thank you for the information. I' ve been on Braf/mek since last August, they added Keytruda this March. My last ct scan showed spread to lungs, spleen and groin. As for now I have leptomeningeal metasatses , metasatses in liver, ovaries, lungs, spleen, bones and lymph node in groin. My hip bone has been destroyed by radiation. I have nothing to lose. I'm gonna go for this trial and if it doesn't  work for me, I have an option to try Temozolomide.

             

            • April 21, 2016 at 6:29 am
            Maxapooh
            Participant

              Thank you, Barb:)

              • April 21, 2016 at 6:29 am
              Maxapooh
              Participant

                Thank you, Barb:)

                • April 21, 2016 at 6:29 am
                Maxapooh
                Participant

                  Thank you, Barb:)

                  • November 29, 2015 at 3:15 pm
                  Maxapooh
                  Participant

                    Tom, thank you for your support and kind words. My insurance will not cover any costs outside Israel. The information about lodging is very helpful since the expenses for treatments are definitely gonna be high.

                    Thank you once again

                    • November 29, 2015 at 3:15 pm
                    Maxapooh
                    Participant

                      Tom, thank you for your support and kind words. My insurance will not cover any costs outside Israel. The information about lodging is very helpful since the expenses for treatments are definitely gonna be high.

                      Thank you once again

                      • November 29, 2015 at 3:15 pm
                      Maxapooh
                      Participant

                        Tom, thank you for your support and kind words. My insurance will not cover any costs outside Israel. The information about lodging is very helpful since the expenses for treatments are definitely gonna be high.

                        Thank you once again

                        • November 28, 2015 at 2:21 pm
                        Maxapooh
                        Participant

                          Hi Kylez, 

                          I really appreciate your help and would love to get more information. I have already sent a request to Md Anderson. Hopefully they will get back to me soon. Time is precious. 

                          How long is the treatment? How is your husband doing? Does he have many side effects?

                          Thank you, Maria

                          • November 28, 2015 at 2:21 pm
                          Maxapooh
                          Participant

                            Hi Kylez, 

                            I really appreciate your help and would love to get more information. I have already sent a request to Md Anderson. Hopefully they will get back to me soon. Time is precious. 

                            How long is the treatment? How is your husband doing? Does he have many side effects?

                            Thank you, Maria

                            • November 28, 2015 at 2:21 pm
                            Maxapooh
                            Participant

                              Hi Kylez, 

                              I really appreciate your help and would love to get more information. I have already sent a request to Md Anderson. Hopefully they will get back to me soon. Time is precious. 

                              How long is the treatment? How is your husband doing? Does he have many side effects?

                              Thank you, Maria

                              • November 28, 2015 at 2:13 pm
                              Maxapooh
                              Participant

                                Celeste, 

                                Thank you so much. Btw I really love your blog. Not the first time reading it:) You are amazing!!!

                                 

                                • November 28, 2015 at 2:13 pm
                                Maxapooh
                                Participant

                                  Celeste, 

                                  Thank you so much. Btw I really love your blog. Not the first time reading it:) You are amazing!!!

                                   

                                  • November 28, 2015 at 2:13 pm
                                  Maxapooh
                                  Participant

                                    Celeste, 

                                    Thank you so much. Btw I really love your blog. Not the first time reading it:) You are amazing!!!

                                     

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