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MELK
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MELK

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      • July 25, 2016 at 3:31 pm
      MELK
      Participant
        Hi Eve, I wanted to ask you what a collapsed vertebrae loks like. Are you in a wheelchair?
        I have a tumor at at C6 and had radiation to it, but I am very worried about it because of the implications of where it is. I realise tumors will weaken the vertebrae, but its hard to find out how likely they can cause collapse and if that means the dpinal column being damaged.
        Thank you and all the best to you.
        Mel
        • July 25, 2016 at 3:31 pm
        MELK
        Participant
          Hi Eve, I wanted to ask you what a collapsed vertebrae loks like. Are you in a wheelchair?
          I have a tumor at at C6 and had radiation to it, but I am very worried about it because of the implications of where it is. I realise tumors will weaken the vertebrae, but its hard to find out how likely they can cause collapse and if that means the dpinal column being damaged.
          Thank you and all the best to you.
          Mel
          • July 25, 2016 at 3:31 pm
          MELK
          Participant
            Hi Eve, I wanted to ask you what a collapsed vertebrae loks like. Are you in a wheelchair?
            I have a tumor at at C6 and had radiation to it, but I am very worried about it because of the implications of where it is. I realise tumors will weaken the vertebrae, but its hard to find out how likely they can cause collapse and if that means the dpinal column being damaged.
            Thank you and all the best to you.
            Mel
            • May 12, 2016 at 5:55 pm
            MELK
            Participant
              Wow that is great. Did you have to pay for the drugs because it was second time on them ?
              • May 12, 2016 at 5:55 pm
              MELK
              Participant
                Wow that is great. Did you have to pay for the drugs because it was second time on them ?
                • May 12, 2016 at 5:55 pm
                MELK
                Participant
                  Wow that is great. Did you have to pay for the drugs because it was second time on them ?
                  • May 4, 2016 at 5:50 am
                  MELK
                  Participant
                    Thanks Gary. Yes the combinations are sounding more beneficial.
                    • May 4, 2016 at 5:50 am
                    MELK
                    Participant
                      Thanks Gary. Yes the combinations are sounding more beneficial.
                      • May 4, 2016 at 5:50 am
                      MELK
                      Participant
                        Thanks Gary. Yes the combinations are sounding more beneficial.
                        • May 4, 2016 at 5:49 am
                        MELK
                        Participant
                          Thanks Ed
                          • May 4, 2016 at 5:49 am
                          MELK
                          Participant
                            Thanks Ed
                            • May 4, 2016 at 5:49 am
                            MELK
                            Participant
                              Thanks Ed
                              • May 4, 2016 at 5:47 am
                              MELK
                              Participant
                                Thanks Mat, what you say makes sense. I saw my oncologist today and he is suggesting going back onto the Braf combo, which was also my first drug taken before I got resistant.
                                Although, it might just be to give some extra time.
                                I have opted to stay on Keytruda, although i have two weeks to decide. I have just finished radiotherapy and was put on 8mg Dexmethazone. I will be tapering those down now and the next two weeks blood tests will reveal whether i am still getting liver auto immune from Keytruda and if so, I have to stop Keytruda because auto immune of liver would kill me before the cancer!
                                How long were you on the Braf Mek for as a bridge.
                                If i go back on them, i will have to pay for them, but i will do half the dose i was originally on. Scary though, cos when i became resistant geez the cancer came with a vengeance!
                                Mel
                                • May 4, 2016 at 5:47 am
                                MELK
                                Participant
                                  Thanks Mat, what you say makes sense. I saw my oncologist today and he is suggesting going back onto the Braf combo, which was also my first drug taken before I got resistant.
                                  Although, it might just be to give some extra time.
                                  I have opted to stay on Keytruda, although i have two weeks to decide. I have just finished radiotherapy and was put on 8mg Dexmethazone. I will be tapering those down now and the next two weeks blood tests will reveal whether i am still getting liver auto immune from Keytruda and if so, I have to stop Keytruda because auto immune of liver would kill me before the cancer!
                                  How long were you on the Braf Mek for as a bridge.
                                  If i go back on them, i will have to pay for them, but i will do half the dose i was originally on. Scary though, cos when i became resistant geez the cancer came with a vengeance!
                                  Mel
                                  • May 4, 2016 at 5:47 am
                                  MELK
                                  Participant
                                    Thanks Mat, what you say makes sense. I saw my oncologist today and he is suggesting going back onto the Braf combo, which was also my first drug taken before I got resistant.
                                    Although, it might just be to give some extra time.
                                    I have opted to stay on Keytruda, although i have two weeks to decide. I have just finished radiotherapy and was put on 8mg Dexmethazone. I will be tapering those down now and the next two weeks blood tests will reveal whether i am still getting liver auto immune from Keytruda and if so, I have to stop Keytruda because auto immune of liver would kill me before the cancer!
                                    How long were you on the Braf Mek for as a bridge.
                                    If i go back on them, i will have to pay for them, but i will do half the dose i was originally on. Scary though, cos when i became resistant geez the cancer came with a vengeance!
                                    Mel
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