mindy h
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mindy h

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      • August 11, 2014 at 4:01 am
      mindy h
      Participant

        she had ipi with pd1. had il2 before that.   should be starting the combo next week. roswell is our home cancer center.  because of previous experiences with all other treatments shes afraid this wont do anything either.  shes having a fair amount of back and bone pain now.

        • August 11, 2014 at 4:01 am
        mindy h
        Participant

          she had ipi with pd1. had il2 before that.   should be starting the combo next week. roswell is our home cancer center.  because of previous experiences with all other treatments shes afraid this wont do anything either.  shes having a fair amount of back and bone pain now.

          • August 11, 2014 at 4:01 am
          mindy h
          Participant

            she had ipi with pd1. had il2 before that.   should be starting the combo next week. roswell is our home cancer center.  because of previous experiences with all other treatments shes afraid this wont do anything either.  shes having a fair amount of back and bone pain now.

            • August 8, 2014 at 7:51 am
            mindy h
            Participant

              we had her follow up visit at NIH. scans showed a lot of sread of disease.  told her they had no more treatment options and that she has 2 to 4 months. She is going back to our cancer center and going to try BRAF/MEK combo.  thats only thing she has not tried.  nothing has slowed this cancer down. Thanks for sharing your story. 

              • August 8, 2014 at 7:51 am
              mindy h
              Participant

                we had her follow up visit at NIH. scans showed a lot of sread of disease.  told her they had no more treatment options and that she has 2 to 4 months. She is going back to our cancer center and going to try BRAF/MEK combo.  thats only thing she has not tried.  nothing has slowed this cancer down. Thanks for sharing your story. 

                • August 8, 2014 at 7:51 am
                mindy h
                Participant

                  we had her follow up visit at NIH. scans showed a lot of sread of disease.  told her they had no more treatment options and that she has 2 to 4 months. She is going back to our cancer center and going to try BRAF/MEK combo.  thats only thing she has not tried.  nothing has slowed this cancer down. Thanks for sharing your story. 

                  • August 8, 2014 at 5:35 am
                  mindy h
                  Participant

                    your story sounds like what we just went through with my 22 year old daughter. just left bethesda tues after failed TIL trial. told nothing left.  she is going back to our cancer center hopefully to start the combo. gives me hope that we have more than a couple months left. thank you

                    • August 8, 2014 at 5:35 am
                    mindy h
                    Participant

                      your story sounds like what we just went through with my 22 year old daughter. just left bethesda tues after failed TIL trial. told nothing left.  she is going back to our cancer center hopefully to start the combo. gives me hope that we have more than a couple months left. thank you

                      • August 8, 2014 at 5:35 am
                      mindy h
                      Participant

                        your story sounds like what we just went through with my 22 year old daughter. just left bethesda tues after failed TIL trial. told nothing left.  she is going back to our cancer center hopefully to start the combo. gives me hope that we have more than a couple months left. thank you

                        • July 15, 2014 at 5:22 am
                        mindy h
                        Participant

                          my daughter had IL2 at Roswell Park in Buffalo Ny  and had anti PD1 in Pittsburgh

                          • July 15, 2014 at 5:22 am
                          mindy h
                          Participant

                            my daughter had IL2 at Roswell Park in Buffalo Ny  and had anti PD1 in Pittsburgh

                            • July 15, 2014 at 5:22 am
                            mindy h
                            Participant

                              my daughter had IL2 at Roswell Park in Buffalo Ny  and had anti PD1 in Pittsburgh

                              • July 15, 2014 at 5:20 am
                              mindy h
                              Participant

                                thanks for the info. waiting is the hardest part.  we have seen dr rosenberg and dr yang. we should be back first week in aug.  always glad to hear from people who have had til and doing well

                                • July 15, 2014 at 5:20 am
                                mindy h
                                Participant

                                  thanks for the info. waiting is the hardest part.  we have seen dr rosenberg and dr yang. we should be back first week in aug.  always glad to hear from people who have had til and doing well

                                  • July 15, 2014 at 5:20 am
                                  mindy h
                                  Participant

                                    thanks for the info. waiting is the hardest part.  we have seen dr rosenberg and dr yang. we should be back first week in aug.  always glad to hear from people who have had til and doing well

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