MWlady

Oh thank your Marta!! It's so nice to finally hear someone who also goes to U of M! June 23rd is her next start date. I stay at the Hope Lodge down there, without it I woudln't be bale to be there for her, it's a blesing!

Oh thank your Marta!! It's so nice to finally hear someone who also goes to U of M! June 23rd is her next start date. I stay at the Hope Lodge down there, without it I woudln't be bale to be there for her, it's a blesing!

Oh thank your Marta!! It's so nice to finally hear someone who also goes to U of M! June 23rd is her next start date. I stay at the Hope Lodge down there, without it I woudln't be bale to be there for her, it's a blesing!

Hi Moira, thank you for your reply, I was beginning to wonder if anyone would respond 🙂 I'll answer in the order your asked, When you have the IL2 treatment, you are in the hospital for 5 or 6 days, you get one bag every 8 hours, max is 14, only a handful can tolerate that many. She had 7 first round and 5 in the last round.So after the hospital stay you go home and recover for 9 days, then you go back and do it all over again. This time they gave her 16 days to regroup, I think it was more for her to mentally work up to it, the first round was horrific and she became very ill with capillary leak syndrome, common side effect of this sadly, and her oxygn levels and blood pressure wouldn't come back to normal so they had to stop treatment. This second round she did great, side effets were very mild, but the fear of getting that sick again prevented her from going on after 5 bags, not knowing of course which bag could be the amount to make her so sick again. So fear got the better of her. We saw her oncologist today, he is local. The new ulcerated spot on her foot, he looked at, but isn't wanting to even do a biopsy, due to the fact of her having an open wound while doing the treatment, too big a risk of infection. Basically, she's not in any pain, the tumors near her knee they feel like they are merging into one big tumor, and they've seem to have grown since the treatment started. But due to the fact of it being in her pelvic bone, both oncologists agree, best not to operate on any of them. He upped her dose for Depression meds today, she really has been down, understandably so. I said to her today that at some point she is going to need to decide does she want quality or quantity, her reply was " I am not near having to make that decision" Thanks for taking the time Moira, i so appreciate it. 

Hi Moira, thank you for your reply, I was beginning to wonder if anyone would respond 🙂 I'll answer in the order your asked, When you have the IL2 treatment, you are in the hospital for 5 or 6 days, you get one bag every 8 hours, max is 14, only a handful can tolerate that many. She had 7 first round and 5 in the last round.So after the hospital stay you go home and recover for 9 days, then you go back and do it all over again. This time they gave her 16 days to regroup, I think it was more for her to mentally work up to it, the first round was horrific and she became very ill with capillary leak syndrome, common side effect of this sadly, and her oxygn levels and blood pressure wouldn't come back to normal so they had to stop treatment. This second round she did great, side effets were very mild, but the fear of getting that sick again prevented her from going on after 5 bags, not knowing of course which bag could be the amount to make her so sick again. So fear got the better of her. We saw her oncologist today, he is local. The new ulcerated spot on her foot, he looked at, but isn't wanting to even do a biopsy, due to the fact of her having an open wound while doing the treatment, too big a risk of infection. Basically, she's not in any pain, the tumors near her knee they feel like they are merging into one big tumor, and they've seem to have grown since the treatment started. But due to the fact of it being in her pelvic bone, both oncologists agree, best not to operate on any of them. He upped her dose for Depression meds today, she really has been down, understandably so. I said to her today that at some point she is going to need to decide does she want quality or quantity, her reply was " I am not near having to make that decision" Thanks for taking the time Moira, i so appreciate it. 

Hi Moira, thank you for your reply, I was beginning to wonder if anyone would respond 🙂 I'll answer in the order your asked, When you have the IL2 treatment, you are in the hospital for 5 or 6 days, you get one bag every 8 hours, max is 14, only a handful can tolerate that many. She had 7 first round and 5 in the last round.So after the hospital stay you go home and recover for 9 days, then you go back and do it all over again. This time they gave her 16 days to regroup, I think it was more for her to mentally work up to it, the first round was horrific and she became very ill with capillary leak syndrome, common side effect of this sadly, and her oxygn levels and blood pressure wouldn't come back to normal so they had to stop treatment. This second round she did great, side effets were very mild, but the fear of getting that sick again prevented her from going on after 5 bags, not knowing of course which bag could be the amount to make her so sick again. So fear got the better of her. We saw her oncologist today, he is local. The new ulcerated spot on her foot, he looked at, but isn't wanting to even do a biopsy, due to the fact of her having an open wound while doing the treatment, too big a risk of infection. Basically, she's not in any pain, the tumors near her knee they feel like they are merging into one big tumor, and they've seem to have grown since the treatment started. But due to the fact of it being in her pelvic bone, both oncologists agree, best not to operate on any of them. He upped her dose for Depression meds today, she really has been down, understandably so. I said to her today that at some point she is going to need to decide does she want quality or quantity, her reply was " I am not near having to make that decision" Thanks for taking the time Moira, i so appreciate it. 

Yes I know on the website it doesn't say so, but the University of Minnesota is doign the IL2, we've been twice alreday. The Dr's do a lot of research,ad their team is wonderful. Her insurance wouldn't allow Mayo, and her local oncologist is the one that referred her to the U of M. He stays in touch with the Dr's at the U, they are working together. Thank you for your reply, it's appreciated . Here is the link to U of M, it has to be a specialized place that does the IL2 treatment. https://www.mhealth.org/care/conditions/skin-cancer-adult

Yes I know on the website it doesn't say so, but the University of Minnesota is doign the IL2, we've been twice alreday. The Dr's do a lot of research,ad their team is wonderful. Her insurance wouldn't allow Mayo, and her local oncologist is the one that referred her to the U of M. He stays in touch with the Dr's at the U, they are working together. Thank you for your reply, it's appreciated . Here is the link to U of M, it has to be a specialized place that does the IL2 treatment. https://www.mhealth.org/care/conditions/skin-cancer-adult

Yes I know on the website it doesn't say so, but the University of Minnesota is doign the IL2, we've been twice alreday. The Dr's do a lot of research,ad their team is wonderful. Her insurance wouldn't allow Mayo, and her local oncologist is the one that referred her to the U of M. He stays in touch with the Dr's at the U, they are working together. Thank you for your reply, it's appreciated . Here is the link to U of M, it has to be a specialized place that does the IL2 treatment. https://www.mhealth.org/care/conditions/skin-cancer-adult