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Nashvillian

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      • November 30, 2017 at 5:48 am
      Nashvillian
      Participant
        I am on nivo and it’s not a trial. It is my adjunctive therapy for 1 year. Then see where we are at. I am stage 3b.
        • November 15, 2017 at 5:13 am
        Nashvillian
        Participant
          Not sure about Medicare but Aetna approved me for stage 3b 6 weeks ago.
          • November 14, 2017 at 8:23 pm
          Nashvillian
          Participant

            I am stage 3b on opdivo only as adjuntive therpay. Completely ressescted. The treatment with just opdivo is not bad. 

            • November 14, 2017 at 8:19 pm
            Nashvillian
            Participant

              Dx in July this year. Had surgery Stage 3b and now on Opdivo in Adjunctive Therapy. The owrst part has been the sirgery to remove 30 lymph nodes in my neck and it has not healed well. Other than that it has not been terrible.

              • November 14, 2017 at 8:14 pm
              Nashvillian
              Participant

                What an Awesome story!!!

                 

                • October 27, 2017 at 11:41 pm
                Nashvillian
                Participant
                  Terry,

                  I had a 3.6mm melanoma cut of about 3 months ago, and parotid removed, and. Lymph nodes. My face was almost like a stroke victim. As of today it’s almost back to normal. They get in there moving stuff around and causes havoc.

                  • October 26, 2017 at 5:51 pm
                  Nashvillian
                  Participant

                    I wish I would have taken the time to investigate more on this. When I was first diagnosed 3 months ago I just said do whatever get it out of me. No I am still healing from surgery 2 months ago. Had a huge infection and none of the nodes came back bad except the sentitnel one that we saw on pet scan anyways.

                     

                    • October 24, 2017 at 4:06 pm
                    Nashvillian
                    Participant

                      Be impossible to answer unless someone has their own personal experience. I have read anywhere from weeks to never.

                       

                      • March 23, 2018 at 3:23 pm
                      Nashvillian
                      Participant

                        Went to the 30 minutes and it was not a problem for me. They were about to up me to the double dose so i only had togo once a month, but opdivo was found to not be working for me and i have togo back under the knoife and a new treatment after that.

                        • October 27, 2017 at 7:09 pm
                        Nashvillian
                        Participant
                          Me neither . I went super agressive and have second guessed it because of a massive infection I got and still dealing with.
                          • October 27, 2017 at 5:15 pm
                          Nashvillian
                          Participant

                            No cold huh thats wild. I have only been ftigued and thats about it. I am about the same  started treatment 50 days after surgery.

                            • October 27, 2017 at 5:13 pm
                            Nashvillian
                            Participant

                              Yes insurance is covering it. I am one of the first ones to get it approved for this treatment i think outside of a trail. I go in Monday for my next treatment. Really outside the surgery, which was no joke, I have very little side effects except some fatigue.

                              • October 27, 2017 at 5:13 pm
                              Nashvillian
                              Participant

                                Are you still in Nashville?

                                • September 28, 2017 at 9:37 pm
                                Nashvillian
                                Participant

                                  I am 42 and just went through all this. I am repsonding because these posts are from years ago. I just had my paroid removed and 34 lymph nodes and it was not easy. I am a decenlty in shap guy need to lose 25 libs but strong. You do not have todo chemo now for this. Ask you dr about the immunotherpaies available they are nto as harsh.

                                   

                                  • September 28, 2017 at 5:06 pm
                                  Nashvillian
                                  Participant

                                    Thats what i did . I just got mine finsihed and mine is on my left temple. I had to have wide margins because of the level of my disease but the plastic surgeon is the corrrect jumping off point.

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