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Netlla

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      Netlla
      Participant

        His liver enzymes are elevated now, they had not previously been. He has a peritoneal catheter and they drain 1,000 CC of fluid from his stomach daily. He is not doing too well as of now. His vitals are all low and he is having shortness of breath today. We're hoping he can get strong in order to pursue some form of treatment. Thanks for your concern. 

         

        -Netlla

        Netlla
        Participant

          His liver enzymes are elevated now, they had not previously been. He has a peritoneal catheter and they drain 1,000 CC of fluid from his stomach daily. He is not doing too well as of now. His vitals are all low and he is having shortness of breath today. We're hoping he can get strong in order to pursue some form of treatment. Thanks for your concern. 

           

          -Netlla

          Netlla
          Participant

            Thank you so much, Gene. It was great to hear that someone is having success with the ippi. Doug was unable to start this form of treatment though afterall. The doctor told him he was too weak to start this treatment and gave him 2 weeks. It's very discouraging. My step-father told him that he was not going to give up just yet, so we are still in search of something for him. He has been in the hospital since Friday. It looked like he was doing better yesterday, but today his vitals were all very low and he is having shortness of breath, so I know his physician will not go ahead and start this treatment. Thanks again for your encouraging words and the link. VERY helpful to know. 

            Thanks again, 

            Netlla 

            Netlla
            Participant

              Thank you so much, Gene. It was great to hear that someone is having success with the ippi. Doug was unable to start this form of treatment though afterall. The doctor told him he was too weak to start this treatment and gave him 2 weeks. It's very discouraging. My step-father told him that he was not going to give up just yet, so we are still in search of something for him. He has been in the hospital since Friday. It looked like he was doing better yesterday, but today his vitals were all very low and he is having shortness of breath, so I know his physician will not go ahead and start this treatment. Thanks again for your encouraging words and the link. VERY helpful to know. 

              Thanks again, 

              Netlla 

              Netlla
              Participant

                Dear Vickie, 

                He did not start ipi on Friday. The doctor told him he was too weak to start this. So, they admitted him and he had IV fluids and an IV antibiotic ran in order to try to get him stronger. My honest opinion is that his current doctor will not do any treatment for him, which is very sad. He told Doug that he probably had two weeks left and this was very hard for Doug to hear, of course. However, my step-dad is a fighter and he informed his Dr. that he was not giving up just yet. 

                Your story was very inspirational to me, because it reminded me a lot of the current state my step-father is in. At this point, we would go anywhere to get him the treatment with the E-7080. No one is returning my phone call from the Esia company, though. I've even left two messages with the supervisor of the company.  Do you think I could call your physician and see if Doug sounds like he could get started on this drug?  We would fly him to Denver if we had to. Would it be too much to ask to get Dr. Gonzalez's contact information? 

                Thanks again you have been more help than you'll ever know! 

                -Netlla 

                Netlla
                Participant

                  Dear Vickie, 

                  He did not start ipi on Friday. The doctor told him he was too weak to start this. So, they admitted him and he had IV fluids and an IV antibiotic ran in order to try to get him stronger. My honest opinion is that his current doctor will not do any treatment for him, which is very sad. He told Doug that he probably had two weeks left and this was very hard for Doug to hear, of course. However, my step-dad is a fighter and he informed his Dr. that he was not giving up just yet. 

                  Your story was very inspirational to me, because it reminded me a lot of the current state my step-father is in. At this point, we would go anywhere to get him the treatment with the E-7080. No one is returning my phone call from the Esia company, though. I've even left two messages with the supervisor of the company.  Do you think I could call your physician and see if Doug sounds like he could get started on this drug?  We would fly him to Denver if we had to. Would it be too much to ask to get Dr. Gonzalez's contact information? 

                  Thanks again you have been more help than you'll ever know! 

                  -Netlla 

                  Netlla
                  Participant

                    You're doing amazing! That is all just AMAZING! This is so good…. It is really comforting that I found someone that could relate to Doug and I'm so glad I have you to ask all these questions! THANK YOU SO VERY MUCH! 

                    Netlla
                    Participant

                      You're doing amazing! That is all just AMAZING! This is so good…. It is really comforting that I found someone that could relate to Doug and I'm so glad I have you to ask all these questions! THANK YOU SO VERY MUCH! 

                      Netlla
                      Participant

                        What clinic do you use and do you think he should come there to try to get on the E-7080 trial? Do you think he would have better luck of being approved? Thanks so much for your help. His Drs are wanting him to start the ipi tomorrow, and I know if he does that he won't be a canidate anymore, so I'm trying to figure everything out for him! Thanks again! 

                        Netlla
                        Participant

                          What clinic do you use and do you think he should come there to try to get on the E-7080 trial? Do you think he would have better luck of being approved? Thanks so much for your help. His Drs are wanting him to start the ipi tomorrow, and I know if he does that he won't be a canidate anymore, so I'm trying to figure everything out for him! Thanks again! 

                          Netlla
                          Participant

                            What clinic do you use and do you think he should come there to try to get on the E-7080 trial? Do you think he would have better luck of being approved? Thanks so much for your help. His Drs are wanting him to start the ipi tomorrow, and I know if he does that he won't be a canidate anymore, so I'm trying to figure everything out for him! Thanks again! 

                            Netlla
                            Participant

                              What clinic do you use and do you think he should come there to try to get on the E-7080 trial? Do you think he would have better luck of being approved? Thanks so much for your help. His Drs are wanting him to start the ipi tomorrow, and I know if he does that he won't be a canidate anymore, so I'm trying to figure everything out for him! Thanks again! 

                              Netlla
                              Participant

                                I'm so glad you're responding to something! I really appreciate the time you took to write this. You said you were almost wheel-chair bound? That is exactly how Doug is, but his oncology nurse is saying they won't aprove him for the trial if he isn't in a pretty healthy-looking state. Is this true?? 

                                 

                                Thanks again, 

                                Netlla 

                                Netlla
                                Participant

                                  Thank you SO much, Michael that really was helpful!! 

                                  Best regards, 

                                  Netlla 

                                  Netlla
                                  Participant

                                    Thank you SO much, Michael that really was helpful!! 

                                    Best regards, 

                                    Netlla 

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