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noisy77
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noisy77

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      • November 20, 2013 at 4:08 am
      noisy77
      Participant

        Great!  Love good news!!!

        • November 20, 2013 at 4:08 am
        noisy77
        Participant

          Great!  Love good news!!!

          • November 20, 2013 at 4:08 am
          noisy77
          Participant

            Great!  Love good news!!!

            • November 16, 2013 at 3:10 pm
            noisy77
            Participant

              Hello!

              My mom was stage 3 and choose to skip the ipi/ interferon trial due to the fact that she didn't want the chance of getting interferon which appears not to be effective  and the side effects are horrible.  She had melanoma in her foot and 5 nodes positive.   She is now on the pd1/ ipi trial since she did become stage 4.  Every situation is different but make sure to get second opinions by top melanoma drs.

              • November 16, 2013 at 3:10 pm
              noisy77
              Participant

                Hello!

                My mom was stage 3 and choose to skip the ipi/ interferon trial due to the fact that she didn't want the chance of getting interferon which appears not to be effective  and the side effects are horrible.  She had melanoma in her foot and 5 nodes positive.   She is now on the pd1/ ipi trial since she did become stage 4.  Every situation is different but make sure to get second opinions by top melanoma drs.

                • November 16, 2013 at 3:10 pm
                noisy77
                Participant

                  Hello!

                  My mom was stage 3 and choose to skip the ipi/ interferon trial due to the fact that she didn't want the chance of getting interferon which appears not to be effective  and the side effects are horrible.  She had melanoma in her foot and 5 nodes positive.   She is now on the pd1/ ipi trial since she did become stage 4.  Every situation is different but make sure to get second opinions by top melanoma drs.

                  • November 16, 2013 at 2:58 pm
                  noisy77
                  Participant

                    I'm not sure- but I do know after my moms lymph node dissection – the whole area showed up as "hot" on the next PET scan.  

                    • November 16, 2013 at 2:58 pm
                    noisy77
                    Participant

                      I'm not sure- but I do know after my moms lymph node dissection – the whole area showed up as "hot" on the next PET scan.  

                      • November 16, 2013 at 2:58 pm
                      noisy77
                      Participant

                        I'm not sure- but I do know after my moms lymph node dissection – the whole area showed up as "hot" on the next PET scan.  

                        • June 18, 2012 at 12:37 am
                        noisy77
                        Participant

                          Hi There –

                          My mom (who is caucasian) has Acral Lentiginous Melanoma – she is stage 3c (diagnosed in December).  She had her big toe amputated followed by radiation on the groin.

                          I don't know if it is more dangerous  – but it seems like there is a lot less data / treatment information that is specific to ALM.

                          Are you doing any further treatment beyond the surgery of the liesion on your ankle?  Curious as my mom got conflicting information between Dana Farber and Sloan.

                          • June 18, 2012 at 12:37 am
                          noisy77
                          Participant

                            Hi There –

                            My mom (who is caucasian) has Acral Lentiginous Melanoma – she is stage 3c (diagnosed in December).  She had her big toe amputated followed by radiation on the groin.

                            I don't know if it is more dangerous  – but it seems like there is a lot less data / treatment information that is specific to ALM.

                            Are you doing any further treatment beyond the surgery of the liesion on your ankle?  Curious as my mom got conflicting information between Dana Farber and Sloan.

                            • June 18, 2012 at 12:37 am
                            noisy77
                            Participant

                              Hi There –

                              My mom (who is caucasian) has Acral Lentiginous Melanoma – she is stage 3c (diagnosed in December).  She had her big toe amputated followed by radiation on the groin.

                              I don't know if it is more dangerous  – but it seems like there is a lot less data / treatment information that is specific to ALM.

                              Are you doing any further treatment beyond the surgery of the liesion on your ankle?  Curious as my mom got conflicting information between Dana Farber and Sloan.

                              • November 16, 2013 at 2:17 am
                              noisy77
                              Participant

                                Thanks you for your response.  I read your profile and hope you are doing well. 

                                • November 16, 2013 at 2:17 am
                                noisy77
                                Participant

                                  Thanks you for your response.  I read your profile and hope you are doing well. 

                                  • November 16, 2013 at 2:17 am
                                  noisy77
                                  Participant

                                    Thanks you for your response.  I read your profile and hope you are doing well. 

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