The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

oliverjterry

Forum Replies Created

Viewing 1 reply thread
  • Replies
      oliverjterry
      Participant

        My first biopsy involved a follow-up with a plastic surgeon where they removed the skin around with a 1cm margin. This is standard procedure which removes all melanoma in the overwhelming majority of cases.

        If your melanoma is "thin" (<1mm, essentially doesn't "pierce" your skin) then there is a high chance it is isolated, and generally you should not have too much to worry about if you haven't had other melanomas in the past. Be aware of your family history, as some melanoma is hereditary.

        Stay positive! There is probably nothing to worry about, just stay aware!

        oliverjterry
        Participant

          Hi there. I'm not a doctor, but a patient, recently made aware that I have at least stage III melanoma. As you may or may not know, 0.5mm with no ulceration is not that "bad" as far as melanoma goes. (For what that's worth) The consultation for further excision is likely to remove the appropriate margins around the site of the melanoma – for mine, they took an addition 1cm of skin both times, as that has been shown to prevent recurrence in an overwhelming majority of cases. In the absence of anything else, your melanoma would be a Stage I.

          I will tell you what my doctor told me – that until you have further information, there isn't really anything that you can do. It really sucks to be uncertain and wait. My advice is to stay positive and realistic. Whatever happens will happen, although you should definitely work hard to stay on top of your care. Definitely bring up the lymph nodes to your doctor, though – they may be related, or they may be something else.

          oliverjterry
          Participant

            Thanks for the response! I've been looking into the various things available to me (I'm in Canada and most things healthcare are not a huge worry, thank god) and it looks like generally most things which are medically necessary will be available. I'l definitely look into the various things you've suggested, I think NGS is covered in some cases where Health Canada has determined it to be effective. Being an advocate for your own health seems to be really essential and I'm so glad that there are others out there who can show me how to do this effectively.

            oliverjterry
            Participant

              Thanks for your response, Celeste – it's all pretty uncertain until I get the PET scan. Sentinel lymph node biopsy confirmed melanoma in 2 of 4 lymph nodes removed, so that doesn't really give me cause for celebration or worry. Uncertainty is really a killer.

              Thanks so much for all the great information. I'll definitely have a more in-depth look at it when I have a better idea of the staging.

              I plan to live. I try to be as sanguine as I can about it but I do realize that there is always the possiblity of death, maybe just a little sooner than I'd forecast. My mother died of cancer when I was young so weirdly I think I'm a bit more prepared than I otherwise might be.

          Viewing 1 reply thread
          About the MRF Patient Forum

          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

          Popular Topics