OzzieK

A bit new to the game here with my dad, but in a word it SUCKS! Just experienced the first 3 month scanxiety and the news could have been better but it also could have been worse. I'm guessing you have a plan of action come what may and are prepared to deal with any eventuality head on. Fingers and toes crossed for you that you enjoy 3 more months of "normal" and many more after that!!

A bit new to the game here with my dad, but in a word it SUCKS! Just experienced the first 3 month scanxiety and the news could have been better but it also could have been worse. I'm guessing you have a plan of action come what may and are prepared to deal with any eventuality head on. Fingers and toes crossed for you that you enjoy 3 more months of "normal" and many more after that!!

A bit new to the game here with my dad, but in a word it SUCKS! Just experienced the first 3 month scanxiety and the news could have been better but it also could have been worse. I'm guessing you have a plan of action come what may and are prepared to deal with any eventuality head on. Fingers and toes crossed for you that you enjoy 3 more months of "normal" and many more after that!!

Hi Jme, I actually already partially replied to your question on my original string from yesterday. I'm certainly no expert compared to others on this board, but am a bit confused by you saying that he had a nodular melanoma, but no primary. I would think that the nodular melanoma is the primary. In any case, good news on the clear nodes. My understanding about the sentinel node is that, depending on where the original growth is, the primary lymph channel may actually be on the opposite side of the body. Some of the experts may be able to chime in with more info! As far as treatment, if he is currently NED he may not be eligible for any systemic treatment at this point and at this stage, except in the course of a clinical trial. Again, others may know more about that.

Hi Jme, I actually already partially replied to your question on my original string from yesterday. I'm certainly no expert compared to others on this board, but am a bit confused by you saying that he had a nodular melanoma, but no primary. I would think that the nodular melanoma is the primary. In any case, good news on the clear nodes. My understanding about the sentinel node is that, depending on where the original growth is, the primary lymph channel may actually be on the opposite side of the body. Some of the experts may be able to chime in with more info! As far as treatment, if he is currently NED he may not be eligible for any systemic treatment at this point and at this stage, except in the course of a clinical trial. Again, others may know more about that.

Hi Jme, I actually already partially replied to your question on my original string from yesterday. I'm certainly no expert compared to others on this board, but am a bit confused by you saying that he had a nodular melanoma, but no primary. I would think that the nodular melanoma is the primary. In any case, good news on the clear nodes. My understanding about the sentinel node is that, depending on where the original growth is, the primary lymph channel may actually be on the opposite side of the body. Some of the experts may be able to chime in with more info! As far as treatment, if he is currently NED he may not be eligible for any systemic treatment at this point and at this stage, except in the course of a clinical trial. Again, others may know more about that.

I'm SO sorry that you're going through this. I can totally emphathize. I'm there too, to some degree. My dad was diagnosed with melanoma earlier this year and since then we have all been on a rollercoaster ride of emotions and uncertainty. It totally and completely sucks. BIG HUGS!!!!

I'm SO sorry that you're going through this. I can totally emphathize. I'm there too, to some degree. My dad was diagnosed with melanoma earlier this year and since then we have all been on a rollercoaster ride of emotions and uncertainty. It totally and completely sucks. BIG HUGS!!!!

I'm SO sorry that you're going through this. I can totally emphathize. I'm there too, to some degree. My dad was diagnosed with melanoma earlier this year and since then we have all been on a rollercoaster ride of emotions and uncertainty. It totally and completely sucks. BIG HUGS!!!!

The EAP is only available at certain clinics (MD Anderson may be one of them) BUT my understanding is that you have to have measurable disease (ie mets and not NED), you don't qualify for trials, and you've already tried other systemic treatments first (I'm guessing the last 2 criteria will change once it becomes FDA approved). My dad is currently stage IIIC and because he has a met growing on his scar, his doc was able to start him on ipi. If that doesnt work, THEN he'll be able to take MK-3475 EAP. Other than that, he isn't eligible for trials because of another underlying condition.

The EAP is only available at certain clinics (MD Anderson may be one of them) BUT my understanding is that you have to have measurable disease (ie mets and not NED), you don't qualify for trials, and you've already tried other systemic treatments first (I'm guessing the last 2 criteria will change once it becomes FDA approved). My dad is currently stage IIIC and because he has a met growing on his scar, his doc was able to start him on ipi. If that doesnt work, THEN he'll be able to take MK-3475 EAP. Other than that, he isn't eligible for trials because of another underlying condition.

The EAP is only available at certain clinics (MD Anderson may be one of them) BUT my understanding is that you have to have measurable disease (ie mets and not NED), you don't qualify for trials, and you've already tried other systemic treatments first (I'm guessing the last 2 criteria will change once it becomes FDA approved). My dad is currently stage IIIC and because he has a met growing on his scar, his doc was able to start him on ipi. If that doesnt work, THEN he'll be able to take MK-3475 EAP. Other than that, he isn't eligible for trials because of another underlying condition.