The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

paigeless

Forum Replies Created

Viewing 2 reply threads
  • Replies
      paigeless
      Participant

        Brand new to the forum as well, and stage IIIb.  (Hi!) 

        I'm going back and forth myself right now for the interferon, I was diagnosed with Clark IV, Breslow 4.1mm, ulcerated with Mitosis.  I just went to Chicago to see about the ipi-inf clinical trial but decided against it because I'd have to commute 2hrs everyday if I was chosen to be on inf, and I can't afford to leave my job right now. My onc has been encouraging me to join a trial, but I can't find one that I qualify for that would allow me to even think about keeping my job while doing.  I already lost almost 2 months of the year when I was diagnosed and had lymph node surgeries.  I think I'm going to try inf, but I worry because I've dealt with depression issues since I was in high school (the worst was when I had severe post-partum anxiety and depression after my son was born, I was put on a cocktail of 3 anti-depressants and still had symptoms).

        I don't want to just sit back and "wait-and-watch"…  waiting for my mole to normalize itself was how I ended up not going in to get it checked before it got bad, so I'd rather do SOMETHING to even slightly improve my outcome. But there's not really anything else out there that I've seen…

        And thank you to everyone on here, I've been lurking as a guest since my diagnosis in Jan, I've gotten great questions for my doctors that I wouldn't have even thought to ask, and seeing all the celebrations helps me not to dwell too much on the worry!  🙂

        paigeless
        Participant

          Brand new to the forum as well, and stage IIIb.  (Hi!) 

          I'm going back and forth myself right now for the interferon, I was diagnosed with Clark IV, Breslow 4.1mm, ulcerated with Mitosis.  I just went to Chicago to see about the ipi-inf clinical trial but decided against it because I'd have to commute 2hrs everyday if I was chosen to be on inf, and I can't afford to leave my job right now. My onc has been encouraging me to join a trial, but I can't find one that I qualify for that would allow me to even think about keeping my job while doing.  I already lost almost 2 months of the year when I was diagnosed and had lymph node surgeries.  I think I'm going to try inf, but I worry because I've dealt with depression issues since I was in high school (the worst was when I had severe post-partum anxiety and depression after my son was born, I was put on a cocktail of 3 anti-depressants and still had symptoms).

          I don't want to just sit back and "wait-and-watch"…  waiting for my mole to normalize itself was how I ended up not going in to get it checked before it got bad, so I'd rather do SOMETHING to even slightly improve my outcome. But there's not really anything else out there that I've seen…

          And thank you to everyone on here, I've been lurking as a guest since my diagnosis in Jan, I've gotten great questions for my doctors that I wouldn't have even thought to ask, and seeing all the celebrations helps me not to dwell too much on the worry!  🙂

          paigeless
          Participant

            Brand new to the forum as well, and stage IIIb.  (Hi!) 

            I'm going back and forth myself right now for the interferon, I was diagnosed with Clark IV, Breslow 4.1mm, ulcerated with Mitosis.  I just went to Chicago to see about the ipi-inf clinical trial but decided against it because I'd have to commute 2hrs everyday if I was chosen to be on inf, and I can't afford to leave my job right now. My onc has been encouraging me to join a trial, but I can't find one that I qualify for that would allow me to even think about keeping my job while doing.  I already lost almost 2 months of the year when I was diagnosed and had lymph node surgeries.  I think I'm going to try inf, but I worry because I've dealt with depression issues since I was in high school (the worst was when I had severe post-partum anxiety and depression after my son was born, I was put on a cocktail of 3 anti-depressants and still had symptoms).

            I don't want to just sit back and "wait-and-watch"…  waiting for my mole to normalize itself was how I ended up not going in to get it checked before it got bad, so I'd rather do SOMETHING to even slightly improve my outcome. But there's not really anything else out there that I've seen…

            And thank you to everyone on here, I've been lurking as a guest since my diagnosis in Jan, I've gotten great questions for my doctors that I wouldn't have even thought to ask, and seeing all the celebrations helps me not to dwell too much on the worry!  🙂

        Viewing 2 reply threads
        About the MRF Patient Forum

        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

        Popular Topics