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Pam S.
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Pam S.

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      • April 23, 2014 at 12:38 am
      Pam S.
      Participant

        Hi Maureen,

        My husband had his 8 out of 10 external radiation on his RLL. He has been feeling terrible since. Just recently ha has been doing some "unusual" things. Like putting on only one shoe or reaching for things that arent there, forgetting a lot, but he seems to realize it.His last gamma knife was in March  and MRI few weeks ago 3 more tumors gone (only 4 left !) so today the radiol/oncol did another MRI says he sees some swelling, but results arent done yet and wants us to see Dr.Monaco(neuro surgeon) (think hes with Kirkwood)  in am. So here we go again, On Monday 5a we have kyphoplasty on T7 due to fracture that may be the cancer or due to the cancer at Shadyside. Not sure how he will feel after-if schedules permit maybe we could meet that morning. My cell is 740 381-7309. So glad your husband got in a trial.  Pam

        • April 23, 2014 at 12:38 am
        Pam S.
        Participant

          Hi Maureen,

          My husband had his 8 out of 10 external radiation on his RLL. He has been feeling terrible since. Just recently ha has been doing some "unusual" things. Like putting on only one shoe or reaching for things that arent there, forgetting a lot, but he seems to realize it.His last gamma knife was in March  and MRI few weeks ago 3 more tumors gone (only 4 left !) so today the radiol/oncol did another MRI says he sees some swelling, but results arent done yet and wants us to see Dr.Monaco(neuro surgeon) (think hes with Kirkwood)  in am. So here we go again, On Monday 5a we have kyphoplasty on T7 due to fracture that may be the cancer or due to the cancer at Shadyside. Not sure how he will feel after-if schedules permit maybe we could meet that morning. My cell is 740 381-7309. So glad your husband got in a trial.  Pam

          • April 23, 2014 at 12:38 am
          Pam S.
          Participant

            Hi Maureen,

            My husband had his 8 out of 10 external radiation on his RLL. He has been feeling terrible since. Just recently ha has been doing some "unusual" things. Like putting on only one shoe or reaching for things that arent there, forgetting a lot, but he seems to realize it.His last gamma knife was in March  and MRI few weeks ago 3 more tumors gone (only 4 left !) so today the radiol/oncol did another MRI says he sees some swelling, but results arent done yet and wants us to see Dr.Monaco(neuro surgeon) (think hes with Kirkwood)  in am. So here we go again, On Monday 5a we have kyphoplasty on T7 due to fracture that may be the cancer or due to the cancer at Shadyside. Not sure how he will feel after-if schedules permit maybe we could meet that morning. My cell is 740 381-7309. So glad your husband got in a trial.  Pam

            • April 21, 2014 at 11:21 pm
            Pam S.
            Participant

              Hi Maureen, Thanks so much for responding. Would love to meet-but not sure what day we will be there and not be getting procedure/appts/radiation all in one day, because we live bout 1 1/2 hrs away. Can you tell me where your husbands melanoma is ?  Every time we turn around something else pops up. When was he diagnosed ? Sorry to ask so many questions, but I wonder if we have had any similar situations.

              Thanks, Pam

              • April 21, 2014 at 11:21 pm
              Pam S.
              Participant

                Hi Maureen, Thanks so much for responding. Would love to meet-but not sure what day we will be there and not be getting procedure/appts/radiation all in one day, because we live bout 1 1/2 hrs away. Can you tell me where your husbands melanoma is ?  Every time we turn around something else pops up. When was he diagnosed ? Sorry to ask so many questions, but I wonder if we have had any similar situations.

                Thanks, Pam

                • April 21, 2014 at 11:21 pm
                Pam S.
                Participant

                  Hi Maureen, Thanks so much for responding. Would love to meet-but not sure what day we will be there and not be getting procedure/appts/radiation all in one day, because we live bout 1 1/2 hrs away. Can you tell me where your husbands melanoma is ?  Every time we turn around something else pops up. When was he diagnosed ? Sorry to ask so many questions, but I wonder if we have had any similar situations.

                  Thanks, Pam

                  • April 20, 2014 at 10:42 pm
                  Pam S.
                  Participant

                    My husband (60yrs) dx stage 4 end of Nov was in his small intestine, lung and brain. Have had 3 gamma knifes -last MRI -only 4 tumors left (out of 9) . Has 3 tumors removed from small intestine in Dec-took him a long to recover was going to go back to work Feb 3. Then he had multiple seizures on Jan 27–scared me to death-took few weeks to get over this too. So no work. In March SOB and 2 bronchoscopies. Tumor in RLL one bronchus cleared-the othe main bronchus tumor is very hard. Having 10 days lung radiation. Meanwhile found 1 vertebrea fractured and will do kyphoplasty to put cement in the spine- cancer not in spinal cord at this point. Also will need some radiation on the spine. Also found mets in 1 rib and possibly on the liver and adrenal gland. Will have pet scan on Thurs. Am scared to death–dont know what to do-he is having such a rough time with fatigue-no energy-forgeting things-no appetite-he just want it to end. I am afraid with all this radiation he will never feel good again. I almost forgot will have bracyy therapy for 3 wks for his lung..Anyone had similar experience ? any advice- we have great DRs at UPMC/Hillman Cancer Center. I need someone to talk to that is going thru this. All family and friends smpathize offer help but they dont understand-I am tired of questions and the "im sorries"    Just need to someone in the same boat–I dont think my husband has a lot of time and i feel helpless………Thanks to anyone who can espond.

                    • April 20, 2014 at 10:42 pm
                    Pam S.
                    Participant

                      My husband (60yrs) dx stage 4 end of Nov was in his small intestine, lung and brain. Have had 3 gamma knifes -last MRI -only 4 tumors left (out of 9) . Has 3 tumors removed from small intestine in Dec-took him a long to recover was going to go back to work Feb 3. Then he had multiple seizures on Jan 27–scared me to death-took few weeks to get over this too. So no work. In March SOB and 2 bronchoscopies. Tumor in RLL one bronchus cleared-the othe main bronchus tumor is very hard. Having 10 days lung radiation. Meanwhile found 1 vertebrea fractured and will do kyphoplasty to put cement in the spine- cancer not in spinal cord at this point. Also will need some radiation on the spine. Also found mets in 1 rib and possibly on the liver and adrenal gland. Will have pet scan on Thurs. Am scared to death–dont know what to do-he is having such a rough time with fatigue-no energy-forgeting things-no appetite-he just want it to end. I am afraid with all this radiation he will never feel good again. I almost forgot will have bracyy therapy for 3 wks for his lung..Anyone had similar experience ? any advice- we have great DRs at UPMC/Hillman Cancer Center. I need someone to talk to that is going thru this. All family and friends smpathize offer help but they dont understand-I am tired of questions and the "im sorries"    Just need to someone in the same boat–I dont think my husband has a lot of time and i feel helpless………Thanks to anyone who can espond.

                      • April 20, 2014 at 10:42 pm
                      Pam S.
                      Participant

                        My husband (60yrs) dx stage 4 end of Nov was in his small intestine, lung and brain. Have had 3 gamma knifes -last MRI -only 4 tumors left (out of 9) . Has 3 tumors removed from small intestine in Dec-took him a long to recover was going to go back to work Feb 3. Then he had multiple seizures on Jan 27–scared me to death-took few weeks to get over this too. So no work. In March SOB and 2 bronchoscopies. Tumor in RLL one bronchus cleared-the othe main bronchus tumor is very hard. Having 10 days lung radiation. Meanwhile found 1 vertebrea fractured and will do kyphoplasty to put cement in the spine- cancer not in spinal cord at this point. Also will need some radiation on the spine. Also found mets in 1 rib and possibly on the liver and adrenal gland. Will have pet scan on Thurs. Am scared to death–dont know what to do-he is having such a rough time with fatigue-no energy-forgeting things-no appetite-he just want it to end. I am afraid with all this radiation he will never feel good again. I almost forgot will have bracyy therapy for 3 wks for his lung..Anyone had similar experience ? any advice- we have great DRs at UPMC/Hillman Cancer Center. I need someone to talk to that is going thru this. All family and friends smpathize offer help but they dont understand-I am tired of questions and the "im sorries"    Just need to someone in the same boat–I dont think my husband has a lot of time and i feel helpless………Thanks to anyone who can espond.

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