PhyllisH
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PhyllisH

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      • February 17, 2016 at 8:27 pm
      PhyllisH
      Participant
        Hi Julie, Ive been having the exact same problems. I was on high dose Ippilumimab and devolped hypophysitis and hypothyriodism. It is permant and Ive been on replacement medication for nearly 2 years. I still get terrible headaches, severe fatugue and leg and joint pains. I feel like Im going to pass out sometimes when standing and have a lot of muscle weakness. The Dr.s think its weird too and dont know whats wrong with me or what to do. Are you still having these issues or did you get on other treatments? I’m finding it very hard to continue trying to go back to a “normal” life.
        • February 17, 2016 at 8:27 pm
        PhyllisH
        Participant
          Hi Julie, Ive been having the exact same problems. I was on high dose Ippilumimab and devolped hypophysitis and hypothyriodism. It is permant and Ive been on replacement medication for nearly 2 years. I still get terrible headaches, severe fatugue and leg and joint pains. I feel like Im going to pass out sometimes when standing and have a lot of muscle weakness. The Dr.s think its weird too and dont know whats wrong with me or what to do. Are you still having these issues or did you get on other treatments? I’m finding it very hard to continue trying to go back to a “normal” life.
          • February 17, 2016 at 8:27 pm
          PhyllisH
          Participant
            Hi Julie, Ive been having the exact same problems. I was on high dose Ippilumimab and devolped hypophysitis and hypothyriodism. It is permant and Ive been on replacement medication for nearly 2 years. I still get terrible headaches, severe fatugue and leg and joint pains. I feel like Im going to pass out sometimes when standing and have a lot of muscle weakness. The Dr.s think its weird too and dont know whats wrong with me or what to do. Are you still having these issues or did you get on other treatments? I’m finding it very hard to continue trying to go back to a “normal” life.
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