pnwander27
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

pnwander27

Forum Replies Created

Viewing 0 reply threads
  • Replies
      • September 4, 2018 at 1:19 am
      pnwander27
      Participant

        Hi MMH,

        I can't help answer some of the specific quesitons you have, however I just contacted UCSF about sending my pathology slides down for a second opinion.

        I had a punch biopsy done which confirmed a junctional spitz nevus, however in a few days I'm going in to have a WLE done to remove more tissue as this type of nevus is commonly misdiagnosed. I'm from Canada and am hoping I will be able to send my pathology slides down for a second review. Our health care system is a little different up here.

        Since you are from the States it would probably be an easy process for you. I would definitely recommend doing so for peace of mind and just a second opinion altogether.

        Hoping someone else can maybe help answer those specific questions.

        Keep us posted!

        • September 8, 2018 at 3:27 pm
        pnwander27
        Participant

          Thank you for the knowledge and insight Kelly, I think it's super important to be educated about this. Glad you were able to seek the best care you for your son. Hope you both are doing well and sending love!

          • September 8, 2018 at 3:24 pm
          pnwander27
          Participant

            Thank you so much. Sorry to hear you've been dealing with so much at once! Thank you for the advice and knowledge. Will wait for the WLE biopsy results and go from there, just had that done yesterday. Hope you're hanging in there. 

            • September 8, 2018 at 3:22 pm
            pnwander27
            Participant

              Yes, thank you. I've reached out to them and inquired with my derm about obtaining slides for a second opinion. Had my WLE done yesterday so will wait for results on that before moving forward. Thank you for the advice. 

              • September 3, 2018 at 11:25 pm
              pnwander27
              Participant

                Hi Kelly,

                Thank you for your reply! I'm happy to hear your son has an excellent prognosis and that you were able to catch it. I've done some research on Spitz nevus and it's scary that they can so often go undiagnosed. I'm hoping my WLE biopsy will give me more information after this Friday. If you dont mind me asking, what type of biopsy did your son originally have and did it come back as a normal benign Spitz nevus at first? 

                I'm in BC, Canada and am unsure of where to look for melanoma specialists. Our healthcare system is a little different, but I will try getting my pathology slides sent down to a specialist in the States. I'm really new to all of this. If anyone in Canada can recommend a melanoma specialist, or on how to obtain my pathology slides and have them sent, I would so appreciate it!

                Thanks again for your advice and sending you love,

                pnwander27 🙂

                • September 3, 2018 at 10:55 pm
                pnwander27
                Participant

                  Hi Mike!

                  No I'm a new account, I guess I could have posted from my username pnwander27. Wonder if I can change the post name to avoid confusion. Thanks for the clarification though. 🙂

              Viewing 0 reply threads
              About the MRF Patient Forum

              The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

              The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

              Popular Topics