rjanders

This is my first post. I was going for my third ipi/nivo when we discovered I had ipi induced colitis. I am on prednesone which seems to be working great. The two infusions with ipi/nivo left me fatigued, some intermittent diaherra, no nausea, slight skin rash and some mangeable itching. I was diagnosed in April 2013 with a lesion on my righ forearm. We had surgery and biopsies of the right axilla. We were told i was cancer free. One year later I had two infected nodes n the right elbow. They were surgically removed along with 22 nodes in the axilla, as a precaution. Nine months later three more infected nodes were found under the right bicep. We went into the Talimogene laherparepvec clinical trial where the injections were placed directly into the tumors. This seemed not to have any short-term effect. Those were then surgically removed. We had scans three months later that showed no tumors. The next three month scan showed two new infected nodes in the right axilla, tumors in the right upper lung and one tumor at the base of the spine, which also cracked the sacrum. I had radiation on the tumor at the base of the spine to decrease the size and get relief there. That really worked. We then began the ipi/nivo infusions right after the five days of radiation. Right now, I am feeling very good. Just waiting to see what the next steps are. We go for our next appointment in a week. As a side note, I had a very large lump in the one node in my arm pit. It started to decrease after the first ipi/nivo infusion and is now non-existent. Very curious if this is a good sign or if the node burst and is no longer there. Our next appointment is next week and scans two weeks after that. I am continuing on the prednisone for a one month taper. Now in the second week of that.

This is my first post. I was going for my third ipi/nivo when we discovered I had ipi induced colitis. I am on prednesone which seems to be working great. The two infusions with ipi/nivo left me fatigued, some intermittent diaherra, no nausea, slight skin rash and some mangeable itching. I was diagnosed in April 2013 with a lesion on my righ forearm. We had surgery and biopsies of the right axilla. We were told i was cancer free. One year later I had two infected nodes n the right elbow. They were surgically removed along with 22 nodes in the axilla, as a precaution. Nine months later three more infected nodes were found under the right bicep. We went into the Talimogene laherparepvec clinical trial where the injections were placed directly into the tumors. This seemed not to have any short-term effect. Those were then surgically removed. We had scans three months later that showed no tumors. The next three month scan showed two new infected nodes in the right axilla, tumors in the right upper lung and one tumor at the base of the spine, which also cracked the sacrum. I had radiation on the tumor at the base of the spine to decrease the size and get relief there. That really worked. We then began the ipi/nivo infusions right after the five days of radiation. Right now, I am feeling very good. Just waiting to see what the next steps are. We go for our next appointment in a week. As a side note, I had a very large lump in the one node in my arm pit. It started to decrease after the first ipi/nivo infusion and is now non-existent. Very curious if this is a good sign or if the node burst and is no longer there. Our next appointment is next week and scans two weeks after that. I am continuing on the prednisone for a one month taper. Now in the second week of that.

This is my first post. I was going for my third ipi/nivo when we discovered I had ipi induced colitis. I am on prednesone which seems to be working great. The two infusions with ipi/nivo left me fatigued, some intermittent diaherra, no nausea, slight skin rash and some mangeable itching. I was diagnosed in April 2013 with a lesion on my righ forearm. We had surgery and biopsies of the right axilla. We were told i was cancer free. One year later I had two infected nodes n the right elbow. They were surgically removed along with 22 nodes in the axilla, as a precaution. Nine months later three more infected nodes were found under the right bicep. We went into the Talimogene laherparepvec clinical trial where the injections were placed directly into the tumors. This seemed not to have any short-term effect. Those were then surgically removed. We had scans three months later that showed no tumors. The next three month scan showed two new infected nodes in the right axilla, tumors in the right upper lung and one tumor at the base of the spine, which also cracked the sacrum. I had radiation on the tumor at the base of the spine to decrease the size and get relief there. That really worked. We then began the ipi/nivo infusions right after the five days of radiation. Right now, I am feeling very good. Just waiting to see what the next steps are. We go for our next appointment in a week. As a side note, I had a very large lump in the one node in my arm pit. It started to decrease after the first ipi/nivo infusion and is now non-existent. Very curious if this is a good sign or if the node burst and is no longer there. Our next appointment is next week and scans two weeks after that. I am continuing on the prednisone for a one month taper. Now in the second week of that.