robbier

I have what I call the cancer doctor, a dermatologist, Can't tell you if there is such a thing here in the state of alabama as a Melanoma specialist.  Like most of you out there, I don't like what I call the waiting game.  That doesn't mean I still don't believe in God, and His son Jesus.  We as individuals have to make sound deciisons on what to do when the time is correct for us.  I do not want to offend anyone with what I believe in, that doesn't mean I don't do my research and think, and pray about the sitiuation before making a decision.  At this time that is waht I am doing, praying and doing research before making any decision I need to make.

I look at it this way, I do the best I kow how to stay positive, and that one is a easy thing to do regardless of what one believes and does not believe.  For me, staying positive, pryaing and researching is what I do before making decisions.  When my cancer doctor, and I have a new one, told me he would recommend a certain drug for his data research, I personally went no way.  I am not a human pig just so he can have his research.  That is where I am coming from.  I don't think anyone would do that.

Robbie

I have what I call the cancer doctor, a dermatologist, Can't tell you if there is such a thing here in the state of alabama as a Melanoma specialist.  Like most of you out there, I don't like what I call the waiting game.  That doesn't mean I still don't believe in God, and His son Jesus.  We as individuals have to make sound deciisons on what to do when the time is correct for us.  I do not want to offend anyone with what I believe in, that doesn't mean I don't do my research and think, and pray about the sitiuation before making a decision.  At this time that is waht I am doing, praying and doing research before making any decision I need to make.

I look at it this way, I do the best I kow how to stay positive, and that one is a easy thing to do regardless of what one believes and does not believe.  For me, staying positive, pryaing and researching is what I do before making decisions.  When my cancer doctor, and I have a new one, told me he would recommend a certain drug for his data research, I personally went no way.  I am not a human pig just so he can have his research.  That is where I am coming from.  I don't think anyone would do that.

Robbie

I have what I call the cancer doctor, a dermatologist, Can't tell you if there is such a thing here in the state of alabama as a Melanoma specialist.  Like most of you out there, I don't like what I call the waiting game.  That doesn't mean I still don't believe in God, and His son Jesus.  We as individuals have to make sound deciisons on what to do when the time is correct for us.  I do not want to offend anyone with what I believe in, that doesn't mean I don't do my research and think, and pray about the sitiuation before making a decision.  At this time that is waht I am doing, praying and doing research before making any decision I need to make.

I look at it this way, I do the best I kow how to stay positive, and that one is a easy thing to do regardless of what one believes and does not believe.  For me, staying positive, pryaing and researching is what I do before making decisions.  When my cancer doctor, and I have a new one, told me he would recommend a certain drug for his data research, I personally went no way.  I am not a human pig just so he can have his research.  That is where I am coming from.  I don't think anyone would do that.

Robbie

Joe, I am sorry it took me so long to answer, I have had problems with this site, logging on.  today I reset my password and hopefully that will fix the problem. I had a PET scan back in March of 2014 that showed three hots spots.  That sent me in for a biospy april 14, a right lung biospy april 23, 2014.  Then after I recouped from surgery, was sent to Md anderson May 27th.  At that time I was told Stage 4 M1B Melanoma, the Doctor out there did a ct scan,( the Doctor out at MD anderson only gave me 6 months to live, but I am believing for a miracle at this point in my life) which showed either a mass and lymph  node near my uretha.  He wanted to do the biospy out there, but said I could do the biospy at home.  I chose to come home.  I was tired and wore out due to the fact the hotel room bed felt like I was sleeping on a rocks. (My sister went with me).

Came home and June 20th had that biospy, it was a lymphnode near my urethea.  My first PET scan after all of the surgiers, was on July 23rd, 2014.  According to this one, it showed  a abnormal place in the left public area, and the right femoral.  I am waiting for Doctors office to call me to schedule a bone scan.  I have called at least three times since my doctor wanted me to have this test.  He said we would procede from here.

At this point in time, I am tired of waiting on docors .

Robbie

Joe, I am sorry it took me so long to answer, I have had problems with this site, logging on.  today I reset my password and hopefully that will fix the problem. I had a PET scan back in March of 2014 that showed three hots spots.  That sent me in for a biospy april 14, a right lung biospy april 23, 2014.  Then after I recouped from surgery, was sent to Md anderson May 27th.  At that time I was told Stage 4 M1B Melanoma, the Doctor out there did a ct scan,( the Doctor out at MD anderson only gave me 6 months to live, but I am believing for a miracle at this point in my life) which showed either a mass and lymph  node near my uretha.  He wanted to do the biospy out there, but said I could do the biospy at home.  I chose to come home.  I was tired and wore out due to the fact the hotel room bed felt like I was sleeping on a rocks. (My sister went with me).

Came home and June 20th had that biospy, it was a lymphnode near my urethea.  My first PET scan after all of the surgiers, was on July 23rd, 2014.  According to this one, it showed  a abnormal place in the left public area, and the right femoral.  I am waiting for Doctors office to call me to schedule a bone scan.  I have called at least three times since my doctor wanted me to have this test.  He said we would procede from here.

At this point in time, I am tired of waiting on docors .

Robbie

Joe, I am sorry it took me so long to answer, I have had problems with this site, logging on.  today I reset my password and hopefully that will fix the problem. I had a PET scan back in March of 2014 that showed three hots spots.  That sent me in for a biospy april 14, a right lung biospy april 23, 2014.  Then after I recouped from surgery, was sent to Md anderson May 27th.  At that time I was told Stage 4 M1B Melanoma, the Doctor out there did a ct scan,( the Doctor out at MD anderson only gave me 6 months to live, but I am believing for a miracle at this point in my life) which showed either a mass and lymph  node near my uretha.  He wanted to do the biospy out there, but said I could do the biospy at home.  I chose to come home.  I was tired and wore out due to the fact the hotel room bed felt like I was sleeping on a rocks. (My sister went with me).

Came home and June 20th had that biospy, it was a lymphnode near my urethea.  My first PET scan after all of the surgiers, was on July 23rd, 2014.  According to this one, it showed  a abnormal place in the left public area, and the right femoral.  I am waiting for Doctors office to call me to schedule a bone scan.  I have called at least three times since my doctor wanted me to have this test.  He said we would procede from here.

At this point in time, I am tired of waiting on docors .

Robbie

I was diagnosis with Stage 3 B Melanoma August 2011, and have been in remission ever since according to test,until this last test of march 2014, showed what the Dr. is calling hot spots. The Doctor still doesn't know what these spots are, or if they are anything. That's why at this point in time, we are doing more tests, and going in for a surgeon to do that spot on the right side.  Can't say, because I don't know at this point in time, what I am looking at..  That is what I know. 

robbie

I was diagnosis with Stage 3 B Melanoma August 2011, and have been in remission ever since according to test,until this last test of march 2014, showed what the Dr. is calling hot spots. The Doctor still doesn't know what these spots are, or if they are anything. That's why at this point in time, we are doing more tests, and going in for a surgeon to do that spot on the right side.  Can't say, because I don't know at this point in time, what I am looking at..  That is what I know. 

robbie

I was diagnosis with Stage 3 B Melanoma August 2011, and have been in remission ever since according to test,until this last test of march 2014, showed what the Dr. is calling hot spots. The Doctor still doesn't know what these spots are, or if they are anything. That's why at this point in time, we are doing more tests, and going in for a surgeon to do that spot on the right side.  Can't say, because I don't know at this point in time, what I am looking at..  That is what I know. 

robbie

My Dr recommendated something that he found they where doing over in a European study.  Which was to interferon for about 6 to 8 weeks, then a mantaince dose one w week for the next 5 years.  I had a hard time with the toughts off a shot a week under the skin for a period of 5 years.  That's one of my reasons for looking at other options.  Then this week when I went back he mentions interferon being given in the weins for a period of 8 weeks, then 3 times a week after that for a period of one year.  all of which just makes my head swim.  Still having difficultly of the thoughts of a single mole being removed from my back being melanoma when there is no one in my family with melanoma.  I know my families history and there is not a single count of menalona anywhere to my knowledge.     Then to find out there is no support groups to go to in or around the area I live has been a eye opener. 

Thanks for your input, it is diffently greatly appreciated.

Robbie

My Dr recommendated something that he found they where doing over in a European study.  Which was to interferon for about 6 to 8 weeks, then a mantaince dose one w week for the next 5 years.  I had a hard time with the toughts off a shot a week under the skin for a period of 5 years.  That's one of my reasons for looking at other options.  Then this week when I went back he mentions interferon being given in the weins for a period of 8 weeks, then 3 times a week after that for a period of one year.  all of which just makes my head swim.  Still having difficultly of the thoughts of a single mole being removed from my back being melanoma when there is no one in my family with melanoma.  I know my families history and there is not a single count of menalona anywhere to my knowledge.     Then to find out there is no support groups to go to in or around the area I live has been a eye opener. 

Thanks for your input, it is diffently greatly appreciated.

Robbie

My Dr recommendated something that he found they where doing over in a European study.  Which was to interferon for about 6 to 8 weeks, then a mantaince dose one w week for the next 5 years.  I had a hard time with the toughts off a shot a week under the skin for a period of 5 years.  That's one of my reasons for looking at other options.  Then this week when I went back he mentions interferon being given in the weins for a period of 8 weeks, then 3 times a week after that for a period of one year.  all of which just makes my head swim.  Still having difficultly of the thoughts of a single mole being removed from my back being melanoma when there is no one in my family with melanoma.  I know my families history and there is not a single count of menalona anywhere to my knowledge.     Then to find out there is no support groups to go to in or around the area I live has been a eye opener. 

Thanks for your input, it is diffently greatly appreciated.

Robbie

Thank you for replying.  When I ask the Dr concerning radatin treatment back on Oct 25th, he said no radation treatment.  His three recommendations was interferon, clinicla trail or do nothing and let him follow me and send me for PET/CT cans every 3 to 4 months.  One of the mail reason I am being sent for a second opinion to UAB is because for some unknown reason there is not alot of research done in this area of the state where I live. 

Thank you for replying.  When I ask the Dr concerning radatin treatment back on Oct 25th, he said no radation treatment.  His three recommendations was interferon, clinicla trail or do nothing and let him follow me and send me for PET/CT cans every 3 to 4 months.  One of the mail reason I am being sent for a second opinion to UAB is because for some unknown reason there is not alot of research done in this area of the state where I live. 

Thank you for replying.  When I ask the Dr concerning radatin treatment back on Oct 25th, he said no radation treatment.  His three recommendations was interferon, clinicla trail or do nothing and let him follow me and send me for PET/CT cans every 3 to 4 months.  One of the mail reason I am being sent for a second opinion to UAB is because for some unknown reason there is not alot of research done in this area of the state where I live.