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Rydell
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Rydell

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      • April 13, 2011 at 6:28 pm
      Rydell
      Participant

        I saw this on AIM at Melanoma. Yervoy reimbursements – 800-861-0048, Mon-Fri. 8am-8pm ET

        • April 13, 2011 at 6:28 pm
        Rydell
        Participant

          I saw this on AIM at Melanoma. Yervoy reimbursements – 800-861-0048, Mon-Fri. 8am-8pm ET

          • April 4, 2011 at 1:43 am
          Rydell
          Participant

            Hi Natalie,

            Glad to hear you are NED. Thank you for reaching out.

            I was diagnosed with Stage IV MM in January 2011, after a double craniotomy. I received 4 CyberKnife treatments for a third brain met. I have about six other lesions throughout my body. I just completed six weeks of Temodar and will have a PET scan this week. I also tested positive for the B-RAF mutation. Not sure what the next step will be, it all seems very overwhelming.

            Please keep us updated on your status. You've given me some more hope 🙂

            Thanks,

            Amanda

            • April 4, 2011 at 1:43 am
            Rydell
            Participant

              Hi Natalie,

              Glad to hear you are NED. Thank you for reaching out.

              I was diagnosed with Stage IV MM in January 2011, after a double craniotomy. I received 4 CyberKnife treatments for a third brain met. I have about six other lesions throughout my body. I just completed six weeks of Temodar and will have a PET scan this week. I also tested positive for the B-RAF mutation. Not sure what the next step will be, it all seems very overwhelming.

              Please keep us updated on your status. You've given me some more hope 🙂

              Thanks,

              Amanda

              • March 28, 2011 at 3:35 pm
              Rydell
              Participant
                I don’t have any helpful tips, sorry. I just hope you feel better soon and someone here can help! Keep us updated with your progress!
                Keep smiling
                • March 28, 2011 at 3:35 pm
                Rydell
                Participant
                  I don’t have any helpful tips, sorry. I just hope you feel better soon and someone here can help! Keep us updated with your progress!
                  Keep smiling
                  • March 18, 2011 at 11:24 pm
                  Rydell
                  Participant

                    Sorry to hear about the side effects. Good luck with your appt! Could you explain the MEK part of the combo? I'm still trying to research things! Stay strong!!

                    Amanda

                    • March 18, 2011 at 11:24 pm
                    Rydell
                    Participant

                      Sorry to hear about the side effects. Good luck with your appt! Could you explain the MEK part of the combo? I'm still trying to research things! Stay strong!!

                      Amanda

                      • March 17, 2011 at 10:23 pm
                      Rydell
                      Participant

                        Good luck to your father! Please keep us posted on how he is doing on this treatment! Sending positive thoughts your way!!

                        Amanda (Stage 4)

                        • March 17, 2011 at 10:23 pm
                        Rydell
                        Participant

                          Good luck to your father! Please keep us posted on how he is doing on this treatment! Sending positive thoughts your way!!

                          Amanda (Stage 4)

                          • March 17, 2011 at 2:57 am
                          Rydell
                          Participant

                            That is such wonderful news, thank you for sharing!!

                            Amanda (Stage 4)

                            • March 17, 2011 at 2:57 am
                            Rydell
                            Participant

                              That is such wonderful news, thank you for sharing!!

                              Amanda (Stage 4)

                              • March 17, 2011 at 1:27 am
                              Rydell
                              Participant

                                Dr. Carvajal is my doctor! Thank you for posting that article! Good luck to you and your husband!!

                                • April 10, 2011 at 12:35 am
                                Rydell
                                Participant

                                  Hi Natalie,

                                  I will get my results on Wednesday. I took 150mg everyday for six weeks. Fatigue, nausea, and hair loss were the main side effects. First three weeks weren't bad, then the side effects started…some days were worse than others, I just slept a lot. CyberKnife doesn't use the metal halo. You should definitely be tested for the B-RAF mutation.

                                  Email me anytime you want to talk, yganra@gmail.com. But definitely keep us updated on your status. Good luck with everything!!
                                   

                                  Amanda

                                  • April 10, 2011 at 12:35 am
                                  Rydell
                                  Participant

                                    Hi Natalie,

                                    I will get my results on Wednesday. I took 150mg everyday for six weeks. Fatigue, nausea, and hair loss were the main side effects. First three weeks weren't bad, then the side effects started…some days were worse than others, I just slept a lot. CyberKnife doesn't use the metal halo. You should definitely be tested for the B-RAF mutation.

                                    Email me anytime you want to talk, yganra@gmail.com. But definitely keep us updated on your status. Good luck with everything!!
                                     

                                    Amanda

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