MRF-Logo2019-Horizontal-RGB
salliemae
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

salliemae

Forum Replies Created

Viewing 5 reply threads
  • Replies
      • June 24, 2011 at 2:25 pm
      salliemae
      Participant

        Thanks, everyone.  Much valuable information and it helps us all evaluate chemo and the other instant options.  FIngers crossed that chemo will open up some other trials and maybe Yervoy.

        – salliemae

        • June 24, 2011 at 2:25 pm
        salliemae
        Participant

          Thanks, everyone.  Much valuable information and it helps us all evaluate chemo and the other instant options.  FIngers crossed that chemo will open up some other trials and maybe Yervoy.

          – salliemae

          • June 23, 2011 at 2:39 pm
          salliemae
          Participant

            Thank you so much for all the thoughtful replies.  We just received the news that my father-in-law is not BRAF positive. 

            What now?  He is experiencing some fluid retention.  He doesn't have a whole lot of time.  he has been offered Temodar chemo and I think wants to try it.  do y'all have any thoughts on that?

            Do they test for other genetic mutations when they test for BRAF?  Someone mentioned MEK.

            This has all happened so fast and there's been no opportunity to pursue ANY kind of defense. 

            I welcome any thoughts, and thanks again.

            • June 23, 2011 at 2:39 pm
            salliemae
            Participant

              Thank you so much for all the thoughtful replies.  We just received the news that my father-in-law is not BRAF positive. 

              What now?  He is experiencing some fluid retention.  He doesn't have a whole lot of time.  he has been offered Temodar chemo and I think wants to try it.  do y'all have any thoughts on that?

              Do they test for other genetic mutations when they test for BRAF?  Someone mentioned MEK.

              This has all happened so fast and there's been no opportunity to pursue ANY kind of defense. 

              I welcome any thoughts, and thanks again.

              • June 23, 2011 at 2:39 pm
              salliemae
              Participant

                Thank you so much for all the thoughtful replies.  We just received the news that my father-in-law is not BRAF positive. 

                What now?  He is experiencing some fluid retention.  He doesn't have a whole lot of time.  he has been offered Temodar chemo and I think wants to try it.  do y'all have any thoughts on that?

                Do they test for other genetic mutations when they test for BRAF?  Someone mentioned MEK.

                This has all happened so fast and there's been no opportunity to pursue ANY kind of defense. 

                I welcome any thoughts, and thanks again.

                • June 23, 2011 at 2:39 pm
                salliemae
                Participant

                  Thank you so much for all the thoughtful replies.  We just received the news that my father-in-law is not BRAF positive. 

                  What now?  He is experiencing some fluid retention.  He doesn't have a whole lot of time.  he has been offered Temodar chemo and I think wants to try it.  do y'all have any thoughts on that?

                  Do they test for other genetic mutations when they test for BRAF?  Someone mentioned MEK.

                  This has all happened so fast and there's been no opportunity to pursue ANY kind of defense. 

                  I welcome any thoughts, and thanks again.

              Viewing 5 reply threads
              About the MRF Patient Forum

              The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

              The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

              Popular Topics