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sami210
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sami210

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      • May 31, 2019 at 8:21 am
      sami210
      Participant
        Hi Tracyyy,

        I hope your Mother is doing well?. Melanoma is such a horrible disease. I hope it’s just inflammation but I don’t hold out much hope. I’ve been stable with no inflammation of over 2 years. I did initially have inflammation in my first scan which then settled back down but is it likely after 2 years stable it’s just inflammation?

        Thank you for your reply

        Sam x

        • May 31, 2019 at 8:18 am
        sami210
        Participant
          Hi, I’ve just finished my last Nivo treatment after being on it for 2 years the day before the scan was carried out.

          Thank you for your reply I really appreciate it x

          • May 24, 2017 at 3:24 pm
          sami210
          Participant

            Hi Celeste, 

            thank you so much for your response. Both of those posts especially the first one  have definitely given me some hope. My scan was 8 weeks after the first treatment. To be honest by Consultant did tell me not to expect much to have changed but I couldn't help myself I was praying for a miracle. He thinks I am responding due to my side effects. I would rather wait for positive scan results!!!

            I'm very happy you remain NED long may it continue and thanks again for your reply, 

            Sam xx

             

            • May 23, 2017 at 7:10 pm
            sami210
            Participant

              Hi Betsy, 

              thank you so much for the response. Yes the maintance drug is Nivolumab. Everyone is saying it's such good news it hasn't spread but I don't feel that way at all. After reading lots of stories on here i'm not hopeful it's going to work at all. 

              I'm very happy to hear it seems to be working for your husband I wish you and your husband all the best, 

               

              Sam xx

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