Sandi Conley
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Sandi Conley

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      • November 15, 2017 at 5:52 pm
      Sandi Conley
      Participant

        So happy for you both!  Where can I read your sister's story?  I am new here today.  Was in remission on Tafinlar and Mekinist, but now cancer has returned.  I'm pretty much lost.  Trying to find a clinical trial that would be good for me.

        • November 15, 2017 at 5:45 pm
        Sandi Conley
        Participant

          Not sure.  My instructions said to take regular medication with small sips of water.  They also prescribed Ativan for me to tak ahead of time.  Good luck to you!  Mine is scheduled for Nov 21.

          • November 16, 2017 at 1:02 am
          Sandi Conley
          Participant

            Thanks to all of you for responding, Bubbles, Celeste, and Barb.  Barb, your sister sure has been through a lot!  I am so happy for her and for you.

            my Dr is an oncologist, and has told me about a clinical trial offered at IU Simon Health, I guess I was in a daze, because I only remember it was Opdivo and somethin else.  I know I need a lot more information before I make a decision.  

            I have also heard of a treatment where they remove white cells from your tumor, do something to them and inject them back in.  Supposedly to train your own immune system to fight the cancer.  Have you all heard of this?

            we are considering Brown Cancer Center in Loiusville and MD Anderson for second opinions.  

            I will be looking over all the information you have sent and try to make heads or tails of all of it.

            thanks again for responding.  I'm sure I will have more questions.

            The MPIP page is wonderful!  I discovered it in 1997 with my first diagnosis.

            Sandi

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