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Sar4h
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Sar4h

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      • December 6, 2018 at 1:26 pm
      Sar4h
      Participant
        Hi Savy,

        So sorry to hear you are going through a terrible time at the moment.

        My partner has recently been diagnosed with stage 4 melanoma and his anxiety has been pretty bad. They have prescribed him Lorazepam which has helped. Not sure if this is something available in the US or not as we are in the UK but might be worth asking about.

        • December 17, 2018 at 4:49 pm
        Sar4h
        Participant
          Hi Edwin,
          Thank you for sharing the details of your journey. I’m so pleased to read that you are much better than at the beginning of your journey.
          I wasn’t aware that you could just have 50% yervoy so I will ask about that also.
          We will be thinking of you on the 27th December and sending you best wishes for the results of your PET scan.
          Thank you again for your advice.
          • December 17, 2018 at 11:28 am
          Sar4h
          Participant
            Oh Amanda, I am sorry to hear your story. How on earth did you cope.
            Im struggling with my little one at times and I’m just the caregiver. It’s so tough when they are so blissfully unaware.

            Thank you for the advice. We have an appointment with the oncologist on Wednesday so I will definitely discuss the radiotherapy and nivo only options with him.

            Thank you again and all the best with your treatment. Hope your little one is well too and has a lovely first Christmas.

            • December 17, 2018 at 11:23 am
            Sar4h
            Participant
              Hi Jennifer,
              Thank you so much for the positive feedback. Whilst I don’t wish this awful thing on anyone, it’s good to hear that people that have experienced side effects have gone on to be successful with other treatments. I think I need to do some reading into nivo only.
              • December 17, 2018 at 11:21 am
              Sar4h
              Participant
                Thank you for the response Edwin.
                Its good to hear that people have responded well on one treatment, fingers crossed he will follow that trait. Its just so scary to think that we may not have the dual treatment available that I’ve read so many good things about. I think I just feel in the dark again with it all.
                Sorry to hear you also experienced side effects, I do hope you are now doing a lot better.
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