@sce1
Forum Replies Created
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- April 4, 2016 at 5:30 pm
Hi.
I'm in the UK. My son, also 6, has just had a 'suspected' spitz naevus removed from his back. We are awaiting the biopsy results but the dermatologist here told me on the phone that 'this is not cancer' at worst it will be an atypical mole.
I, like you, am concerned about misdiagnosis. But I guess I'm posting here to you because it is different in the UK. Asking for second opinions, unless you pay a great el of money privately, is difficult. And to be fair I have no reason to question the doctor who trained 8 years and has been practising for 15. I suppose I too, if the outcome is that it's not melanoma wonder about a second opinion but I then think where does that end?
Sorry that this isn't helpful but ill be interested too in the responses you get.
I do hope your initial diagnosis is correct and wanted to let you know someone else is on the same position.
S x
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- April 4, 2016 at 5:30 pm
Hi.
I'm in the UK. My son, also 6, has just had a 'suspected' spitz naevus removed from his back. We are awaiting the biopsy results but the dermatologist here told me on the phone that 'this is not cancer' at worst it will be an atypical mole.
I, like you, am concerned about misdiagnosis. But I guess I'm posting here to you because it is different in the UK. Asking for second opinions, unless you pay a great el of money privately, is difficult. And to be fair I have no reason to question the doctor who trained 8 years and has been practising for 15. I suppose I too, if the outcome is that it's not melanoma wonder about a second opinion but I then think where does that end?
Sorry that this isn't helpful but ill be interested too in the responses you get.
I do hope your initial diagnosis is correct and wanted to let you know someone else is on the same position.
S x
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- April 4, 2016 at 5:30 pm
Hi.
I'm in the UK. My son, also 6, has just had a 'suspected' spitz naevus removed from his back. We are awaiting the biopsy results but the dermatologist here told me on the phone that 'this is not cancer' at worst it will be an atypical mole.
I, like you, am concerned about misdiagnosis. But I guess I'm posting here to you because it is different in the UK. Asking for second opinions, unless you pay a great el of money privately, is difficult. And to be fair I have no reason to question the doctor who trained 8 years and has been practising for 15. I suppose I too, if the outcome is that it's not melanoma wonder about a second opinion but I then think where does that end?
Sorry that this isn't helpful but ill be interested too in the responses you get.
I do hope your initial diagnosis is correct and wanted to let you know someone else is on the same position.
S x
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- April 3, 2016 at 8:28 pm
Hello
I do not have much experience of melanoma. My son who is 6 is currently undergoing some investigations. I wanted to post simply to say hang in there as you will find support and advice on this page. As no one has yet commented I wanted too just let you know that someone is here. It may be of no help but I didn't want you to feel alone like none of us are here. The other people on this forum will have detailed information for you but I wanted to say, be kind to yourself, you've had a terrible shock. Reading on here regularly there are so many new treatments in the past 5 years that your chances are better than ever. Also, I've seen the others say this before … do not look at survival stats etc … They are mostly out of date and rates are so much better I the last years.
Best wishes
S xxxx
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- April 3, 2016 at 8:28 pm
Hello
I do not have much experience of melanoma. My son who is 6 is currently undergoing some investigations. I wanted to post simply to say hang in there as you will find support and advice on this page. As no one has yet commented I wanted too just let you know that someone is here. It may be of no help but I didn't want you to feel alone like none of us are here. The other people on this forum will have detailed information for you but I wanted to say, be kind to yourself, you've had a terrible shock. Reading on here regularly there are so many new treatments in the past 5 years that your chances are better than ever. Also, I've seen the others say this before … do not look at survival stats etc … They are mostly out of date and rates are so much better I the last years.
Best wishes
S xxxx
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- April 3, 2016 at 8:28 pm
Hello
I do not have much experience of melanoma. My son who is 6 is currently undergoing some investigations. I wanted to post simply to say hang in there as you will find support and advice on this page. As no one has yet commented I wanted too just let you know that someone is here. It may be of no help but I didn't want you to feel alone like none of us are here. The other people on this forum will have detailed information for you but I wanted to say, be kind to yourself, you've had a terrible shock. Reading on here regularly there are so many new treatments in the past 5 years that your chances are better than ever. Also, I've seen the others say this before … do not look at survival stats etc … They are mostly out of date and rates are so much better I the last years.
Best wishes
S xxxx
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- March 22, 2016 at 8:51 pm
Hello
I think another lady just posted today who is 2 years NED ane was at an advanced stage. Not sure where you are in the world but in the UK there are several cancer charities and you can email them with questions. Also macmillan cancer research ahs a similar facility where you can email questions.
By the way I think you're incredibly brave, especially being able to openly acknowledge how scared you are … praying for you xxx
Best wishes
Shamaine xxx
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- March 22, 2016 at 8:51 pm
Hello
I think another lady just posted today who is 2 years NED ane was at an advanced stage. Not sure where you are in the world but in the UK there are several cancer charities and you can email them with questions. Also macmillan cancer research ahs a similar facility where you can email questions.
By the way I think you're incredibly brave, especially being able to openly acknowledge how scared you are … praying for you xxx
Best wishes
Shamaine xxx
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- March 22, 2016 at 8:51 pm
Hello
I think another lady just posted today who is 2 years NED ane was at an advanced stage. Not sure where you are in the world but in the UK there are several cancer charities and you can email them with questions. Also macmillan cancer research ahs a similar facility where you can email questions.
By the way I think you're incredibly brave, especially being able to openly acknowledge how scared you are … praying for you xxx
Best wishes
Shamaine xxx
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- March 22, 2016 at 8:12 pm
Hi Annie
My grandfather had skin cancer but we only found out after he died as he was very old and never went to the doctors. He had lung mets in the end.
I dont know if there is a way to post pictures on here?
In early November last year he was leaning over backwards (typical boy!) And I Noticed A Little Lump On His Tummy, I knew it was a hernia but it made me check him all over for other lumps and bumps. That's when I noticed this mole and I honestly couldn't remember seeing it before. At least not looking like it did. It had a pink 'halo' round it and the mole looked pinker than I remembered. I mentioned it to my husband and about 2 weeks later a little tiny 'blob' had developed at the top of the halo. So it was pinking, had a relatively normal looking mole in the middle but the halo around it was irregular and looked to be very gradually 'spreading' at one point at the top. The changes were miniscule and to someone other than a mum (sorry no sexism intended) were almost unnoticeable. Hence why my husband thought I had gone crazy.
I took him to gp about his possible hernia and mentioned the mole. It met 4/5 of the abcde criteria by this stage and so he reffered him straight away. The hernia would have to wait. My husband went away and when he returned he noticed the change in it. The halo had pinked further and seemed slightly more ragged at the edges.
Last week I nearly had heart failure because I stroked his face while he was asleep and his lymph gland was like a golf ball on his neck. He also had blood when he coughed. He has now had a chest x ray and we are awaiting the results. Though he then came down with a cold and the gland has gone down. I had a sneek peek at the chest x ray but it looked clear … I'm no expert of course so will wait to see what the doc says.
Are you in the US? The health system is so different there. YouInhavd to be referred to a derm so the chest x ray was reffered by gp rather than through the derm or oncologist. We haven't seen a cancer specialist as such but the peads dermatologist seems pretty on it. it's so difficult because you can spend your life worrying etc but mothers instinct is pretty much listened to here so I would go with what you think. You know your children best xxxx
The paed dermatologist told me that spitz nevus moles in her experience are never good and she has found that some of her adult patients had these in childhood that 'developed' into melanoma. SHe was always honest that the two are very difficult to tell apart.
Best wishes
Shamaine
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- March 22, 2016 at 8:12 pm
Hi Annie
My grandfather had skin cancer but we only found out after he died as he was very old and never went to the doctors. He had lung mets in the end.
I dont know if there is a way to post pictures on here?
In early November last year he was leaning over backwards (typical boy!) And I Noticed A Little Lump On His Tummy, I knew it was a hernia but it made me check him all over for other lumps and bumps. That's when I noticed this mole and I honestly couldn't remember seeing it before. At least not looking like it did. It had a pink 'halo' round it and the mole looked pinker than I remembered. I mentioned it to my husband and about 2 weeks later a little tiny 'blob' had developed at the top of the halo. So it was pinking, had a relatively normal looking mole in the middle but the halo around it was irregular and looked to be very gradually 'spreading' at one point at the top. The changes were miniscule and to someone other than a mum (sorry no sexism intended) were almost unnoticeable. Hence why my husband thought I had gone crazy.
I took him to gp about his possible hernia and mentioned the mole. It met 4/5 of the abcde criteria by this stage and so he reffered him straight away. The hernia would have to wait. My husband went away and when he returned he noticed the change in it. The halo had pinked further and seemed slightly more ragged at the edges.
Last week I nearly had heart failure because I stroked his face while he was asleep and his lymph gland was like a golf ball on his neck. He also had blood when he coughed. He has now had a chest x ray and we are awaiting the results. Though he then came down with a cold and the gland has gone down. I had a sneek peek at the chest x ray but it looked clear … I'm no expert of course so will wait to see what the doc says.
Are you in the US? The health system is so different there. YouInhavd to be referred to a derm so the chest x ray was reffered by gp rather than through the derm or oncologist. We haven't seen a cancer specialist as such but the peads dermatologist seems pretty on it. it's so difficult because you can spend your life worrying etc but mothers instinct is pretty much listened to here so I would go with what you think. You know your children best xxxx
The paed dermatologist told me that spitz nevus moles in her experience are never good and she has found that some of her adult patients had these in childhood that 'developed' into melanoma. SHe was always honest that the two are very difficult to tell apart.
Best wishes
Shamaine
-
- March 22, 2016 at 8:12 pm
Hi Annie
My grandfather had skin cancer but we only found out after he died as he was very old and never went to the doctors. He had lung mets in the end.
I dont know if there is a way to post pictures on here?
In early November last year he was leaning over backwards (typical boy!) And I Noticed A Little Lump On His Tummy, I knew it was a hernia but it made me check him all over for other lumps and bumps. That's when I noticed this mole and I honestly couldn't remember seeing it before. At least not looking like it did. It had a pink 'halo' round it and the mole looked pinker than I remembered. I mentioned it to my husband and about 2 weeks later a little tiny 'blob' had developed at the top of the halo. So it was pinking, had a relatively normal looking mole in the middle but the halo around it was irregular and looked to be very gradually 'spreading' at one point at the top. The changes were miniscule and to someone other than a mum (sorry no sexism intended) were almost unnoticeable. Hence why my husband thought I had gone crazy.
I took him to gp about his possible hernia and mentioned the mole. It met 4/5 of the abcde criteria by this stage and so he reffered him straight away. The hernia would have to wait. My husband went away and when he returned he noticed the change in it. The halo had pinked further and seemed slightly more ragged at the edges.
Last week I nearly had heart failure because I stroked his face while he was asleep and his lymph gland was like a golf ball on his neck. He also had blood when he coughed. He has now had a chest x ray and we are awaiting the results. Though he then came down with a cold and the gland has gone down. I had a sneek peek at the chest x ray but it looked clear … I'm no expert of course so will wait to see what the doc says.
Are you in the US? The health system is so different there. YouInhavd to be referred to a derm so the chest x ray was reffered by gp rather than through the derm or oncologist. We haven't seen a cancer specialist as such but the peads dermatologist seems pretty on it. it's so difficult because you can spend your life worrying etc but mothers instinct is pretty much listened to here so I would go with what you think. You know your children best xxxx
The paed dermatologist told me that spitz nevus moles in her experience are never good and she has found that some of her adult patients had these in childhood that 'developed' into melanoma. SHe was always honest that the two are very difficult to tell apart.
Best wishes
Shamaine
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