MRF-Logo2019-Horizontal-RGB
Schiavonne
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Schiavonne

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • August 26, 2018 at 12:46 pm
      Schiavonne
      Participant

        Thank you for your thoughts. It gives me hope that he may stillhave success with the ipi-nivo even though he failed Keytruda and ipi alone. I hope your success continues!

        • August 24, 2018 at 9:53 am
        Schiavonne
        Participant

          Thank you – great to hear the treatment has worked for you! It is unfortunate about the side effects but it sounds like you're much better now. I'll make sure the doctors watch liver especially as Dad's had trouble with that before

          • August 24, 2018 at 9:52 am
          Schiavonne
          Participant

            Thank you for your advice – I hope the treatment works as well for my Dad! Trying to stay positive is very important. Fingers crossed 

            • August 24, 2018 at 9:50 am
            Schiavonne
            Participant

              Thank you so much for your comments. We're in Australia, so there are meant to be good melanoma specialists here (for unfortunate reasons!) Dad's team is a specialist melanoma team, although he has switched doctors as well. That's very helpful re the inflammation and watching out for the heart, I will bring that up as well

              • August 24, 2018 at 9:49 am
              Schiavonne
              Participant

                Thank you so much for this. I've checked the links you sent and they are very helpful, especially the ones about radiation and immunotherapy. I might try to show them to the doctors! 

                • August 24, 2018 at 9:47 am
                Schiavonne
                Participant

                  Thank you so much for your response – I hope my Dad's side effects are also easy breezy (though severe vomiting doesn't sound good!) 

                  • August 24, 2018 at 9:46 am
                  Schiavonne
                  Participant

                    Thank you for the advice on the side effects. I believe he's been checked for gene mutations and he's not BRAF Positive unfortunately, as my understanding is there's be more options then. 

                Viewing 1 reply thread
                About the MRF Patient Forum

                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                Popular Topics