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      Participant

        My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

        Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

        We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

        I wish you the best in your decision making.

         

         

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        Participant

          My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

          Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

          We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

          I wish you the best in your decision making.

           

           

          secondhalf
          Participant

            My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

            Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

            We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

            I wish you the best in your decision making.

             

             

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            Participant

              At the beginning of my melanoma journey my melanoma mutation understanding was BRAF + or BRAF -.  Other mutations were not part of my understanding until I had a recurrence  and used what I had learned from this board to insist on additional testing. 

              Thanks for the additional insight from your doctor.  

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              Participant

                At the beginning of my melanoma journey my melanoma mutation understanding was BRAF + or BRAF -.  Other mutations were not part of my understanding until I had a recurrence  and used what I had learned from this board to insist on additional testing. 

                Thanks for the additional insight from your doctor.  

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                Participant

                  At the beginning of my melanoma journey my melanoma mutation understanding was BRAF + or BRAF -.  Other mutations were not part of my understanding until I had a recurrence  and used what I had learned from this board to insist on additional testing. 

                  Thanks for the additional insight from your doctor.  

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                  Participant

                    Thanks for the lead.  I am interested in having a conversation with my doctor  at my next visit.  Now that I know that wild types have variable, I can ask better questions.

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                    Participant

                      Thanks for the lead.  I am interested in having a conversation with my doctor  at my next visit.  Now that I know that wild types have variable, I can ask better questions.

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                      Participant

                        Thanks for the lead.  I am interested in having a conversation with my doctor  at my next visit.  Now that I know that wild types have variable, I can ask better questions.

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                        Participant

                          Thanks for the lead.  I will check out this trial.

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                          Participant

                            Thanks for the lead.  I will check out this trial.

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                            Participant

                              Thanks for the lead.  I will check out this trial.

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                              Participant

                                It does help to hear that others are feeling great while living with advanced melanoma .

                                Did you start MK-3475 after becoming Stage 4?  

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                                Participant

                                  It does help to hear that others are feeling great while living with advanced melanoma .

                                  Did you start MK-3475 after becoming Stage 4?  

                                  secondhalf
                                  Participant

                                    It does help to hear that others are feeling great while living with advanced melanoma .

                                    Did you start MK-3475 after becoming Stage 4?  

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