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shanemcdonald99

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      shanemcdonald99
      Participant

        Thanks

         

        I understand the joke about the bones !  Mine showed up there first !

        I can tell how I am doing overall by how my back feels !   haha

         

        I am glad to hear it is helping you Artie and I am glad the Yervoy was good for you Ginger ! Great news from both of you !

         

        peace to you both

         

        shane

         

        shanemcdonald99
        Participant

          Thanks

           

          I understand the joke about the bones !  Mine showed up there first !

          I can tell how I am doing overall by how my back feels !   haha

           

          I am glad to hear it is helping you Artie and I am glad the Yervoy was good for you Ginger ! Great news from both of you !

           

          peace to you both

           

          shane

           

          shanemcdonald99
          Participant

            Thanks

             

            I understand the joke about the bones !  Mine showed up there first !

            I can tell how I am doing overall by how my back feels !   haha

             

            I am glad to hear it is helping you Artie and I am glad the Yervoy was good for you Ginger ! Great news from both of you !

             

            peace to you both

             

            shane

             

            shanemcdonald99
            Participant

              I have to disagree on the pain med ideas.

               

              I got knocked out and turned into a zombie by gabapentin and not the opioid based painkiller.

              I wont touch that crap again!  They gave me one of the newer gabapentin drugs. The warning labels list suicide as a side effect ! Agitation , in my opinion, would be more common with gabapentin than the opioid.   

              As far as cannabis oil goes.    I have some people pushing me to try it. They have friends that will gladly sell it to me for alot of money. They have no research or data to back up their claims about its successes. And I have to buy it illegally.  I dont think so.  Its all hearsay to me.

               I will stick with approved treatments with solid scientific research administered by an Oncologist. My oncologist works 16 hours a day and has done that for over 30 years. He is completely dedicated his life to cancer treatment. I will take my chances with him and not some marijuana dealer that sells cannabis too. Dont get me wrong, I am all for legalizing marijuana for both recreational and medicinal use. It has documented medical uses.       But for stage 4 melanoma, I have to work with an expert.

              These are just my pigheaded opinions. Just ignore them if they rub you the wrong way.

               

              sincerely,

              shane

               

               

              shanemcdonald99
              Participant

                I have to disagree on the pain med ideas.

                 

                I got knocked out and turned into a zombie by gabapentin and not the opioid based painkiller.

                I wont touch that crap again!  They gave me one of the newer gabapentin drugs. The warning labels list suicide as a side effect ! Agitation , in my opinion, would be more common with gabapentin than the opioid.   

                As far as cannabis oil goes.    I have some people pushing me to try it. They have friends that will gladly sell it to me for alot of money. They have no research or data to back up their claims about its successes. And I have to buy it illegally.  I dont think so.  Its all hearsay to me.

                 I will stick with approved treatments with solid scientific research administered by an Oncologist. My oncologist works 16 hours a day and has done that for over 30 years. He is completely dedicated his life to cancer treatment. I will take my chances with him and not some marijuana dealer that sells cannabis too. Dont get me wrong, I am all for legalizing marijuana for both recreational and medicinal use. It has documented medical uses.       But for stage 4 melanoma, I have to work with an expert.

                These are just my pigheaded opinions. Just ignore them if they rub you the wrong way.

                 

                sincerely,

                shane

                 

                 

                shanemcdonald99
                Participant

                  I have to disagree on the pain med ideas.

                   

                  I got knocked out and turned into a zombie by gabapentin and not the opioid based painkiller.

                  I wont touch that crap again!  They gave me one of the newer gabapentin drugs. The warning labels list suicide as a side effect ! Agitation , in my opinion, would be more common with gabapentin than the opioid.   

                  As far as cannabis oil goes.    I have some people pushing me to try it. They have friends that will gladly sell it to me for alot of money. They have no research or data to back up their claims about its successes. And I have to buy it illegally.  I dont think so.  Its all hearsay to me.

                   I will stick with approved treatments with solid scientific research administered by an Oncologist. My oncologist works 16 hours a day and has done that for over 30 years. He is completely dedicated his life to cancer treatment. I will take my chances with him and not some marijuana dealer that sells cannabis too. Dont get me wrong, I am all for legalizing marijuana for both recreational and medicinal use. It has documented medical uses.       But for stage 4 melanoma, I have to work with an expert.

                  These are just my pigheaded opinions. Just ignore them if they rub you the wrong way.

                   

                  sincerely,

                  shane

                   

                   

                  shanemcdonald99
                  Participant

                    I did ok with first 2 infusions. But after the 3rd infusion , I had to go to the emergency room and was hospitalized for 8 days due to severe side effects.

                    Pancreatitis was the main reaction and I also had moderate internal bleeding at 3 tumor sites .

                    It was a very painful experience and I was in serious condition for 3 days. I couldnt drink or eat by mouth and was unable to go  to the bathroom for several days.

                    I got home around a week ago and I am doing much better now. I will not be able to continue the Keytruda due to the pancreatitis.

                    Shane

                    shanemcdonald99
                    Participant

                      I did ok with first 2 infusions. But after the 3rd infusion , I had to go to the emergency room and was hospitalized for 8 days due to severe side effects.

                      Pancreatitis was the main reaction and I also had moderate internal bleeding at 3 tumor sites .

                      It was a very painful experience and I was in serious condition for 3 days. I couldnt drink or eat by mouth and was unable to go  to the bathroom for several days.

                      I got home around a week ago and I am doing much better now. I will not be able to continue the Keytruda due to the pancreatitis.

                      Shane

                      shanemcdonald99
                      Participant

                        I did ok with first 2 infusions. But after the 3rd infusion , I had to go to the emergency room and was hospitalized for 8 days due to severe side effects.

                        Pancreatitis was the main reaction and I also had moderate internal bleeding at 3 tumor sites .

                        It was a very painful experience and I was in serious condition for 3 days. I couldnt drink or eat by mouth and was unable to go  to the bathroom for several days.

                        I got home around a week ago and I am doing much better now. I will not be able to continue the Keytruda due to the pancreatitis.

                        Shane

                        shanemcdonald99
                        Participant

                          hi

                          Sorry to hear that. Hope next one will work for you !

                          What kind of symptoms do you get with the lung ?

                           

                          I get some chest pain but I cant tell where its coming from !

                           

                          Do you get any pain with your lung mets ?

                           

                          thanks

                           

                          Shane

                          shanemcdonald99
                          Participant

                            hi

                            Sorry to hear that. Hope next one will work for you !

                            What kind of symptoms do you get with the lung ?

                             

                            I get some chest pain but I cant tell where its coming from !

                             

                            Do you get any pain with your lung mets ?

                             

                            thanks

                             

                            Shane

                            shanemcdonald99
                            Participant

                              hi

                              Sorry to hear that. Hope next one will work for you !

                              What kind of symptoms do you get with the lung ?

                               

                              I get some chest pain but I cant tell where its coming from !

                               

                              Do you get any pain with your lung mets ?

                               

                              thanks

                               

                              Shane

                              shanemcdonald99
                              Participant

                                It means " too bad " for those who do not fit the criteria.

                                The object of this is to smear Bristol Meyers Yervoy and steal market share away in this billion dollar game.

                                 

                                Why else would there be a stipulation that you had to have a "failed response to Bristol Meyer's Yervoy" , other than to taint the perception of the Bristol Meyer product and give themselves an edge.

                                Quite frankly, it's disgusting. I can only get the treatment if I failed on a competitor's product ?  Outrageous.

                                They had to beat Bristol Meyer to the market because Bristol Meyer has a follow up treatment about to be approved also. Their follow up anti pd1 treatment has had fantastic results, especially when used after, or with Yervoy. 

                                Bristol Meyer forced Merck's hand.

                                Whoever gets to market first, gets a huge advantage in this high stakes game of cancer treatment.

                                 

                                shane

                                shanemcdonald99
                                Participant

                                  It means " too bad " for those who do not fit the criteria.

                                  The object of this is to smear Bristol Meyers Yervoy and steal market share away in this billion dollar game.

                                   

                                  Why else would there be a stipulation that you had to have a "failed response to Bristol Meyer's Yervoy" , other than to taint the perception of the Bristol Meyer product and give themselves an edge.

                                  Quite frankly, it's disgusting. I can only get the treatment if I failed on a competitor's product ?  Outrageous.

                                  They had to beat Bristol Meyer to the market because Bristol Meyer has a follow up treatment about to be approved also. Their follow up anti pd1 treatment has had fantastic results, especially when used after, or with Yervoy. 

                                  Bristol Meyer forced Merck's hand.

                                  Whoever gets to market first, gets a huge advantage in this high stakes game of cancer treatment.

                                   

                                  shane

                                  shanemcdonald99
                                  Participant

                                    It means " too bad " for those who do not fit the criteria.

                                    The object of this is to smear Bristol Meyers Yervoy and steal market share away in this billion dollar game.

                                     

                                    Why else would there be a stipulation that you had to have a "failed response to Bristol Meyer's Yervoy" , other than to taint the perception of the Bristol Meyer product and give themselves an edge.

                                    Quite frankly, it's disgusting. I can only get the treatment if I failed on a competitor's product ?  Outrageous.

                                    They had to beat Bristol Meyer to the market because Bristol Meyer has a follow up treatment about to be approved also. Their follow up anti pd1 treatment has had fantastic results, especially when used after, or with Yervoy. 

                                    Bristol Meyer forced Merck's hand.

                                    Whoever gets to market first, gets a huge advantage in this high stakes game of cancer treatment.

                                     

                                    shane

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