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Sherman

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      Sherman
      Participant

        I just wanted to reply so you know you are not alone. I am going through something very similar with my grandfather. He also had melanoma removed from his forehead but also on his back. That was 12 years ago! Fast forward to a week before xmas he was feeling very dizzy and had a headache in the back of his lower head. I also work in a hospital but in radiology. So I got him in for an MRI on xmas eve only to find a large tumor in his cerebellum. He was also on sterroids and ativan for sleep. But about a week ago after meeting with an oncologist who specialized in Melanoma he went in the same day as our oncology appointment to check in for brain surgery! This was very very scary with the added stress that he is 83. Thank god it all went well and the tumor was removed. Tomorrow he starts his 5 days of radiation to the site of where the tumor was. They said that if he has radiation where the tumor was it drops the chances of it coming back to 10%. But they also found multiple lung nodules on a CT when found out about the  brain tumor. So this week he also starts Yervoy and Temodar. After reading up on Yervoy I am very nervous. There are some pretty bad side effects. But I also know that the outcome could be very rewarding. Is your father seeing an oncologist that specialized in Melanoma? One thing I have learned from this site is that is very important. I did some major research to find a well known one here in LA. If you find out any further information on Yervoy pleas let us know. Good luck!!

        Sherman
        Participant

          I just wanted to reply so you know you are not alone. I am going through something very similar with my grandfather. He also had melanoma removed from his forehead but also on his back. That was 12 years ago! Fast forward to a week before xmas he was feeling very dizzy and had a headache in the back of his lower head. I also work in a hospital but in radiology. So I got him in for an MRI on xmas eve only to find a large tumor in his cerebellum. He was also on sterroids and ativan for sleep. But about a week ago after meeting with an oncologist who specialized in Melanoma he went in the same day as our oncology appointment to check in for brain surgery! This was very very scary with the added stress that he is 83. Thank god it all went well and the tumor was removed. Tomorrow he starts his 5 days of radiation to the site of where the tumor was. They said that if he has radiation where the tumor was it drops the chances of it coming back to 10%. But they also found multiple lung nodules on a CT when found out about the  brain tumor. So this week he also starts Yervoy and Temodar. After reading up on Yervoy I am very nervous. There are some pretty bad side effects. But I also know that the outcome could be very rewarding. Is your father seeing an oncologist that specialized in Melanoma? One thing I have learned from this site is that is very important. I did some major research to find a well known one here in LA. If you find out any further information on Yervoy pleas let us know. Good luck!!

          Sherman
          Participant

            I just wanted to reply so you know you are not alone. I am going through something very similar with my grandfather. He also had melanoma removed from his forehead but also on his back. That was 12 years ago! Fast forward to a week before xmas he was feeling very dizzy and had a headache in the back of his lower head. I also work in a hospital but in radiology. So I got him in for an MRI on xmas eve only to find a large tumor in his cerebellum. He was also on sterroids and ativan for sleep. But about a week ago after meeting with an oncologist who specialized in Melanoma he went in the same day as our oncology appointment to check in for brain surgery! This was very very scary with the added stress that he is 83. Thank god it all went well and the tumor was removed. Tomorrow he starts his 5 days of radiation to the site of where the tumor was. They said that if he has radiation where the tumor was it drops the chances of it coming back to 10%. But they also found multiple lung nodules on a CT when found out about the  brain tumor. So this week he also starts Yervoy and Temodar. After reading up on Yervoy I am very nervous. There are some pretty bad side effects. But I also know that the outcome could be very rewarding. Is your father seeing an oncologist that specialized in Melanoma? One thing I have learned from this site is that is very important. I did some major research to find a well known one here in LA. If you find out any further information on Yervoy pleas let us know. Good luck!!

            Sherman
            Participant

              Thank you everyone for your advice and kind words. It is so appreciated. He had his first treatment of Yervoy today and so far so good. 

               

              Sherman
              Participant

                Thank you everyone for your advice and kind words. It is so appreciated. He had his first treatment of Yervoy today and so far so good. 

                 

                Sherman
                Participant

                  Thank you everyone for your advice and kind words. It is so appreciated. He had his first treatment of Yervoy today and so far so good. 

                   

                  Sherman
                  Participant

                    Thank you all so much for your advice. We saw Dr. Hamid today and he said the tumor in the brain must come out. He spoke with Dr. Chirag Patel and Dr. Zach Barnoud both neurosurgeons. They wanted us to check into the ER at cedars right now to prep for surgery to remove the tumor tomorrow morning. This is obviously extremely overwhelming and a lot to process. We knew the tumor had to come out but wow this is fast. I haven't even had time to look up these Drs. Does this seem right? Has anyone else experienced this type of rush? 

                    Sherman
                    Participant

                      Thank you all so much for your advice. We saw Dr. Hamid today and he said the tumor in the brain must come out. He spoke with Dr. Chirag Patel and Dr. Zach Barnoud both neurosurgeons. They wanted us to check into the ER at cedars right now to prep for surgery to remove the tumor tomorrow morning. This is obviously extremely overwhelming and a lot to process. We knew the tumor had to come out but wow this is fast. I haven't even had time to look up these Drs. Does this seem right? Has anyone else experienced this type of rush? 

                      Sherman
                      Participant

                        Thank you all so much for your advice. We saw Dr. Hamid today and he said the tumor in the brain must come out. He spoke with Dr. Chirag Patel and Dr. Zach Barnoud both neurosurgeons. They wanted us to check into the ER at cedars right now to prep for surgery to remove the tumor tomorrow morning. This is obviously extremely overwhelming and a lot to process. We knew the tumor had to come out but wow this is fast. I haven't even had time to look up these Drs. Does this seem right? Has anyone else experienced this type of rush? 

                        Sherman
                        Participant

                          Good to know. I am really hoping to get into Dr. Ribas or O'Day for a second opinion.

                          Sherman
                          Participant

                            Good to know. I am really hoping to get into Dr. Ribas or O'Day for a second opinion.

                            Sherman
                            Participant

                              Good to know. I am really hoping to get into Dr. Ribas or O'Day for a second opinion.

                              Sherman
                              Participant

                                Thank you so much for your reply. All of this is so confusing and I feel like there isnt much time. The location of the brain tumor is in a very dangerous place and I was told I can not be on the steroids that I am taking for it for too long. I am happy to hear that you find Dr. Hamid competent.  It is a little unsettling to see those kind of reviews. I have been reading a lot about Dr. O'Day and Dr. Ribas. I will see about getting another appointment with them. Thanks again for your help

                                 

                                Sherman
                                Participant

                                  Thank you so much for your reply. All of this is so confusing and I feel like there isnt much time. The location of the brain tumor is in a very dangerous place and I was told I can not be on the steroids that I am taking for it for too long. I am happy to hear that you find Dr. Hamid competent.  It is a little unsettling to see those kind of reviews. I have been reading a lot about Dr. O'Day and Dr. Ribas. I will see about getting another appointment with them. Thanks again for your help

                                   

                                  Sherman
                                  Participant

                                    Thank you so much for your reply. All of this is so confusing and I feel like there isnt much time. The location of the brain tumor is in a very dangerous place and I was told I can not be on the steroids that I am taking for it for too long. I am happy to hear that you find Dr. Hamid competent.  It is a little unsettling to see those kind of reviews. I have been reading a lot about Dr. O'Day and Dr. Ribas. I will see about getting another appointment with them. Thanks again for your help

                                     

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