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- January 26, 2015 at 8:38 am
I just wanted to reply so you know you are not alone. I am going through something very similar with my grandfather. He also had melanoma removed from his forehead but also on his back. That was 12 years ago! Fast forward to a week before xmas he was feeling very dizzy and had a headache in the back of his lower head. I also work in a hospital but in radiology. So I got him in for an MRI on xmas eve only to find a large tumor in his cerebellum. He was also on sterroids and ativan for sleep. But about a week ago after meeting with an oncologist who specialized in Melanoma he went in the same day as our oncology appointment to check in for brain surgery! This was very very scary with the added stress that he is 83. Thank god it all went well and the tumor was removed. Tomorrow he starts his 5 days of radiation to the site of where the tumor was. They said that if he has radiation where the tumor was it drops the chances of it coming back to 10%. But they also found multiple lung nodules on a CT when found out about the brain tumor. So this week he also starts Yervoy and Temodar. After reading up on Yervoy I am very nervous. There are some pretty bad side effects. But I also know that the outcome could be very rewarding. Is your father seeing an oncologist that specialized in Melanoma? One thing I have learned from this site is that is very important. I did some major research to find a well known one here in LA. If you find out any further information on Yervoy pleas let us know. Good luck!!
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- January 26, 2015 at 8:38 am
I just wanted to reply so you know you are not alone. I am going through something very similar with my grandfather. He also had melanoma removed from his forehead but also on his back. That was 12 years ago! Fast forward to a week before xmas he was feeling very dizzy and had a headache in the back of his lower head. I also work in a hospital but in radiology. So I got him in for an MRI on xmas eve only to find a large tumor in his cerebellum. He was also on sterroids and ativan for sleep. But about a week ago after meeting with an oncologist who specialized in Melanoma he went in the same day as our oncology appointment to check in for brain surgery! This was very very scary with the added stress that he is 83. Thank god it all went well and the tumor was removed. Tomorrow he starts his 5 days of radiation to the site of where the tumor was. They said that if he has radiation where the tumor was it drops the chances of it coming back to 10%. But they also found multiple lung nodules on a CT when found out about the brain tumor. So this week he also starts Yervoy and Temodar. After reading up on Yervoy I am very nervous. There are some pretty bad side effects. But I also know that the outcome could be very rewarding. Is your father seeing an oncologist that specialized in Melanoma? One thing I have learned from this site is that is very important. I did some major research to find a well known one here in LA. If you find out any further information on Yervoy pleas let us know. Good luck!!
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- January 26, 2015 at 8:38 am
I just wanted to reply so you know you are not alone. I am going through something very similar with my grandfather. He also had melanoma removed from his forehead but also on his back. That was 12 years ago! Fast forward to a week before xmas he was feeling very dizzy and had a headache in the back of his lower head. I also work in a hospital but in radiology. So I got him in for an MRI on xmas eve only to find a large tumor in his cerebellum. He was also on sterroids and ativan for sleep. But about a week ago after meeting with an oncologist who specialized in Melanoma he went in the same day as our oncology appointment to check in for brain surgery! This was very very scary with the added stress that he is 83. Thank god it all went well and the tumor was removed. Tomorrow he starts his 5 days of radiation to the site of where the tumor was. They said that if he has radiation where the tumor was it drops the chances of it coming back to 10%. But they also found multiple lung nodules on a CT when found out about the brain tumor. So this week he also starts Yervoy and Temodar. After reading up on Yervoy I am very nervous. There are some pretty bad side effects. But I also know that the outcome could be very rewarding. Is your father seeing an oncologist that specialized in Melanoma? One thing I have learned from this site is that is very important. I did some major research to find a well known one here in LA. If you find out any further information on Yervoy pleas let us know. Good luck!!
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- January 7, 2015 at 2:33 am
Thank you all so much for your advice. We saw Dr. Hamid today and he said the tumor in the brain must come out. He spoke with Dr. Chirag Patel and Dr. Zach Barnoud both neurosurgeons. They wanted us to check into the ER at cedars right now to prep for surgery to remove the tumor tomorrow morning. This is obviously extremely overwhelming and a lot to process. We knew the tumor had to come out but wow this is fast. I haven't even had time to look up these Drs. Does this seem right? Has anyone else experienced this type of rush?
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- January 7, 2015 at 2:33 am
Thank you all so much for your advice. We saw Dr. Hamid today and he said the tumor in the brain must come out. He spoke with Dr. Chirag Patel and Dr. Zach Barnoud both neurosurgeons. They wanted us to check into the ER at cedars right now to prep for surgery to remove the tumor tomorrow morning. This is obviously extremely overwhelming and a lot to process. We knew the tumor had to come out but wow this is fast. I haven't even had time to look up these Drs. Does this seem right? Has anyone else experienced this type of rush?
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- January 7, 2015 at 2:33 am
Thank you all so much for your advice. We saw Dr. Hamid today and he said the tumor in the brain must come out. He spoke with Dr. Chirag Patel and Dr. Zach Barnoud both neurosurgeons. They wanted us to check into the ER at cedars right now to prep for surgery to remove the tumor tomorrow morning. This is obviously extremely overwhelming and a lot to process. We knew the tumor had to come out but wow this is fast. I haven't even had time to look up these Drs. Does this seem right? Has anyone else experienced this type of rush?
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- January 4, 2015 at 11:08 pm
Thank you so much for your reply. All of this is so confusing and I feel like there isnt much time. The location of the brain tumor is in a very dangerous place and I was told I can not be on the steroids that I am taking for it for too long. I am happy to hear that you find Dr. Hamid competent. It is a little unsettling to see those kind of reviews. I have been reading a lot about Dr. O'Day and Dr. Ribas. I will see about getting another appointment with them. Thanks again for your help
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- January 4, 2015 at 11:08 pm
Thank you so much for your reply. All of this is so confusing and I feel like there isnt much time. The location of the brain tumor is in a very dangerous place and I was told I can not be on the steroids that I am taking for it for too long. I am happy to hear that you find Dr. Hamid competent. It is a little unsettling to see those kind of reviews. I have been reading a lot about Dr. O'Day and Dr. Ribas. I will see about getting another appointment with them. Thanks again for your help
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- January 4, 2015 at 11:08 pm
Thank you so much for your reply. All of this is so confusing and I feel like there isnt much time. The location of the brain tumor is in a very dangerous place and I was told I can not be on the steroids that I am taking for it for too long. I am happy to hear that you find Dr. Hamid competent. It is a little unsettling to see those kind of reviews. I have been reading a lot about Dr. O'Day and Dr. Ribas. I will see about getting another appointment with them. Thanks again for your help
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