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sis1971

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      sis1971
      Participant

        Has anyone heard of melanoma in the heart?My husbands heart is full of tumors just had 2nd dose of keytruda but really the doctors thought he wouldnt have made it this far .Tumors are all over more than 140.any help would be much appreciated .Hes getting so weak now he hasnt ate in a week tomorrow im getting really worried dont know what to watch for hes also really confused our kids are 9&12 i think hes suffering how do we know when enough is enough I love him so much 16 years together i dont know what to do to help him.

        He was first diagnosed in january of 2012 a mole on his back said they got it all and was clear (we thought)this march went in for a pet scan to find out it was back never left just went into hiding !!!we were then told he had six months to a year to live.

        We got in to see a melanoma specialist with only three small tumors one only a 3cm the others a 1.she started him on yervoy and all the waiting to find out yervoy did nothing for us .Now after two hospital visits the last being icu we were sent home with hospice then had to stop that to have second dose of keytruda now everyday he keeps getting worse eight more tumors have appeared in the last week these are on his neck in his head i dont know if were doing the right thing we said if its Gods will he will let us keep him longer if not he will take him home if anyone has heard of this any help would be so appreciated 

        sis1971
        Participant

          Has anyone heard of melanoma in the heart?My husbands heart is full of tumors just had 2nd dose of keytruda but really the doctors thought he wouldnt have made it this far .Tumors are all over more than 140.any help would be much appreciated .Hes getting so weak now he hasnt ate in a week tomorrow im getting really worried dont know what to watch for hes also really confused our kids are 9&12 i think hes suffering how do we know when enough is enough I love him so much 16 years together i dont know what to do to help him.

          He was first diagnosed in january of 2012 a mole on his back said they got it all and was clear (we thought)this march went in for a pet scan to find out it was back never left just went into hiding !!!we were then told he had six months to a year to live.

          We got in to see a melanoma specialist with only three small tumors one only a 3cm the others a 1.she started him on yervoy and all the waiting to find out yervoy did nothing for us .Now after two hospital visits the last being icu we were sent home with hospice then had to stop that to have second dose of keytruda now everyday he keeps getting worse eight more tumors have appeared in the last week these are on his neck in his head i dont know if were doing the right thing we said if its Gods will he will let us keep him longer if not he will take him home if anyone has heard of this any help would be so appreciated 

          sis1971
          Participant

            Has anyone heard of melanoma in the heart?My husbands heart is full of tumors just had 2nd dose of keytruda but really the doctors thought he wouldnt have made it this far .Tumors are all over more than 140.any help would be much appreciated .Hes getting so weak now he hasnt ate in a week tomorrow im getting really worried dont know what to watch for hes also really confused our kids are 9&12 i think hes suffering how do we know when enough is enough I love him so much 16 years together i dont know what to do to help him.

            He was first diagnosed in january of 2012 a mole on his back said they got it all and was clear (we thought)this march went in for a pet scan to find out it was back never left just went into hiding !!!we were then told he had six months to a year to live.

            We got in to see a melanoma specialist with only three small tumors one only a 3cm the others a 1.she started him on yervoy and all the waiting to find out yervoy did nothing for us .Now after two hospital visits the last being icu we were sent home with hospice then had to stop that to have second dose of keytruda now everyday he keeps getting worse eight more tumors have appeared in the last week these are on his neck in his head i dont know if were doing the right thing we said if its Gods will he will let us keep him longer if not he will take him home if anyone has heard of this any help would be so appreciated 

            sis1971
            Participant

              Has anyone heard of melanoma in the heart?My husbands heart is full of tumors just had 2nd dose of keytruda but really the doctors thought he wouldnt have made it this far .Tumors are all over more than 140.any help would be much appreciated .Hes getting so weak now he hasnt ate in a week tomorrow im getting really worried dont know what to watch for hes also really confused our kids are 9&12 i think hes suffering how do we know when enough is enough I love him so much 16 years together i dont know what to do to help him

              sis1971
              Participant

                Has anyone heard of melanoma in the heart?My husbands heart is full of tumors just had 2nd dose of keytruda but really the doctors thought he wouldnt have made it this far .Tumors are all over more than 140.any help would be much appreciated .Hes getting so weak now he hasnt ate in a week tomorrow im getting really worried dont know what to watch for hes also really confused our kids are 9&12 i think hes suffering how do we know when enough is enough I love him so much 16 years together i dont know what to do to help him

                sis1971
                Participant

                  Has anyone heard of melanoma in the heart?My husbands heart is full of tumors just had 2nd dose of keytruda but really the doctors thought he wouldnt have made it this far .Tumors are all over more than 140.any help would be much appreciated .Hes getting so weak now he hasnt ate in a week tomorrow im getting really worried dont know what to watch for hes also really confused our kids are 9&12 i think hes suffering how do we know when enough is enough I love him so much 16 years together i dont know what to do to help him

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