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sleepyt23

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      sleepyt23
      Participant

        I was Stage 3B, diagnosed November 2014. Both my surgical and medical oncologists recommended that I do not do interferon due to high chance of side effects and low chance of any benefit. They instead recommended that I wait until Yervoy was approved for adjuvant use. 

        Fast foward to this year, and I've had a power port placed and three infusions of 10mg concentration of Yervoy. Only adverse reactions so far have been slight fatigue, body aches, and a little diarrhea for about a week after each infusion. Other than that I have had no problems.

        From what I've read and what I've been told, Yervoy, since it is approved by the FDA, should at least be attempted in patients in an adjuvant setting. If you have adverse reactions, all you have to do is stop getting infusions. Patients have to be very mindful of any new symptoms that arise after infusions. If something comes up, tell your doctor. If it gets unbearable, your doctor will reassess. Most of the side effects of Yervoy, if caught early, are fully reversible.

        sleepyt23
        Participant

          I was Stage 3B, diagnosed November 2014. Both my surgical and medical oncologists recommended that I do not do interferon due to high chance of side effects and low chance of any benefit. They instead recommended that I wait until Yervoy was approved for adjuvant use. 

          Fast foward to this year, and I've had a power port placed and three infusions of 10mg concentration of Yervoy. Only adverse reactions so far have been slight fatigue, body aches, and a little diarrhea for about a week after each infusion. Other than that I have had no problems.

          From what I've read and what I've been told, Yervoy, since it is approved by the FDA, should at least be attempted in patients in an adjuvant setting. If you have adverse reactions, all you have to do is stop getting infusions. Patients have to be very mindful of any new symptoms that arise after infusions. If something comes up, tell your doctor. If it gets unbearable, your doctor will reassess. Most of the side effects of Yervoy, if caught early, are fully reversible.

          sleepyt23
          Participant

            I was Stage 3B, diagnosed November 2014. Both my surgical and medical oncologists recommended that I do not do interferon due to high chance of side effects and low chance of any benefit. They instead recommended that I wait until Yervoy was approved for adjuvant use. 

            Fast foward to this year, and I've had a power port placed and three infusions of 10mg concentration of Yervoy. Only adverse reactions so far have been slight fatigue, body aches, and a little diarrhea for about a week after each infusion. Other than that I have had no problems.

            From what I've read and what I've been told, Yervoy, since it is approved by the FDA, should at least be attempted in patients in an adjuvant setting. If you have adverse reactions, all you have to do is stop getting infusions. Patients have to be very mindful of any new symptoms that arise after infusions. If something comes up, tell your doctor. If it gets unbearable, your doctor will reassess. Most of the side effects of Yervoy, if caught early, are fully reversible.

            sleepyt23
            Participant

              If I recall correctly, LDH only comes into play if you have a longer term upward trend. Since you only have three results it is difficult, if not impossible, to say that there is any relation to melanoma to be concerned about. 

              Assuming your first reading as a baseline, your second is lower and your third is higher. Average among the three readings is 171.3. 

              Additionally, higher LDH results are not indicative of melanoma. It could be any sort of infection that you may not even know you have.

               

              sleepyt23
              Participant

                If I recall correctly, LDH only comes into play if you have a longer term upward trend. Since you only have three results it is difficult, if not impossible, to say that there is any relation to melanoma to be concerned about. 

                Assuming your first reading as a baseline, your second is lower and your third is higher. Average among the three readings is 171.3. 

                Additionally, higher LDH results are not indicative of melanoma. It could be any sort of infection that you may not even know you have.

                 

                sleepyt23
                Participant

                  If I recall correctly, LDH only comes into play if you have a longer term upward trend. Since you only have three results it is difficult, if not impossible, to say that there is any relation to melanoma to be concerned about. 

                  Assuming your first reading as a baseline, your second is lower and your third is higher. Average among the three readings is 171.3. 

                  Additionally, higher LDH results are not indicative of melanoma. It could be any sort of infection that you may not even know you have.

                   

                  sleepyt23
                  Participant

                    I had the same problem; primary melanoma on back, SNLD under right arm. A week after surgery I had numerous small red bumps under my arm. Went to PCP, was bacterial infection of hair folicles. Took antibiotics and it went away.

                    Sure did scare the crap out of me.

                    sleepyt23
                    Participant

                      I had the same problem; primary melanoma on back, SNLD under right arm. A week after surgery I had numerous small red bumps under my arm. Went to PCP, was bacterial infection of hair folicles. Took antibiotics and it went away.

                      Sure did scare the crap out of me.

                      sleepyt23
                      Participant

                        I had the same problem; primary melanoma on back, SNLD under right arm. A week after surgery I had numerous small red bumps under my arm. Went to PCP, was bacterial infection of hair folicles. Took antibiotics and it went away.

                        Sure did scare the crap out of me.

                        sleepyt23
                        Participant

                          Thanks for all of the replies!

                          sleepyt23
                          Participant

                            Thanks for all of the replies!

                            sleepyt23
                            Participant

                              Thanks for all of the replies!

                              sleepyt23
                              Participant

                                Yervoy (Ipilimumab) is available for adjuvant treatment in the US. I was stage 3B and I am going to get my fourth infusion next week.

                                sleepyt23
                                Participant

                                  Yervoy (Ipilimumab) is available for adjuvant treatment in the US. I was stage 3B and I am going to get my fourth infusion next week.

                                  sleepyt23
                                  Participant

                                    Yervoy (Ipilimumab) is available for adjuvant treatment in the US. I was stage 3B and I am going to get my fourth infusion next week.

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