snoopyinoc

Hi Steve. My husband is on ipi/nivo (we were told this is more effective than Yervoy alone) combo and his side effects started after the 3rd infusion were extreme fatigue, rashes, and severe headaches, along with mild diahrea and nausia. He completed 3 rounds of the ipi/nivo combo and was a responder. His tumors shrank which we are very happy about. He will contintue the nvo only regiment every two weeks.

To help with his side effects he is currenlty on steriods.

Best wishes to you!

Hi Steve. My husband is on ipi/nivo (we were told this is more effective than Yervoy alone) combo and his side effects started after the 3rd infusion were extreme fatigue, rashes, and severe headaches, along with mild diahrea and nausia. He completed 3 rounds of the ipi/nivo combo and was a responder. His tumors shrank which we are very happy about. He will contintue the nvo only regiment every two weeks.

To help with his side effects he is currenlty on steriods.

Best wishes to you!

Hi Steve. My husband is on ipi/nivo (we were told this is more effective than Yervoy alone) combo and his side effects started after the 3rd infusion were extreme fatigue, rashes, and severe headaches, along with mild diahrea and nausia. He completed 3 rounds of the ipi/nivo combo and was a responder. His tumors shrank which we are very happy about. He will contintue the nvo only regiment every two weeks.

To help with his side effects he is currenlty on steriods.

Best wishes to you!

Hi Matt. My husband is currenlty on ipi/nivo, and he has been on the treatment since Nov of last year. He had mets in his liver and right shoulder and after the 3rd infusion the tumors shrank and he had no evidence of disease. 

About two years ago he was diagnosed with Stage 3 and did adjuvant bio-chemo and radiation therapy (please get second opinion if this is suggested because it didn't turn out well for my husand. he had nerve damage), after this treatment was in remission up to Oct of last year. We would have opted for Yervoy but since his insurance did not cover the treatment.

The current ipi/nivo treatment seems to be working for him, but he does have some bad side effects, such as rashes, headaches and extreme fatigue. His Onc recommends that he continue the nivo regiment only every two weeks. Now with this said we need clarity from the doctor how long he will have to continue the Nivo. We are just happy that he responded and I know sadly not everyone is as lucky. 

Best of luck to you!

Hi Matt. My husband is currenlty on ipi/nivo, and he has been on the treatment since Nov of last year. He had mets in his liver and right shoulder and after the 3rd infusion the tumors shrank and he had no evidence of disease. 

About two years ago he was diagnosed with Stage 3 and did adjuvant bio-chemo and radiation therapy (please get second opinion if this is suggested because it didn't turn out well for my husand. he had nerve damage), after this treatment was in remission up to Oct of last year. We would have opted for Yervoy but since his insurance did not cover the treatment.

The current ipi/nivo treatment seems to be working for him, but he does have some bad side effects, such as rashes, headaches and extreme fatigue. His Onc recommends that he continue the nivo regiment only every two weeks. Now with this said we need clarity from the doctor how long he will have to continue the Nivo. We are just happy that he responded and I know sadly not everyone is as lucky. 

Best of luck to you!

Hi Matt. My husband is currenlty on ipi/nivo, and he has been on the treatment since Nov of last year. He had mets in his liver and right shoulder and after the 3rd infusion the tumors shrank and he had no evidence of disease. 

About two years ago he was diagnosed with Stage 3 and did adjuvant bio-chemo and radiation therapy (please get second opinion if this is suggested because it didn't turn out well for my husand. he had nerve damage), after this treatment was in remission up to Oct of last year. We would have opted for Yervoy but since his insurance did not cover the treatment.

The current ipi/nivo treatment seems to be working for him, but he does have some bad side effects, such as rashes, headaches and extreme fatigue. His Onc recommends that he continue the nivo regiment only every two weeks. Now with this said we need clarity from the doctor how long he will have to continue the Nivo. We are just happy that he responded and I know sadly not everyone is as lucky. 

Best of luck to you!

I have to agree that the radiation therapy experience for us was not good. After, my husband had the pimple like growth and lymph nodes removed he had no other evidence of disease. At this point, the Onc told my husband he could do nothing and wait and see if the cancer grows back, or do adjuvant therapy (treatment for high risk patient with no evidence of diseases).  Again, based on the information we had my husband decided for the adjuvant therapy, which was the bio-chemotherapy and radiation. However, we had learned about Yerovoy at this time, but since he was Stage 3 his insurance company at that time did not cover this treatment.  As a result, he ended up down the bio-chemo and radiation path.

As I mentioned he was in remission for about 1.5 years but the cancer came back in Oct 15. He has a new Onc and is on this ipi/nivo combo that seems to be working for him, and is now in remission again. He has to deal with all the side effects but it was not has bad as bio-chemo. It's been a journey of headaches and frustrations and I can understand your nervousness, but hopefully the information you are finding here is helpful. I've been reading other people's post and stories and it helps to know that you we are not alone. I wish you the best of luck with your Onc appointment.

I have to agree that the radiation therapy experience for us was not good. After, my husband had the pimple like growth and lymph nodes removed he had no other evidence of disease. At this point, the Onc told my husband he could do nothing and wait and see if the cancer grows back, or do adjuvant therapy (treatment for high risk patient with no evidence of diseases).  Again, based on the information we had my husband decided for the adjuvant therapy, which was the bio-chemotherapy and radiation. However, we had learned about Yerovoy at this time, but since he was Stage 3 his insurance company at that time did not cover this treatment.  As a result, he ended up down the bio-chemo and radiation path.

As I mentioned he was in remission for about 1.5 years but the cancer came back in Oct 15. He has a new Onc and is on this ipi/nivo combo that seems to be working for him, and is now in remission again. He has to deal with all the side effects but it was not has bad as bio-chemo. It's been a journey of headaches and frustrations and I can understand your nervousness, but hopefully the information you are finding here is helpful. I've been reading other people's post and stories and it helps to know that you we are not alone. I wish you the best of luck with your Onc appointment.

I have to agree that the radiation therapy experience for us was not good. After, my husband had the pimple like growth and lymph nodes removed he had no other evidence of disease. At this point, the Onc told my husband he could do nothing and wait and see if the cancer grows back, or do adjuvant therapy (treatment for high risk patient with no evidence of diseases).  Again, based on the information we had my husband decided for the adjuvant therapy, which was the bio-chemotherapy and radiation. However, we had learned about Yerovoy at this time, but since he was Stage 3 his insurance company at that time did not cover this treatment.  As a result, he ended up down the bio-chemo and radiation path.

As I mentioned he was in remission for about 1.5 years but the cancer came back in Oct 15. He has a new Onc and is on this ipi/nivo combo that seems to be working for him, and is now in remission again. He has to deal with all the side effects but it was not has bad as bio-chemo. It's been a journey of headaches and frustrations and I can understand your nervousness, but hopefully the information you are finding here is helpful. I've been reading other people's post and stories and it helps to know that you we are not alone. I wish you the best of luck with your Onc appointment.