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spiderman

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      spiderman
      Participant

        Interesting thread Lauren. I have a couple of questions if you don’t mind. First let me set the stage by going through my general anesthesia history.

        In the 80’s I had two rather lengthy surgeries under general anesthesia (2+ hours, 6+hours). In both cases I was totally out with zero recollection of the surgeries when I came to.

        In the 90s I also had two surgeries under general, but both were shorter (around an hour) and in both cases I was not completely out. It sounds like I got the “twilight” treatment. The first surgery wasn’t too bad, but I was a little surprised when I wasn’t totally out and it was a little bit uncomfortable. The second surgery turned out to be for removal of a schwannoma in my left axilla. I’m not sure you are familiar with schwannoma tumors, but they are masses formed in the nerve sheathing. Not only was I not totally under, but there apparently wasn’t enough local anesthesia to block the pain. I remember excruciating pain and my arm flying all over the place as they pressed on the nerves. Of course I was in the in between state of feeling all the discomfort but not conscious enough to do anything about it. Had I been able to I would have punched the surgeon in the face with my good arm.

        My most recent surgery was last year for the melanoma lesion removal (with skin graft) and sentinel node removal. I was very worried about the same “twilight” situation. To my delight I was totally under with no recollection of anything. This was about a 2 hour surgery.

        I also recently had a colonoscopy, which is super short in duration, but I again was totally out. That really surprised me.

        So my questions are:

        Is the “twilight” decision based on surgery duration and/or surgery complexity?

        Can I request to be put totally under even if it is a shorter and less complex surgery?

        I have had zero issues with nausea or any other ill effects from anesthesia, so for me the deeper the better after that one horrible experience. In their defense, it was not known ahead of time as to what type of mass it was, so I suppose they may not have anticipated the difficulty of the situation.

        I guess that raises one more question. If the situation turns out to be more difficult than originally anticipated, can the anesthesia be adjusted to compensate or are there pre surgery setup decisions that prohibit going deeper on the fly (i.e. breathing tubes, etc.)?

        Thanks

         
         

        spiderman
        Participant

          Interesting thread Lauren. I have a couple of questions if you don’t mind. First let me set the stage by going through my general anesthesia history.

          In the 80’s I had two rather lengthy surgeries under general anesthesia (2+ hours, 6+hours). In both cases I was totally out with zero recollection of the surgeries when I came to.

          In the 90s I also had two surgeries under general, but both were shorter (around an hour) and in both cases I was not completely out. It sounds like I got the “twilight” treatment. The first surgery wasn’t too bad, but I was a little surprised when I wasn’t totally out and it was a little bit uncomfortable. The second surgery turned out to be for removal of a schwannoma in my left axilla. I’m not sure you are familiar with schwannoma tumors, but they are masses formed in the nerve sheathing. Not only was I not totally under, but there apparently wasn’t enough local anesthesia to block the pain. I remember excruciating pain and my arm flying all over the place as they pressed on the nerves. Of course I was in the in between state of feeling all the discomfort but not conscious enough to do anything about it. Had I been able to I would have punched the surgeon in the face with my good arm.

          My most recent surgery was last year for the melanoma lesion removal (with skin graft) and sentinel node removal. I was very worried about the same “twilight” situation. To my delight I was totally under with no recollection of anything. This was about a 2 hour surgery.

          I also recently had a colonoscopy, which is super short in duration, but I again was totally out. That really surprised me.

          So my questions are:

          Is the “twilight” decision based on surgery duration and/or surgery complexity?

          Can I request to be put totally under even if it is a shorter and less complex surgery?

          I have had zero issues with nausea or any other ill effects from anesthesia, so for me the deeper the better after that one horrible experience. In their defense, it was not known ahead of time as to what type of mass it was, so I suppose they may not have anticipated the difficulty of the situation.

          I guess that raises one more question. If the situation turns out to be more difficult than originally anticipated, can the anesthesia be adjusted to compensate or are there pre surgery setup decisions that prohibit going deeper on the fly (i.e. breathing tubes, etc.)?

          Thanks

           
           

          spiderman
          Participant

            Interesting thread Lauren. I have a couple of questions if you don’t mind. First let me set the stage by going through my general anesthesia history.

            In the 80’s I had two rather lengthy surgeries under general anesthesia (2+ hours, 6+hours). In both cases I was totally out with zero recollection of the surgeries when I came to.

            In the 90s I also had two surgeries under general, but both were shorter (around an hour) and in both cases I was not completely out. It sounds like I got the “twilight” treatment. The first surgery wasn’t too bad, but I was a little surprised when I wasn’t totally out and it was a little bit uncomfortable. The second surgery turned out to be for removal of a schwannoma in my left axilla. I’m not sure you are familiar with schwannoma tumors, but they are masses formed in the nerve sheathing. Not only was I not totally under, but there apparently wasn’t enough local anesthesia to block the pain. I remember excruciating pain and my arm flying all over the place as they pressed on the nerves. Of course I was in the in between state of feeling all the discomfort but not conscious enough to do anything about it. Had I been able to I would have punched the surgeon in the face with my good arm.

            My most recent surgery was last year for the melanoma lesion removal (with skin graft) and sentinel node removal. I was very worried about the same “twilight” situation. To my delight I was totally under with no recollection of anything. This was about a 2 hour surgery.

            I also recently had a colonoscopy, which is super short in duration, but I again was totally out. That really surprised me.

            So my questions are:

            Is the “twilight” decision based on surgery duration and/or surgery complexity?

            Can I request to be put totally under even if it is a shorter and less complex surgery?

            I have had zero issues with nausea or any other ill effects from anesthesia, so for me the deeper the better after that one horrible experience. In their defense, it was not known ahead of time as to what type of mass it was, so I suppose they may not have anticipated the difficulty of the situation.

            I guess that raises one more question. If the situation turns out to be more difficult than originally anticipated, can the anesthesia be adjusted to compensate or are there pre surgery setup decisions that prohibit going deeper on the fly (i.e. breathing tubes, etc.)?

            Thanks

             
             

            spiderman
            Participant

              Thanks for all that posted, lots of good information.

              There certainly is a very strong indication that low vitamin D levels is correlated with melanoma incidence. Unfortunately, since all of us have already crossed that bridge, that alone doesn’t help much. The more interesting part, and less certain, is whether increasing vitamin D levels after diagnosis improves outcomes. Celeste’s article reiterates what I have read in many places, that high intakes of antioxidants actually helps cancer cells metastasize. My first reaction after diagnosis was to do what many do, load up on antioxidants, but when I read study after study counter indicating that approach, I chose not to do so. My view is that trying to prevent any new cancer is not worth the risk of helping the already known cancer in my body. It appears the same may apply to vitamin D.

              Interestingly, it sounds like testing Vitamin D levels is, or is close to, the standard of care in the UK, but as far as I know, it is not here in the U.S. I’m not sure why the difference, but I am curious to know my level so I will get it tested. If it is grossly out of range on the low side, it probably makes sense to try to get it into range, otherwise leaving it alone will be my strategy.

              spiderman
              Participant

                Thanks for all that posted, lots of good information.

                There certainly is a very strong indication that low vitamin D levels is correlated with melanoma incidence. Unfortunately, since all of us have already crossed that bridge, that alone doesn’t help much. The more interesting part, and less certain, is whether increasing vitamin D levels after diagnosis improves outcomes. Celeste’s article reiterates what I have read in many places, that high intakes of antioxidants actually helps cancer cells metastasize. My first reaction after diagnosis was to do what many do, load up on antioxidants, but when I read study after study counter indicating that approach, I chose not to do so. My view is that trying to prevent any new cancer is not worth the risk of helping the already known cancer in my body. It appears the same may apply to vitamin D.

                Interestingly, it sounds like testing Vitamin D levels is, or is close to, the standard of care in the UK, but as far as I know, it is not here in the U.S. I’m not sure why the difference, but I am curious to know my level so I will get it tested. If it is grossly out of range on the low side, it probably makes sense to try to get it into range, otherwise leaving it alone will be my strategy.

                spiderman
                Participant

                  Thanks for all that posted, lots of good information.

                  There certainly is a very strong indication that low vitamin D levels is correlated with melanoma incidence. Unfortunately, since all of us have already crossed that bridge, that alone doesn’t help much. The more interesting part, and less certain, is whether increasing vitamin D levels after diagnosis improves outcomes. Celeste’s article reiterates what I have read in many places, that high intakes of antioxidants actually helps cancer cells metastasize. My first reaction after diagnosis was to do what many do, load up on antioxidants, but when I read study after study counter indicating that approach, I chose not to do so. My view is that trying to prevent any new cancer is not worth the risk of helping the already known cancer in my body. It appears the same may apply to vitamin D.

                  Interestingly, it sounds like testing Vitamin D levels is, or is close to, the standard of care in the UK, but as far as I know, it is not here in the U.S. I’m not sure why the difference, but I am curious to know my level so I will get it tested. If it is grossly out of range on the low side, it probably makes sense to try to get it into range, otherwise leaving it alone will be my strategy.

                  spiderman
                  Participant

                    That was exactly my case. I questioned how that could be at such a substantial depth (mine was .92 mm) but was assured that there was no vertical growth phase. And that was from a Melanoma center dermatopathologist so I have to trust it as being accurate.

                    spiderman
                    Participant

                      I was just like you in terms of scouring the web for any and all information but I did not do it until after my surgical procedures. I was caught by the “deer in the headlights” syndrome prior to that so I just went with the doctor’s recommendations. Had I known what I knew a few months later I would have done some things differently, so although I know that it is stressful it is best that you become educated as you are doing. Just try not to overdue things. There is a point at which the additional knowledge gets outweighed by the additional stress. My advice is to try to decide when you have reached that point and when you have back off and let things play out.

                      spiderman
                      Participant

                        University Hospital, also in Cleveland, has a top notch melanoma care team so you may want to consider them as well. Their dermatopatholgist is very thorough. He would be reviewing your slides as a first step.

                        spiderman
                        Participant

                          University Hospital, also in Cleveland, has a top notch melanoma care team so you may want to consider them as well. Their dermatopatholgist is very thorough. He would be reviewing your slides as a first step.

                          spiderman
                          Participant

                            Awesome news Jenn! You deserved some good news. I want everybody to get good news, but especially so for young people like you. 

                            spiderman
                            Participant

                              Awesome news Jenn! You deserved some good news. I want everybody to get good news, but especially so for young people like you. 

                              spiderman
                              Participant

                                Awesome news Jenn! You deserved some good news. I want everybody to get good news, but especially so for young people like you. 

                                spiderman
                                Participant

                                  The following is from the Red Cross web site regarding blood donation eligibility:

                                  Eligibility depends on the type of cancer and treatment history. If you had leukemia or lymphoma, including Hodgkin’s Disease and other cancers of the blood, you are not eligible to donate. Other types of cancer are acceptable if the cancer has been treated successfully and it has been more than 12 months since treatment was completed and there has been no cancer recurrence in this time. Lower risk in-situ cancers including squamous or basal cell cancers of the skin that have been completely removed do not require a 12 month waiting period.

                                  spiderman
                                  Participant

                                    The following is from the Red Cross web site regarding blood donation eligibility:

                                    Eligibility depends on the type of cancer and treatment history. If you had leukemia or lymphoma, including Hodgkin’s Disease and other cancers of the blood, you are not eligible to donate. Other types of cancer are acceptable if the cancer has been treated successfully and it has been more than 12 months since treatment was completed and there has been no cancer recurrence in this time. Lower risk in-situ cancers including squamous or basal cell cancers of the skin that have been completely removed do not require a 12 month waiting period.

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