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SRS

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      • March 6, 2012 at 1:36 am
      SRS
      Participant

        Are your husband's doctors oncologists who specalize in melanoma?  If so great!  If not, I would recommend seeking out the nearest Melanoma Treatment Center. 

        http://www.melanoma.org/learn-more/melanoma-treatment-centers

        It is some work to have records copied and sent, it's worth it.

        The waiting is excruciating.  I feel your pain.  And if we, as caregivers, think it's a long wait I can only imagine what it must be like to be our patients.

        • March 6, 2012 at 1:36 am
        SRS
        Participant

          Are your husband's doctors oncologists who specalize in melanoma?  If so great!  If not, I would recommend seeking out the nearest Melanoma Treatment Center. 

          http://www.melanoma.org/learn-more/melanoma-treatment-centers

          It is some work to have records copied and sent, it's worth it.

          The waiting is excruciating.  I feel your pain.  And if we, as caregivers, think it's a long wait I can only imagine what it must be like to be our patients.

          • March 6, 2012 at 1:36 am
          SRS
          Participant

            Are your husband's doctors oncologists who specalize in melanoma?  If so great!  If not, I would recommend seeking out the nearest Melanoma Treatment Center. 

            http://www.melanoma.org/learn-more/melanoma-treatment-centers

            It is some work to have records copied and sent, it's worth it.

            The waiting is excruciating.  I feel your pain.  And if we, as caregivers, think it's a long wait I can only imagine what it must be like to be our patients.

            • March 6, 2012 at 1:18 am
            SRS
            Participant

              Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

              • March 6, 2012 at 1:18 am
              SRS
              Participant

                Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

                • March 6, 2012 at 1:18 am
                SRS
                Participant

                  Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

                  • March 6, 2012 at 1:16 am
                  SRS
                  Participant

                    Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

                    • March 6, 2012 at 1:16 am
                    SRS
                    Participant

                      Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

                      • March 6, 2012 at 1:16 am
                      SRS
                      Participant

                        Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

                        • March 6, 2012 at 1:11 am
                        SRS
                        Participant

                          Thanks for the link, DonW.  I checked it out and found it helpful.

                          • March 6, 2012 at 1:11 am
                          SRS
                          Participant

                            Thanks for the link, DonW.  I checked it out and found it helpful.

                            • March 6, 2012 at 1:11 am
                            SRS
                            Participant

                              Thanks for the link, DonW.  I checked it out and found it helpful.

                              • March 6, 2012 at 1:04 am
                              SRS
                              Participant

                                Thanks for considering this, ctlml.  I've also read about Moffitt and others running out of funds for the TIL programs.  We will be checking into other options.

                                About insurance companies requiring chemo before approving ipi — that doesn't make sense to me as many patients seem to have the option of treatment with ipi first.  I was under the impression that the decision to start with chemotherapy was strictly clinical and had nothing to do with the insurance company dictating care.  I will be checking into this, however, We will be getting to ipi as soon as possible. 

                                Thanks again,

                                SRS

                                 

                                • March 6, 2012 at 1:04 am
                                SRS
                                Participant

                                  Thanks for considering this, ctlml.  I've also read about Moffitt and others running out of funds for the TIL programs.  We will be checking into other options.

                                  About insurance companies requiring chemo before approving ipi — that doesn't make sense to me as many patients seem to have the option of treatment with ipi first.  I was under the impression that the decision to start with chemotherapy was strictly clinical and had nothing to do with the insurance company dictating care.  I will be checking into this, however, We will be getting to ipi as soon as possible. 

                                  Thanks again,

                                  SRS

                                   

                                  • March 6, 2012 at 1:04 am
                                  SRS
                                  Participant

                                    Thanks for considering this, ctlml.  I've also read about Moffitt and others running out of funds for the TIL programs.  We will be checking into other options.

                                    About insurance companies requiring chemo before approving ipi — that doesn't make sense to me as many patients seem to have the option of treatment with ipi first.  I was under the impression that the decision to start with chemotherapy was strictly clinical and had nothing to do with the insurance company dictating care.  I will be checking into this, however, We will be getting to ipi as soon as possible. 

                                    Thanks again,

                                    SRS

                                     

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