Sus69Riez
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Sus69Riez

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      • October 19, 2019 at 7:30 pm
      Sus69Riez
      Participant
        Susan C October 19, 2019 at 3:02 PM
        I am on Braftovi (encorafenib) and Mektovi (binimetinib) had melanoma Situ stage on scalp 2006 and on face Situ stage in 2017. Then in March 2018 had swollen lymph node removed from neck which I was diagnosed stage 4 melanoma. Now have spot on lung which Biopsy showed was melanoma, now on the Mektovi and Braftovi. Scans show nothing elsewhere so feel blessed but so worried. Had side effects but was just given prednisone which is helping. Only been on 5 days straight and not sure when I will see results but probably will be 3 months from my last scan due to insurance not allowing more.
        • March 15, 2019 at 1:50 pm
        Sus69Riez
        Participant

          Sorry to hear and I know your anxiety because I had the same nodule behind my ear plus swollen lymph node under the clear skin colored nodule. Yes mine became a scare after surgery to remove and due to path report stating stage IV melanoma. Started on Keytruda June 2018 and all signs of melanoma disappeared until Feb. 2019 and Pet Scan showed spot on lung. Now off of Keytruda and starting new targeted therapy with Tafinlar and Mekinist, pills of chemo taking by mouth. Should be starting by Monday and hopefully dissolve away this 11mm melanoma sitting on top of my lung. You should be fine just never give in or give up, new drugs to help us us every day!

          • April 1, 2019 at 1:18 am
          Sus69Riez
          Participant

            Nodule was behind ear, small pimple size and also lymp node below ear came back positive.

            • April 1, 2019 at 1:14 am
            Sus69Riez
            Participant

              Had biopsy of lung, positive for melanoma and spot was 11mm. the nodule behind ear was like a small flesh colored pimple. The lymph node below on same side was positive too. Was on Keytruda from June 1st 2018 until Jan 2019 when the spot on lung showed up, now on the Tafinlar and Mekinist.

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