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Suzanne
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Suzanne

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      • January 17, 2024 at 11:12 am
      Suzanne
      Participant
        After diagnosis of metastatic melanoma to my lung in December of 2021 I got an infusion in that month and the 2nd one in January. Was getting ready for my 3rd one and woke up very confused and I thought I was having a stroke. Called my Oncologist and they sent me to the hospital. I was there a week with severe headache. Had MRI’s and CT’s.
        Had 3 spinal taps to make sure the cancer wasn’t in my brain. Was told I had a rare reaction where my immune system was attacking good cells. On steroids and felt better started to taper off and felt like I had the flu, my GP did blood work and my liver and kidney functions were very high. Again in the hospital and put on steroids again. Creatinine recovered and was tapered off again but have stomach, intestinal issues, and also pain in my shoulders so bad that I had to get injections of steroids. Can’t gain weight and my patience is off and I have anger issues. The cancer in my lung is gone but I am not the same person. Only 2 infusions. I will never take the combo again.
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