teri0915

Im curious about the size and amount of mets also. Can they do a crainiotomy? I was 24 when it hit my brain and did the surgery and gamma knife. Im wondering why they want to do whole brain radiation. Theu had told me that the whole brain want a great idea because of my age. How long has it been since she was staged at 4?
I hope all the best for you two.
Teri

Im curious about the size and amount of mets also. Can they do a crainiotomy? I was 24 when it hit my brain and did the surgery and gamma knife. Im wondering why they want to do whole brain radiation. Theu had told me that the whole brain want a great idea because of my age. How long has it been since she was staged at 4?
I hope all the best for you two.
Teri

Im curious about the size and amount of mets also. Can they do a crainiotomy? I was 24 when it hit my brain and did the surgery and gamma knife. Im wondering why they want to do whole brain radiation. Theu had told me that the whole brain want a great idea because of my age. How long has it been since she was staged at 4?
I hope all the best for you two.
Teri

I’ve been stage 4 for almost a year now, brain and spine mets. All i have been on is temodar and ive had radiation on the spine and gamma knife for my brain. I havent heard and mention of trials and my dr doesnt feel the need for ipi right now.

I’ve been stage 4 for almost a year now, brain and spine mets. All i have been on is temodar and ive had radiation on the spine and gamma knife for my brain. I havent heard and mention of trials and my dr doesnt feel the need for ipi right now.

I’ve been stage 4 for almost a year now, brain and spine mets. All i have been on is temodar and ive had radiation on the spine and gamma knife for my brain. I havent heard and mention of trials and my dr doesnt feel the need for ipi right now.

No clinical trials for me but still see doctors a lot. Oncologist every 6 weeks neurologist and dematologist every 3 months. Luckily we only live about 45-60 mins from OSU James.
Good luck
Teri

No clinical trials for me but still see doctors a lot. Oncologist every 6 weeks neurologist and dematologist every 3 months. Luckily we only live about 45-60 mins from OSU James.
Good luck
Teri

No clinical trials for me but still see doctors a lot. Oncologist every 6 weeks neurologist and dematologist every 3 months. Luckily we only live about 45-60 mins from OSU James.
Good luck
Teri

My dr is a melanoma specialist. I’ve been on temodar for about 9 months and it seems to be working very well. I dont have many side affects at all and my labs have been great other than my platelets were low once but they bounced right back up. I haven’t been sick other than the common cold that was pretty much exactly like it was before I started all this. I haven’t had any new mets and there has been a little shrinkage in the spine. My neurologist is thinking that the spots on my mris are scar tissue. Unfortunately I am not braf pos. I’ve never been given a time. They’re hopeful that the radiation killed it but I just have to see it it grows again I guess. This whole melanoma thing is so confusing to me. Im a stage 4 but i do everything just like i did before im working and taking are of my almost 2 year old. Honestly sometimes i forget about the melanoma. You never know whats right or wrong with this stupid cancer.
How did you go about finding a trial?

My dr is a melanoma specialist. I’ve been on temodar for about 9 months and it seems to be working very well. I dont have many side affects at all and my labs have been great other than my platelets were low once but they bounced right back up. I haven’t been sick other than the common cold that was pretty much exactly like it was before I started all this. I haven’t had any new mets and there has been a little shrinkage in the spine. My neurologist is thinking that the spots on my mris are scar tissue. Unfortunately I am not braf pos. I’ve never been given a time. They’re hopeful that the radiation killed it but I just have to see it it grows again I guess. This whole melanoma thing is so confusing to me. Im a stage 4 but i do everything just like i did before im working and taking are of my almost 2 year old. Honestly sometimes i forget about the melanoma. You never know whats right or wrong with this stupid cancer.
How did you go about finding a trial?

My dr is a melanoma specialist. I’ve been on temodar for about 9 months and it seems to be working very well. I dont have many side affects at all and my labs have been great other than my platelets were low once but they bounced right back up. I haven’t been sick other than the common cold that was pretty much exactly like it was before I started all this. I haven’t had any new mets and there has been a little shrinkage in the spine. My neurologist is thinking that the spots on my mris are scar tissue. Unfortunately I am not braf pos. I’ve never been given a time. They’re hopeful that the radiation killed it but I just have to see it it grows again I guess. This whole melanoma thing is so confusing to me. Im a stage 4 but i do everything just like i did before im working and taking are of my almost 2 year old. Honestly sometimes i forget about the melanoma. You never know whats right or wrong with this stupid cancer.
How did you go about finding a trial?