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TerriNGa

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      TerriNGa
      Participant

        Thanks Barbie, I don't know if u remember me, But I use to go by the name Meme. Well, I'am back again with ole Mel. And I was just asking about sub q's. was wondering were u still around. Glad your still here, it seems to me that alot of the older posters aren't here anymore. Thanks so much for the pics.

        TerriNGa
        Participant

          Thanks Barbie, I don't know if u remember me, But I use to go by the name Meme. Well, I'am back again with ole Mel. And I was just asking about sub q's. was wondering were u still around. Glad your still here, it seems to me that alot of the older posters aren't here anymore. Thanks so much for the pics.

          TerriNGa
          Participant

            Thanks Barbie, I don't know if u remember me, But I use to go by the name Meme. Well, I'am back again with ole Mel. And I was just asking about sub q's. was wondering were u still around. Glad your still here, it seems to me that alot of the older posters aren't here anymore. Thanks so much for the pics.

            TerriNGa
            Participant

              Thanks Barbie, I don't know if u remember me, But I use to go by the name Meme. Well, I'am back again with ole Mel. And I was just asking about sub q's. was wondering were u still around. Glad your still here, it seems to me that alot of the older posters aren't here anymore. Thanks so much for the pics.

              TerriNGa
              Participant

                I always take notes, always have questions, If I don't understand something I keep asking until I do understand, plus my hubby goes with his notes & questions also. BUT we have only been to this Dr 1 time, when he stated that there was nothing he could do but to get me to NCI. He only does phone calls. Because he said that the PET/CT scans looked good,alone with the blood wk, and that he was sending the whole package to NCI. Thats why I called them myself, asked questions, and found out that I can't go up there till He gets the lung test done & I get whatever is under my arm checked out. Anyway thanks, Melanoma will have to be put on back burner till after my operation Nov.2 and then it looks like Me & hubby will have to get together to figure out what?where? to go from here.

                TerriNGa
                Participant

                  I always take notes, always have questions, If I don't understand something I keep asking until I do understand, plus my hubby goes with his notes & questions also. BUT we have only been to this Dr 1 time, when he stated that there was nothing he could do but to get me to NCI. He only does phone calls. Because he said that the PET/CT scans looked good,alone with the blood wk, and that he was sending the whole package to NCI. Thats why I called them myself, asked questions, and found out that I can't go up there till He gets the lung test done & I get whatever is under my arm checked out. Anyway thanks, Melanoma will have to be put on back burner till after my operation Nov.2 and then it looks like Me & hubby will have to get together to figure out what?where? to go from here.

                  TerriNGa
                  Participant

                    I always take notes, always have questions, If I don't understand something I keep asking until I do understand, plus my hubby goes with his notes & questions also. BUT we have only been to this Dr 1 time, when he stated that there was nothing he could do but to get me to NCI. He only does phone calls. Because he said that the PET/CT scans looked good,alone with the blood wk, and that he was sending the whole package to NCI. Thats why I called them myself, asked questions, and found out that I can't go up there till He gets the lung test done & I get whatever is under my arm checked out. Anyway thanks, Melanoma will have to be put on back burner till after my operation Nov.2 and then it looks like Me & hubby will have to get together to figure out what?where? to go from here.

                    TerriNGa
                    Participant

                      I always take notes, always have questions, If I don't understand something I keep asking until I do understand, plus my hubby goes with his notes & questions also. BUT we have only been to this Dr 1 time, when he stated that there was nothing he could do but to get me to NCI. He only does phone calls. Because he said that the PET/CT scans looked good,alone with the blood wk, and that he was sending the whole package to NCI. Thats why I called them myself, asked questions, and found out that I can't go up there till He gets the lung test done & I get whatever is under my arm checked out. Anyway thanks, Melanoma will have to be put on back burner till after my operation Nov.2 and then it looks like Me & hubby will have to get together to figure out what?where? to go from here.

                      TerriNGa
                      Participant

                        hey Jerry this is TerriNGa I just put everything down to Jerry from capecod, maybe if u feel like it u could read it also, and call me if u feel like it & see what my next step should be. Thank yall so very much. This all started at the age of 32 yrs old, now Iam 41 & looks like this maybe my biggest fight ever. my phone # is n the reply, don't know why it posted twice

                        TerriNGa
                        Participant

                          hey Jerry this is TerriNGa I just put everything down to Jerry from capecod, maybe if u feel like it u could read it also, and call me if u feel like it & see what my next step should be. Thank yall so very much. This all started at the age of 32 yrs old, now Iam 41 & looks like this maybe my biggest fight ever. my phone # is n the reply, don't know why it posted twice

                          TerriNGa
                          Participant

                            hey Jerry this is TerriNGa I just put everything down to Jerry from capecod, maybe if u feel like it u could read it also, and call me if u feel like it & see what my next step should be. Thank yall so very much. This all started at the age of 32 yrs old, now Iam 41 & looks like this maybe my biggest fight ever. my phone # is n the reply, don't know why it posted twice

                            TerriNGa
                            Participant

                              hey Jerry this is TerriNGa I just put everything down to Jerry from capecod, maybe if u feel like it u could read it also, and call me if u feel like it & see what my next step should be. Thank yall so very much. This all started at the age of 32 yrs old, now Iam 41 & looks like this maybe my biggest fight ever. my phone # is n the reply, don't know why it posted twice

                              TerriNGa
                              Participant

                                Hello Jerry, I had a CT alone with a PET scan. I typed n the Conclusion. This time I am gonna type the whole page and if u don't mind tell u alittle about what else is going on with me.My procedure was-NMD-PET CT IMAG FULL BODY CPT. reason for exam- MALIGNANT MELANOMA, FINDINGS: Melanoma, initial staging. There is a focus of hypermetabolic activity in seen in the region of the left armpit on image 107. There appears to be skin thickening in this area on corresponding CT exam. There is a focus of mild to moderate hypermetabolic activity seen in the region of anterior chest wall on image 127. No definite abnormality is seen in this area on corresponding CT exam.There is focus of hypermetabolic activity seen in the focal skin thickening of the suprapublic region on the left on image 242. There is focus of hypermetabolic activity seen in the muscle of the right anterior thigh on image 356 which probably represent normal physiologic activity. There is focus of hypermetabolic activity is seen in the inferior aspect of calcaneus bone on the right on image 115. There is spurring seen in this area on corresponding Ct exam.

                                  There are emphysematous changes seen in the lungs bilaterally. There is enlarged uterus which has multiple consistent with fibroids.

                                Conclusion was what I type n Help please!!. So here is whats going on now with me, and what got me back on this road again. I had a check up with my GYN, I knew about the enlarged Uterus(because I had a Vag. ultrasound) plus I had some tissuse removed from my Uterus to be tested for cancer, came back neg. for cancer, but Nov.2, I have a total hyster,including my ovaries removed.For other reasons also, heaving bleeding, pain, etc.

                                When we picked up my PET/ct dvds, & paperwork, we also dropped off a set with my cancer dr( that has told me from the beinging sept 24, that he or no other Dr here in Columbus, Ga can really do anything for me but try to get me somewhere, because no one here really knows anything about melanoma. so He has been the one telling me about this new trial at NCI that has very few side effects, and has a very high rate of stopping mel. My hubby spoke to the cancer dr. on wednesday about the results, he said then that maybe for my left underarm pit I should go to a infections diease Dr( Because at 1 time I had staff under my left arm pit, that no antibotics would take care of, at times it drains, green junk that smells like toe jam or worse,sometimes it drains something that looks like water, I did have a needle bio. done on it ,& what was in the needle looked like milk that had sat out for days,I asked would they be sending that off to be tested( said no that it was the same thing that was in my pubic hair area) They keep telling me they where abcesses, they did do a cotton swab culture on the pubic area and it came back to be to types of infections that were in my upper & lower intestions.( they said that everybody had these problesm)put on more antibotics. anyway I felt like this cancer dr was leading me on so I myself spoke with a team member at NCI, said they had nothing on me, and have not spoken to a Dr. Tidwell about me but that maybe he has been talking to the Dr. She did ask me a couple of questions about  my medical history, Do I smoke?(hate to say but yes, been trying to quit, been trying patch to electrion cig, to cold turkey. She told me then(NCI) that I could not come up there for this treatment because I needed some lung test, and I need to see what type of infection is under my armpit, and that my cancer dr, should have told me all this if he had really been talking to someone at NCI. I feel like Iam getting alot of run around, don't know what else to do, scared. I don't know if i can do this, or if u would do this But is there anyway u can call me or I can call u, if u feel up to it, so much easy to talk then type to me. My number is 706-289-4999, cell # that is unlimited calls. Thanks so much for helping me out.

                                TerriNGa
                                Participant

                                  Hello Jerry, I had a CT alone with a PET scan. I typed n the Conclusion. This time I am gonna type the whole page and if u don't mind tell u alittle about what else is going on with me.My procedure was-NMD-PET CT IMAG FULL BODY CPT. reason for exam- MALIGNANT MELANOMA, FINDINGS: Melanoma, initial staging. There is a focus of hypermetabolic activity in seen in the region of the left armpit on image 107. There appears to be skin thickening in this area on corresponding CT exam. There is a focus of mild to moderate hypermetabolic activity seen in the region of anterior chest wall on image 127. No definite abnormality is seen in this area on corresponding CT exam.There is focus of hypermetabolic activity seen in the focal skin thickening of the suprapublic region on the left on image 242. There is focus of hypermetabolic activity seen in the muscle of the right anterior thigh on image 356 which probably represent normal physiologic activity. There is focus of hypermetabolic activity is seen in the inferior aspect of calcaneus bone on the right on image 115. There is spurring seen in this area on corresponding Ct exam.

                                    There are emphysematous changes seen in the lungs bilaterally. There is enlarged uterus which has multiple consistent with fibroids.

                                  Conclusion was what I type n Help please!!. So here is whats going on now with me, and what got me back on this road again. I had a check up with my GYN, I knew about the enlarged Uterus(because I had a Vag. ultrasound) plus I had some tissuse removed from my Uterus to be tested for cancer, came back neg. for cancer, but Nov.2, I have a total hyster,including my ovaries removed.For other reasons also, heaving bleeding, pain, etc.

                                  When we picked up my PET/ct dvds, & paperwork, we also dropped off a set with my cancer dr( that has told me from the beinging sept 24, that he or no other Dr here in Columbus, Ga can really do anything for me but try to get me somewhere, because no one here really knows anything about melanoma. so He has been the one telling me about this new trial at NCI that has very few side effects, and has a very high rate of stopping mel. My hubby spoke to the cancer dr. on wednesday about the results, he said then that maybe for my left underarm pit I should go to a infections diease Dr( Because at 1 time I had staff under my left arm pit, that no antibotics would take care of, at times it drains, green junk that smells like toe jam or worse,sometimes it drains something that looks like water, I did have a needle bio. done on it ,& what was in the needle looked like milk that had sat out for days,I asked would they be sending that off to be tested( said no that it was the same thing that was in my pubic hair area) They keep telling me they where abcesses, they did do a cotton swab culture on the pubic area and it came back to be to types of infections that were in my upper & lower intestions.( they said that everybody had these problesm)put on more antibotics. anyway I felt like this cancer dr was leading me on so I myself spoke with a team member at NCI, said they had nothing on me, and have not spoken to a Dr. Tidwell about me but that maybe he has been talking to the Dr. She did ask me a couple of questions about  my medical history, Do I smoke?(hate to say but yes, been trying to quit, been trying patch to electrion cig, to cold turkey. She told me then(NCI) that I could not come up there for this treatment because I needed some lung test, and I need to see what type of infection is under my armpit, and that my cancer dr, should have told me all this if he had really been talking to someone at NCI. I feel like Iam getting alot of run around, don't know what else to do, scared. I don't know if i can do this, or if u would do this But is there anyway u can call me or I can call u, if u feel up to it, so much easy to talk then type to me. My number is 706-289-4999, cell # that is unlimited calls. Thanks so much for helping me out.

                                  TerriNGa
                                  Participant

                                    Hello Jerry, I had a CT alone with a PET scan. I typed n the Conclusion. This time I am gonna type the whole page and if u don't mind tell u alittle about what else is going on with me.My procedure was-NMD-PET CT IMAG FULL BODY CPT. reason for exam- MALIGNANT MELANOMA, FINDINGS: Melanoma, initial staging. There is a focus of hypermetabolic activity in seen in the region of the left armpit on image 107. There appears to be skin thickening in this area on corresponding CT exam. There is a focus of mild to moderate hypermetabolic activity seen in the region of anterior chest wall on image 127. No definite abnormality is seen in this area on corresponding CT exam.There is focus of hypermetabolic activity seen in the focal skin thickening of the suprapublic region on the left on image 242. There is focus of hypermetabolic activity seen in the muscle of the right anterior thigh on image 356 which probably represent normal physiologic activity. There is focus of hypermetabolic activity is seen in the inferior aspect of calcaneus bone on the right on image 115. There is spurring seen in this area on corresponding Ct exam.

                                      There are emphysematous changes seen in the lungs bilaterally. There is enlarged uterus which has multiple consistent with fibroids.

                                    Conclusion was what I type n Help please!!. So here is whats going on now with me, and what got me back on this road again. I had a check up with my GYN, I knew about the enlarged Uterus(because I had a Vag. ultrasound) plus I had some tissuse removed from my Uterus to be tested for cancer, came back neg. for cancer, but Nov.2, I have a total hyster,including my ovaries removed.For other reasons also, heaving bleeding, pain, etc.

                                    When we picked up my PET/ct dvds, & paperwork, we also dropped off a set with my cancer dr( that has told me from the beinging sept 24, that he or no other Dr here in Columbus, Ga can really do anything for me but try to get me somewhere, because no one here really knows anything about melanoma. so He has been the one telling me about this new trial at NCI that has very few side effects, and has a very high rate of stopping mel. My hubby spoke to the cancer dr. on wednesday about the results, he said then that maybe for my left underarm pit I should go to a infections diease Dr( Because at 1 time I had staff under my left arm pit, that no antibotics would take care of, at times it drains, green junk that smells like toe jam or worse,sometimes it drains something that looks like water, I did have a needle bio. done on it ,& what was in the needle looked like milk that had sat out for days,I asked would they be sending that off to be tested( said no that it was the same thing that was in my pubic hair area) They keep telling me they where abcesses, they did do a cotton swab culture on the pubic area and it came back to be to types of infections that were in my upper & lower intestions.( they said that everybody had these problesm)put on more antibotics. anyway I felt like this cancer dr was leading me on so I myself spoke with a team member at NCI, said they had nothing on me, and have not spoken to a Dr. Tidwell about me but that maybe he has been talking to the Dr. She did ask me a couple of questions about  my medical history, Do I smoke?(hate to say but yes, been trying to quit, been trying patch to electrion cig, to cold turkey. She told me then(NCI) that I could not come up there for this treatment because I needed some lung test, and I need to see what type of infection is under my armpit, and that my cancer dr, should have told me all this if he had really been talking to someone at NCI. I feel like Iam getting alot of run around, don't know what else to do, scared. I don't know if i can do this, or if u would do this But is there anyway u can call me or I can call u, if u feel up to it, so much easy to talk then type to me. My number is 706-289-4999, cell # that is unlimited calls. Thanks so much for helping me out.

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