tony

Hi Judy,

I did a lot of research on various alternative therapies and nutrition. It quickly became aparent that it would not be possible to take every supplement and every berry, mushroom, and herbal extract touted as potentially helpful. In the end I visited a Naturpath who has spent 25 years testing supplements and extracts for their potential as cancer therapies. He put together an all natural protocol for me to follow. This involves approx 30 supplements and diet on a daily basis for 6 months. As both my oncologists (one in UK and one in India) both say that chemo is not an option (at my stage as an adjuvent therapy) and Interferon is no longer considered useful either, this is pretty much the only option apart from clinical trials.

There are clinical trials looking at various approved stage IV drugs as an adjuvent therapies for stage III resected patients. I think I posted links above. If not let me know and I'll post them again. Of course there is no way of knowing if these drugs will have any benefit to your daughter and there is every possibility that they will make her very sick for a long time due to the toxicity. This is one of the reasons that I opted for the natural protocol instead. The other reason was that I would have had to return to the UK to participate and leave my family behind in India. If I had been resident in the UK maybe my decision might have been different?

I could email you the natural protocol if you like. I'm not sure if you can send me a personal mail on this forum – if you can please get in contact if you'd like a copy. However, I would recommend that you find a doctor or qualified practitioner who could make your daughter a similar protocol but tailored to her nutritional and immune deficiencies and physiology. Patrick Quillan lists such doctors in the US at the back of his excellent book "Beating Cancer With Nutrition".

The most important thing is to stay positive and beleive that you are in control. Tell your daughter, "Do not let it define you".

Good luck and stay strong.

Tony

Hi Judy,

I did a lot of research on various alternative therapies and nutrition. It quickly became aparent that it would not be possible to take every supplement and every berry, mushroom, and herbal extract touted as potentially helpful. In the end I visited a Naturpath who has spent 25 years testing supplements and extracts for their potential as cancer therapies. He put together an all natural protocol for me to follow. This involves approx 30 supplements and diet on a daily basis for 6 months. As both my oncologists (one in UK and one in India) both say that chemo is not an option (at my stage as an adjuvent therapy) and Interferon is no longer considered useful either, this is pretty much the only option apart from clinical trials.

There are clinical trials looking at various approved stage IV drugs as an adjuvent therapies for stage III resected patients. I think I posted links above. If not let me know and I'll post them again. Of course there is no way of knowing if these drugs will have any benefit to your daughter and there is every possibility that they will make her very sick for a long time due to the toxicity. This is one of the reasons that I opted for the natural protocol instead. The other reason was that I would have had to return to the UK to participate and leave my family behind in India. If I had been resident in the UK maybe my decision might have been different?

I could email you the natural protocol if you like. I'm not sure if you can send me a personal mail on this forum – if you can please get in contact if you'd like a copy. However, I would recommend that you find a doctor or qualified practitioner who could make your daughter a similar protocol but tailored to her nutritional and immune deficiencies and physiology. Patrick Quillan lists such doctors in the US at the back of his excellent book "Beating Cancer With Nutrition".

The most important thing is to stay positive and beleive that you are in control. Tell your daughter, "Do not let it define you".

Good luck and stay strong.

Tony

Hi Judy,

I did a lot of research on various alternative therapies and nutrition. It quickly became aparent that it would not be possible to take every supplement and every berry, mushroom, and herbal extract touted as potentially helpful. In the end I visited a Naturpath who has spent 25 years testing supplements and extracts for their potential as cancer therapies. He put together an all natural protocol for me to follow. This involves approx 30 supplements and diet on a daily basis for 6 months. As both my oncologists (one in UK and one in India) both say that chemo is not an option (at my stage as an adjuvent therapy) and Interferon is no longer considered useful either, this is pretty much the only option apart from clinical trials.

There are clinical trials looking at various approved stage IV drugs as an adjuvent therapies for stage III resected patients. I think I posted links above. If not let me know and I'll post them again. Of course there is no way of knowing if these drugs will have any benefit to your daughter and there is every possibility that they will make her very sick for a long time due to the toxicity. This is one of the reasons that I opted for the natural protocol instead. The other reason was that I would have had to return to the UK to participate and leave my family behind in India. If I had been resident in the UK maybe my decision might have been different?

I could email you the natural protocol if you like. I'm not sure if you can send me a personal mail on this forum – if you can please get in contact if you'd like a copy. However, I would recommend that you find a doctor or qualified practitioner who could make your daughter a similar protocol but tailored to her nutritional and immune deficiencies and physiology. Patrick Quillan lists such doctors in the US at the back of his excellent book "Beating Cancer With Nutrition".

The most important thing is to stay positive and beleive that you are in control. Tell your daughter, "Do not let it define you".

Good luck and stay strong.

Tony

Hi,

Its taken a while but I have finally come to a decision which I thought I would post here in case its helpful for anyone in the same boat. My Onc in Mumbai does not recommend Interferon which is the way I was leaning anyway.

We sought a second opinion from a Consultant at Mount Vernon in the UK. He said it might be worth considering the adjuvent Dabrafenib / Trametinib combi trial… http://clinicaltrials.gov/ct2/show/NCT01682083?term=combi-ad&rank=1

While researching trials I also found the adjuvent Zelboraf trial… http://clinicaltrials.gov/ct2/show/NCT01667419?term=NCT01667419&rank=1

As participation in both of these would have involved leaving my family and relocating to the UK for at least 12 months, and both are double blind placebo controlled, I decided against it. Also worth considering is that among the numerous side effects of both is Squamous Cell Skin Cancer!! I read somewhere aprox 1 in 4 suffer this side effect. It seems a little bizare to offer these drugs as an adjuvent therapy. In essence I would have been taking a Skin cancer therapy when I have no evidence of skin cancer that could give me skin cancer??! I'm not knocking these new breakthrough drugs as I'm sure that, if and when I progress to stage IV, I will be glad to take my chances with these side effects.

For those that are interested in Alternative therapies, as well as orthadox medicine, here are a few links you might find useful…

Searchable reference section… http://www.yestolife.org.uk/

Free feature length film… http://canceriscurablenow.tv

Good read… http://www.amazon.co.uk/Beating-Cancer-Nutrition-Medically-Treated-Patients/dp/096383729X/ref=sr_1_1?s=books&ie=UTF8&qid=1361440758&sr=1-1

A patients research… http://www.self-helpcancer.org/

Supposedly the best vitamins – decide for yourself… http://www.xtend-life.com/

Tested supplement… http://www.salvestrol.ca/index.asp

Vital supplement… http://www.highernature.co.uk/ShowProductFamily.aspx?ProductFamilyID=258

All the best, Tony

Hi,

Its taken a while but I have finally come to a decision which I thought I would post here in case its helpful for anyone in the same boat. My Onc in Mumbai does not recommend Interferon which is the way I was leaning anyway.

We sought a second opinion from a Consultant at Mount Vernon in the UK. He said it might be worth considering the adjuvent Dabrafenib / Trametinib combi trial… http://clinicaltrials.gov/ct2/show/NCT01682083?term=combi-ad&rank=1

While researching trials I also found the adjuvent Zelboraf trial… http://clinicaltrials.gov/ct2/show/NCT01667419?term=NCT01667419&rank=1

As participation in both of these would have involved leaving my family and relocating to the UK for at least 12 months, and both are double blind placebo controlled, I decided against it. Also worth considering is that among the numerous side effects of both is Squamous Cell Skin Cancer!! I read somewhere aprox 1 in 4 suffer this side effect. It seems a little bizare to offer these drugs as an adjuvent therapy. In essence I would have been taking a Skin cancer therapy when I have no evidence of skin cancer that could give me skin cancer??! I'm not knocking these new breakthrough drugs as I'm sure that, if and when I progress to stage IV, I will be glad to take my chances with these side effects.

For those that are interested in Alternative therapies, as well as orthadox medicine, here are a few links you might find useful…

Searchable reference section… http://www.yestolife.org.uk/

Free feature length film… http://canceriscurablenow.tv

Good read… http://www.amazon.co.uk/Beating-Cancer-Nutrition-Medically-Treated-Patients/dp/096383729X/ref=sr_1_1?s=books&ie=UTF8&qid=1361440758&sr=1-1

A patients research… http://www.self-helpcancer.org/

Supposedly the best vitamins – decide for yourself… http://www.xtend-life.com/

Tested supplement… http://www.salvestrol.ca/index.asp

Vital supplement… http://www.highernature.co.uk/ShowProductFamily.aspx?ProductFamilyID=258

All the best, Tony

Hi,

Its taken a while but I have finally come to a decision which I thought I would post here in case its helpful for anyone in the same boat. My Onc in Mumbai does not recommend Interferon which is the way I was leaning anyway.

We sought a second opinion from a Consultant at Mount Vernon in the UK. He said it might be worth considering the adjuvent Dabrafenib / Trametinib combi trial… http://clinicaltrials.gov/ct2/show/NCT01682083?term=combi-ad&rank=1

While researching trials I also found the adjuvent Zelboraf trial… http://clinicaltrials.gov/ct2/show/NCT01667419?term=NCT01667419&rank=1

As participation in both of these would have involved leaving my family and relocating to the UK for at least 12 months, and both are double blind placebo controlled, I decided against it. Also worth considering is that among the numerous side effects of both is Squamous Cell Skin Cancer!! I read somewhere aprox 1 in 4 suffer this side effect. It seems a little bizare to offer these drugs as an adjuvent therapy. In essence I would have been taking a Skin cancer therapy when I have no evidence of skin cancer that could give me skin cancer??! I'm not knocking these new breakthrough drugs as I'm sure that, if and when I progress to stage IV, I will be glad to take my chances with these side effects.

For those that are interested in Alternative therapies, as well as orthadox medicine, here are a few links you might find useful…

Searchable reference section… http://www.yestolife.org.uk/

Free feature length film… http://canceriscurablenow.tv

Good read… http://www.amazon.co.uk/Beating-Cancer-Nutrition-Medically-Treated-Patients/dp/096383729X/ref=sr_1_1?s=books&ie=UTF8&qid=1361440758&sr=1-1

A patients research… http://www.self-helpcancer.org/

Supposedly the best vitamins – decide for yourself… http://www.xtend-life.com/

Tested supplement… http://www.salvestrol.ca/index.asp

Vital supplement… http://www.highernature.co.uk/ShowProductFamily.aspx?ProductFamilyID=258

All the best, Tony

Hey Gordsmate

There was a Greek trial to determine the efficacy of 1 month vs 12 months IFN. There was some controversy about the control arms in the trial but they conculed there was no dicernable difference between the two regimens.

http://jco.ascopubs.org/content/27/6/939.full.pdf

If you decide not to go ahead with any further treatment at your stage there are natural options to persue so you should not feel like there is nothing you can do to avoid a recurrance. There is plenty you can do without any adverse side-effects. You can persue these routes alongside any allopathic treatment…

Hey Gordsmate

There was a Greek trial to determine the efficacy of 1 month vs 12 months IFN. There was some controversy about the control arms in the trial but they conculed there was no dicernable difference between the two regimens.

http://jco.ascopubs.org/content/27/6/939.full.pdf

If you decide not to go ahead with any further treatment at your stage there are natural options to persue so you should not feel like there is nothing you can do to avoid a recurrance. There is plenty you can do without any adverse side-effects. You can persue these routes alongside any allopathic treatment…

Hey Gordsmate

There was a Greek trial to determine the efficacy of 1 month vs 12 months IFN. There was some controversy about the control arms in the trial but they conculed there was no dicernable difference between the two regimens.

http://jco.ascopubs.org/content/27/6/939.full.pdf

If you decide not to go ahead with any further treatment at your stage there are natural options to persue so you should not feel like there is nothing you can do to avoid a recurrance. There is plenty you can do without any adverse side-effects. You can persue these routes alongside any allopathic treatment…

Hi All,

Just checking in to thank you all for your valuable contribution to my decision making process. Honestly, your responses have been incredibly helpful. While doing my research I found the following links really helpful…

For people in the UK (but also a ton of info useful to all)….

http://www.nhs.uk/ipg/Pages/IPCreate.aspx?conditionid=387

For up-to-date treatment info….

http://www.uptodate.com/contents/overview-of-the-management-of-advanced-melanoma?source=see_link

For up-to-date Ipilimumab info….

http://www.uptodate.com/contents/advanced-melanoma-anti-ctla-4-antibodies-and-other-immune-checkpoint-strategies

For info on trials, current, and past with results…

http://www.cancerresearchuk.org/cancer-help/trials/

Summary of Interferon trials – pros & cons of it's adjuvent use…

http://theoncologist.alphamedpress.org/content/8/5/451.full

Hopefully these might be useful to someone.

Tony

Hi All,

Just checking in to thank you all for your valuable contribution to my decision making process. Honestly, your responses have been incredibly helpful. While doing my research I found the following links really helpful…

For people in the UK (but also a ton of info useful to all)….

http://www.nhs.uk/ipg/Pages/IPCreate.aspx?conditionid=387

For up-to-date treatment info….

http://www.uptodate.com/contents/overview-of-the-management-of-advanced-melanoma?source=see_link

For up-to-date Ipilimumab info….

http://www.uptodate.com/contents/advanced-melanoma-anti-ctla-4-antibodies-and-other-immune-checkpoint-strategies

For info on trials, current, and past with results…

http://www.cancerresearchuk.org/cancer-help/trials/

Summary of Interferon trials – pros & cons of it's adjuvent use…

http://theoncologist.alphamedpress.org/content/8/5/451.full

Hopefully these might be useful to someone.

Tony

Hi All,

Just checking in to thank you all for your valuable contribution to my decision making process. Honestly, your responses have been incredibly helpful. While doing my research I found the following links really helpful…

For people in the UK (but also a ton of info useful to all)….

http://www.nhs.uk/ipg/Pages/IPCreate.aspx?conditionid=387

For up-to-date treatment info….

http://www.uptodate.com/contents/overview-of-the-management-of-advanced-melanoma?source=see_link

For up-to-date Ipilimumab info….

http://www.uptodate.com/contents/advanced-melanoma-anti-ctla-4-antibodies-and-other-immune-checkpoint-strategies

For info on trials, current, and past with results…

http://www.cancerresearchuk.org/cancer-help/trials/

Summary of Interferon trials – pros & cons of it's adjuvent use…

http://theoncologist.alphamedpress.org/content/8/5/451.full

Hopefully these might be useful to someone.

Tony

Hi Carole – fantastic news that you are 12 years NED from stage IV. Amazing. Congratulations! We all need news like that. It helps to keep us all positive. Thanks for sharing.

I am really interested in natural remedies and therapies. I've radically altered my diet and started on wheatgrass, spirulina, graviola, green tea etc etc… I also had my first EFT session this week which really lifted my mood and made me feel more positive (even after initial sceptisism).

Did you get through your brain and lung mets with alternative treatment?

Thanks again,

Tony

Hi Carole – fantastic news that you are 12 years NED from stage IV. Amazing. Congratulations! We all need news like that. It helps to keep us all positive. Thanks for sharing.

I am really interested in natural remedies and therapies. I've radically altered my diet and started on wheatgrass, spirulina, graviola, green tea etc etc… I also had my first EFT session this week which really lifted my mood and made me feel more positive (even after initial sceptisism).

Did you get through your brain and lung mets with alternative treatment?

Thanks again,

Tony

Hi Carole – fantastic news that you are 12 years NED from stage IV. Amazing. Congratulations! We all need news like that. It helps to keep us all positive. Thanks for sharing.

I am really interested in natural remedies and therapies. I've radically altered my diet and started on wheatgrass, spirulina, graviola, green tea etc etc… I also had my first EFT session this week which really lifted my mood and made me feel more positive (even after initial sceptisism).

Did you get through your brain and lung mets with alternative treatment?

Thanks again,

Tony