Tracey

Hi Carolyn,

I'm sorry to hear you are having this ordeal. My husband was diagnosed with a metastatic melanoma this summer after 3 months of severe symptoms and 7 trips to ER.  15 years ago my husband had a 'bad' mole removed and the doctor was 99% sure he had removed all of it. (Guess not.) My husband tested positive for the B RAF gene mutation and is currently receiving Vemurafenib, and is responding well to it. We are in Kelowna and I would be open to meeting with you for a coffee and talk over our unfortunate common experience, if you like. I'll admit I feel weird about forums and am not sure how to proceed from here.

CT scans are so helpful but an MRI is safer and more detailed, from my understanding. I know for me, I want to know everything about my husband's condition so we can fight the strongest fight.

Wishing you a 100% recovery!

Tracey

Hi Carolyn,

I'm sorry to hear you are having this ordeal. My husband was diagnosed with a metastatic melanoma this summer after 3 months of severe symptoms and 7 trips to ER.  15 years ago my husband had a 'bad' mole removed and the doctor was 99% sure he had removed all of it. (Guess not.) My husband tested positive for the B RAF gene mutation and is currently receiving Vemurafenib, and is responding well to it. We are in Kelowna and I would be open to meeting with you for a coffee and talk over our unfortunate common experience, if you like. I'll admit I feel weird about forums and am not sure how to proceed from here.

CT scans are so helpful but an MRI is safer and more detailed, from my understanding. I know for me, I want to know everything about my husband's condition so we can fight the strongest fight.

Wishing you a 100% recovery!

Tracey

Hi Carolyn,

I'm sorry to hear you are having this ordeal. My husband was diagnosed with a metastatic melanoma this summer after 3 months of severe symptoms and 7 trips to ER.  15 years ago my husband had a 'bad' mole removed and the doctor was 99% sure he had removed all of it. (Guess not.) My husband tested positive for the B RAF gene mutation and is currently receiving Vemurafenib, and is responding well to it. We are in Kelowna and I would be open to meeting with you for a coffee and talk over our unfortunate common experience, if you like. I'll admit I feel weird about forums and am not sure how to proceed from here.

CT scans are so helpful but an MRI is safer and more detailed, from my understanding. I know for me, I want to know everything about my husband's condition so we can fight the strongest fight.

Wishing you a 100% recovery!

Tracey

Hi Claudia,

I know, I have been in your position. We lived in Vancouver at the time of my husband's diagnosis (stage 4 leptomeningial melanoma) and he received treatment at the BCCA. There are a few things you can do. The first and very valueable piece of advice I received was say yes to everything and research it, and go with your heart. Meet with the oncologist and see what they have to say and get that referral going in the event you are not satisfied with what they have to say. You can email me at [email protected] and I would be very happy to share my experience in Vancouver with you. Inspire Health in Vancouver is a fabulous organization with a wealth of resources and they really helped to empower us during our journey. Also, Carolyn, who is on this board has a great page on facebook with loads of good info 'Dodged a bullet' (awesome work Carolyn!). 

I am very sorry you and your husband are in this situation. It's very a uncomfortable position to be in and, quite frankly, it sucks. But keep positive for it makes all the difference.

Best regards,

Tracey

Hi Claudia,

I know, I have been in your position. We lived in Vancouver at the time of my husband's diagnosis (stage 4 leptomeningial melanoma) and he received treatment at the BCCA. There are a few things you can do. The first and very valueable piece of advice I received was say yes to everything and research it, and go with your heart. Meet with the oncologist and see what they have to say and get that referral going in the event you are not satisfied with what they have to say. You can email me at [email protected] and I would be very happy to share my experience in Vancouver with you. Inspire Health in Vancouver is a fabulous organization with a wealth of resources and they really helped to empower us during our journey. Also, Carolyn, who is on this board has a great page on facebook with loads of good info 'Dodged a bullet' (awesome work Carolyn!). 

I am very sorry you and your husband are in this situation. It's very a uncomfortable position to be in and, quite frankly, it sucks. But keep positive for it makes all the difference.

Best regards,

Tracey

Hi Claudia,

I know, I have been in your position. We lived in Vancouver at the time of my husband's diagnosis (stage 4 leptomeningial melanoma) and he received treatment at the BCCA. There are a few things you can do. The first and very valueable piece of advice I received was say yes to everything and research it, and go with your heart. Meet with the oncologist and see what they have to say and get that referral going in the event you are not satisfied with what they have to say. You can email me at [email protected] and I would be very happy to share my experience in Vancouver with you. Inspire Health in Vancouver is a fabulous organization with a wealth of resources and they really helped to empower us during our journey. Also, Carolyn, who is on this board has a great page on facebook with loads of good info 'Dodged a bullet' (awesome work Carolyn!). 

I am very sorry you and your husband are in this situation. It's very a uncomfortable position to be in and, quite frankly, it sucks. But keep positive for it makes all the difference.

Best regards,

Tracey