@tracyr
Forum Replies Created
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- August 5, 2012 at 10:29 pm
Ali,
Sending you prayers and good wishes. I’m stage IV since early 2011. I’m currently on CT-011 anti-pd1 trial. My first scan showed 20% reduction in a soft tissue met in my pelvis. Since then I’ve been “stable” small progression without spreading. This disease can be frustrating but don’t give up. My last scan again showed a reduction in my pelvic met with slight increases in some nearby nodes. Everyone’s body is different and finding what works for you may be right around the corner!
God bless you! You are not alone in this fight! -
- August 5, 2012 at 10:29 pm
Ali,
Sending you prayers and good wishes. I’m stage IV since early 2011. I’m currently on CT-011 anti-pd1 trial. My first scan showed 20% reduction in a soft tissue met in my pelvis. Since then I’ve been “stable” small progression without spreading. This disease can be frustrating but don’t give up. My last scan again showed a reduction in my pelvic met with slight increases in some nearby nodes. Everyone’s body is different and finding what works for you may be right around the corner!
God bless you! You are not alone in this fight! -
- August 5, 2012 at 10:29 pm
Ali,
Sending you prayers and good wishes. I’m stage IV since early 2011. I’m currently on CT-011 anti-pd1 trial. My first scan showed 20% reduction in a soft tissue met in my pelvis. Since then I’ve been “stable” small progression without spreading. This disease can be frustrating but don’t give up. My last scan again showed a reduction in my pelvic met with slight increases in some nearby nodes. Everyone’s body is different and finding what works for you may be right around the corner!
God bless you! You are not alone in this fight! -
- May 14, 2012 at 6:37 am
My first 8 week scan showed 20% tumor reduction. I’m on CT-011 and go for another scan in 3 weeks.-
- May 21, 2012 at 6:28 pm
Hi there Jonathan,
You got most of my history correct, except early in 2011 we discovered a soft tissue tumor in my pelvis which is inoperable.
After Ipi I did the B-RAF inhibitor and it worked wonders on my tumor! I had a lot of difficulty with side effects then I had tumor progression.
I believe I was one of the last people to enter the Anti-PD1 trial at Nashville and then the study closed (stopped accruing patients).
I think my minimal (not even partial) response was quite a surprise to me and my medical team! We were not really expecting it. The location of my tumor is such that I can feel it when it's bigger and smaller so I really already knew the scan would confirm that it had reduced in size.
I'm not sure how the other 13 or so are doing.
All I know is there sometimes is no clear explanation of why a drug works and why it doesn't. My friend in AZ is one of the only responders to Sorafanib. She's maintained stable tumors for 5 years!
Prayer works and keeping a positive attitude and knowing that God is the driver on this highway helps a great deal!!!
May God bless and keep you!
Tracy
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- May 21, 2012 at 6:28 pm
Hi there Jonathan,
You got most of my history correct, except early in 2011 we discovered a soft tissue tumor in my pelvis which is inoperable.
After Ipi I did the B-RAF inhibitor and it worked wonders on my tumor! I had a lot of difficulty with side effects then I had tumor progression.
I believe I was one of the last people to enter the Anti-PD1 trial at Nashville and then the study closed (stopped accruing patients).
I think my minimal (not even partial) response was quite a surprise to me and my medical team! We were not really expecting it. The location of my tumor is such that I can feel it when it's bigger and smaller so I really already knew the scan would confirm that it had reduced in size.
I'm not sure how the other 13 or so are doing.
All I know is there sometimes is no clear explanation of why a drug works and why it doesn't. My friend in AZ is one of the only responders to Sorafanib. She's maintained stable tumors for 5 years!
Prayer works and keeping a positive attitude and knowing that God is the driver on this highway helps a great deal!!!
May God bless and keep you!
Tracy
-
- May 21, 2012 at 6:28 pm
Hi there Jonathan,
You got most of my history correct, except early in 2011 we discovered a soft tissue tumor in my pelvis which is inoperable.
After Ipi I did the B-RAF inhibitor and it worked wonders on my tumor! I had a lot of difficulty with side effects then I had tumor progression.
I believe I was one of the last people to enter the Anti-PD1 trial at Nashville and then the study closed (stopped accruing patients).
I think my minimal (not even partial) response was quite a surprise to me and my medical team! We were not really expecting it. The location of my tumor is such that I can feel it when it's bigger and smaller so I really already knew the scan would confirm that it had reduced in size.
I'm not sure how the other 13 or so are doing.
All I know is there sometimes is no clear explanation of why a drug works and why it doesn't. My friend in AZ is one of the only responders to Sorafanib. She's maintained stable tumors for 5 years!
Prayer works and keeping a positive attitude and knowing that God is the driver on this highway helps a great deal!!!
May God bless and keep you!
Tracy
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