Forum Replies Created
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- March 31, 2017 at 4:58 am
The whole thing is so new and unexpected for me it all arose this year…When I went to the emergency unable to eat and drink and with pain in the back and a bloated abdomen I was guessing almost everything else but not cancer. Now when I read the symptoms about ovarian cancer see that they are the same. But you're right it could be melanoma on the ovaries although if it is not it wont be probably stage IV melanoma. (I mean it will be probably better)
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- May 21, 2017 at 5:54 pm
Thanks for the reply snd encouragement from the Football Player. God bless you too buddy!
About the second commend: hey there is no despair in my home. And I'm not asking why me?! Nobody has to suffer like this of course. But some facts snd questions shouldn't be ignore to prevent cancer killing us further.
And I am still refused an immunotherapy probably because of its price…But still I think I can survive, although mets and pain in the spine and some bones.
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- April 16, 2017 at 9:08 pm
I was having veey recent, heavy periods before going to the emergency and being diagnosed. But there were also cysts on the ovaries. However since I'm on the Taf/Mek combo I have no menstrual cycles what makes me happy actually. And was wondering if somebody else experienced the same side effect?
Btw. some of my moles were also removed for aesthetic reasons without biopsy checks and was wondering if this could be the reason for the melanoma.
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- April 3, 2017 at 5:57 pm
Btw do you know what the following (from the liver biopsy) means:
replacement by the liver tissue by a malignant tumor comprising sheets of neoplastic epithelioid cells
Diffuse positive staining within the tumor for S100 and focal positivity for HMB45 and MelanA. There is no staining with AE1/3, Ber EP4, glypican 3 and Hep Psr 1.
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- April 3, 2017 at 5:41 pm
The doctor is a melanoma oncologist but I'm in Belfast and there aren't many specialists. The first night in the cancer center the consultants came to me and behaved like I'm already dead and didn't want to give me any hope. Good that I'm not easily scared but someone else could take it really bad.
Thanks God there is the internet to see that there're many people that survived more than just a couple of months although stage IV. I read about the immunotherapy on the web. The doctors here haven't mentioned anything about it. On the other hand when you feel like you survived the impossible it gives you some extra happiness and selfesteem.
The diagnosis is based on the liver biopsy says malignant melanoma.
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- April 2, 2017 at 6:44 pm
Hi Niki,
I'm happy that you are doing well now!
Seems that you're very familiar with the subject.
Something else I was thinking about the immunotherapy. The taf/MEK medicines are good but from what I read IFN-α2b and IL-2 are working better for stage 4 melanoma. Do you know something about it?