@whitemeredith7
Forum Replies Created
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- February 5, 2017 at 11:18 pm
I picked up a book called ‘Anti-Cancer: A New Way of Life’ and have found it to be very helpful towards understanding the mechanisms behind the disease, as well as lifestyle choices that can help support traditional therapies. It was written by a research oncologist who ended up with brain cancer, and he had a difficult time finding advice on diet/exercise/lifestyle from the oncologists who treated him as a patient.Personally, I’m following a Mediterranean/anti-inflammatory type diet, improving my omega-3 to omega-6 ratio, eating lots of probiotic foods, and choosing minimally processed foods as much as possible. The only supplememts I take are vitamin D, turmeric (use liberally in cooking too), and fish oil.
That said…I definitely leave room for Ben & Jerry a couple times a week! 🙂
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- February 5, 2017 at 11:18 pm
I picked up a book called ‘Anti-Cancer: A New Way of Life’ and have found it to be very helpful towards understanding the mechanisms behind the disease, as well as lifestyle choices that can help support traditional therapies. It was written by a research oncologist who ended up with brain cancer, and he had a difficult time finding advice on diet/exercise/lifestyle from the oncologists who treated him as a patient.Personally, I’m following a Mediterranean/anti-inflammatory type diet, improving my omega-3 to omega-6 ratio, eating lots of probiotic foods, and choosing minimally processed foods as much as possible. The only supplememts I take are vitamin D, turmeric (use liberally in cooking too), and fish oil.
That said…I definitely leave room for Ben & Jerry a couple times a week! 🙂
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- February 5, 2017 at 11:18 pm
I picked up a book called ‘Anti-Cancer: A New Way of Life’ and have found it to be very helpful towards understanding the mechanisms behind the disease, as well as lifestyle choices that can help support traditional therapies. It was written by a research oncologist who ended up with brain cancer, and he had a difficult time finding advice on diet/exercise/lifestyle from the oncologists who treated him as a patient.Personally, I’m following a Mediterranean/anti-inflammatory type diet, improving my omega-3 to omega-6 ratio, eating lots of probiotic foods, and choosing minimally processed foods as much as possible. The only supplememts I take are vitamin D, turmeric (use liberally in cooking too), and fish oil.
That said…I definitely leave room for Ben & Jerry a couple times a week! 🙂
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- January 5, 2017 at 9:24 pm
Terrie,
Sorry to hear about your friend's troubles. I had the exact same scenario, grade 4 (4.5 if you ask my onc) ipi-induced colitis after 2 doses. After a couple weeks back and forth at the ER with pain, diarrhea, etc, I landed in the hospital for 9 days. 7 days on IV steroids couldn't get it under control. I eventually ended up getting Remicade, and that finally did the trick. I had to get two doses, and I was also on a high dose taper of oral steroids for a couple months.
My advice, DO NOT mess around with colitis. Has she seen a GI specialist? I was thisclose to having part of my bowel removed. On-call surgery literally checked on me every 2 hours for several days to make sure I didn't have a bowel perforation. It sounds like your friend has been dealing with this for a while, so hopefully hers isn't as aggressive, but I would get her to a GI doc ASAP. Ask about drugs used specifically for ulcerative colitis if the steroids aren't working.
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- January 5, 2017 at 9:24 pm
Terrie,
Sorry to hear about your friend's troubles. I had the exact same scenario, grade 4 (4.5 if you ask my onc) ipi-induced colitis after 2 doses. After a couple weeks back and forth at the ER with pain, diarrhea, etc, I landed in the hospital for 9 days. 7 days on IV steroids couldn't get it under control. I eventually ended up getting Remicade, and that finally did the trick. I had to get two doses, and I was also on a high dose taper of oral steroids for a couple months.
My advice, DO NOT mess around with colitis. Has she seen a GI specialist? I was thisclose to having part of my bowel removed. On-call surgery literally checked on me every 2 hours for several days to make sure I didn't have a bowel perforation. It sounds like your friend has been dealing with this for a while, so hopefully hers isn't as aggressive, but I would get her to a GI doc ASAP. Ask about drugs used specifically for ulcerative colitis if the steroids aren't working.
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- January 5, 2017 at 9:24 pm
Terrie,
Sorry to hear about your friend's troubles. I had the exact same scenario, grade 4 (4.5 if you ask my onc) ipi-induced colitis after 2 doses. After a couple weeks back and forth at the ER with pain, diarrhea, etc, I landed in the hospital for 9 days. 7 days on IV steroids couldn't get it under control. I eventually ended up getting Remicade, and that finally did the trick. I had to get two doses, and I was also on a high dose taper of oral steroids for a couple months.
My advice, DO NOT mess around with colitis. Has she seen a GI specialist? I was thisclose to having part of my bowel removed. On-call surgery literally checked on me every 2 hours for several days to make sure I didn't have a bowel perforation. It sounds like your friend has been dealing with this for a while, so hopefully hers isn't as aggressive, but I would get her to a GI doc ASAP. Ask about drugs used specifically for ulcerative colitis if the steroids aren't working.
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- April 16, 2015 at 5:08 am
Ed,
Thanks for your reply and the details about your CLND post-op situation. With the swelling and not working out as much, does it hurt or is it just that you don't want to aggravate the condition? I found a few studies about lifting after CLND that suggest it CAN or MAY BE helpful towards fewer flare-ups, but nothing definitive. They were mostly for breast cancer patients, too.
I love lifting and I would be crushed if I couldn't do it any more. I also need to maintain a decent standard of fitness to stay in the military (long-term). This is really a tough choice, and I appreciate your advice and sharing your experience. Thanks.
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- April 16, 2015 at 5:08 am
Ed,
Thanks for your reply and the details about your CLND post-op situation. With the swelling and not working out as much, does it hurt or is it just that you don't want to aggravate the condition? I found a few studies about lifting after CLND that suggest it CAN or MAY BE helpful towards fewer flare-ups, but nothing definitive. They were mostly for breast cancer patients, too.
I love lifting and I would be crushed if I couldn't do it any more. I also need to maintain a decent standard of fitness to stay in the military (long-term). This is really a tough choice, and I appreciate your advice and sharing your experience. Thanks.
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- April 16, 2015 at 5:08 am
Ed,
Thanks for your reply and the details about your CLND post-op situation. With the swelling and not working out as much, does it hurt or is it just that you don't want to aggravate the condition? I found a few studies about lifting after CLND that suggest it CAN or MAY BE helpful towards fewer flare-ups, but nothing definitive. They were mostly for breast cancer patients, too.
I love lifting and I would be crushed if I couldn't do it any more. I also need to maintain a decent standard of fitness to stay in the military (long-term). This is really a tough choice, and I appreciate your advice and sharing your experience. Thanks.
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- April 16, 2015 at 4:42 am
Linny,
Thanks so much for the detailed reply. My surgeon did advise me of the risks of lymphadema. She stated it's up to 25% for that particular CLND. Also the other good stuff like nerve damage, partial loss of function, etc. We do similar PT in the Navy as the rest of the armed forces – running, pushups, situps, etc. When we have a health issue/injury that prevents us from doing one of those things for a while, we are on "light duty" and are restricted from doing whichver movements aggravate the injury for a prescribed period of time. I would only have an issue if I were permanently unable to do pushups, because those are part of our twice a year physical fitness test. I only have to do 11 to pass, though…I think I can probably keep up enough of a standard to perform that many twice a year! I'm in the 40-50 range now. I'm going to talk to our battalion doctor tomorrow to find out if there are any risks of being medically discharged with a partial loss of limb, inability to do pushups, etc.
I am really torn on the CLND decision…I already have a numb spot about the size of a baseball on the back of my armpit from the two lymphn nodes that were removed during the SLNB! I am very active and love lifting weights, so I am wary of losing that ability.
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- April 16, 2015 at 4:42 am
Linny,
Thanks so much for the detailed reply. My surgeon did advise me of the risks of lymphadema. She stated it's up to 25% for that particular CLND. Also the other good stuff like nerve damage, partial loss of function, etc. We do similar PT in the Navy as the rest of the armed forces – running, pushups, situps, etc. When we have a health issue/injury that prevents us from doing one of those things for a while, we are on "light duty" and are restricted from doing whichver movements aggravate the injury for a prescribed period of time. I would only have an issue if I were permanently unable to do pushups, because those are part of our twice a year physical fitness test. I only have to do 11 to pass, though…I think I can probably keep up enough of a standard to perform that many twice a year! I'm in the 40-50 range now. I'm going to talk to our battalion doctor tomorrow to find out if there are any risks of being medically discharged with a partial loss of limb, inability to do pushups, etc.
I am really torn on the CLND decision…I already have a numb spot about the size of a baseball on the back of my armpit from the two lymphn nodes that were removed during the SLNB! I am very active and love lifting weights, so I am wary of losing that ability.
-
- April 16, 2015 at 4:42 am
Linny,
Thanks so much for the detailed reply. My surgeon did advise me of the risks of lymphadema. She stated it's up to 25% for that particular CLND. Also the other good stuff like nerve damage, partial loss of function, etc. We do similar PT in the Navy as the rest of the armed forces – running, pushups, situps, etc. When we have a health issue/injury that prevents us from doing one of those things for a while, we are on "light duty" and are restricted from doing whichver movements aggravate the injury for a prescribed period of time. I would only have an issue if I were permanently unable to do pushups, because those are part of our twice a year physical fitness test. I only have to do 11 to pass, though…I think I can probably keep up enough of a standard to perform that many twice a year! I'm in the 40-50 range now. I'm going to talk to our battalion doctor tomorrow to find out if there are any risks of being medically discharged with a partial loss of limb, inability to do pushups, etc.
I am really torn on the CLND decision…I already have a numb spot about the size of a baseball on the back of my armpit from the two lymphn nodes that were removed during the SLNB! I am very active and love lifting weights, so I am wary of losing that ability.
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