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Ann…thank you for your reply. I will make this as short as I can. My husband has been on Braftovi/Mektovi and everything was shrinking or some spots gone. But he had to dose down due to severe abdominal cramping. So some areas grew. We have a wonderful oncologist who just came from MD Anderson. He is doing radiation to his hip area now . She is considering options and one is to go back on full dose of Braftovi/Mektovi and add a few doses of Keytruda. So thank you for letting me know how you treatment went. ♥️ Trusting God.

Thank you for your response. My husband finished his 4th radiation treatment on Friday and will begin again Monday for his 5th. They are managing his pain. His doctor decided on the 10 doses of radiation instead of shorter more aggressive so as not to damage the area. He is better already as far as his movement but because of it being on the L1 it is still hard to stand because of the pain. His oncologist is very good just coming to our area from MD Anderson. Trusting God for his faithfulness!

I meant to tell you that my mom had peripheral neuropathy die to diabetes. There were times that it would become so painful that she would get a water bottle that she had put in the freezer and roll her feet over it,,or if it was cold outside, she would step outside..the cool to her bare feet helped. It is no means a cure but did help her get some relief!     

I meant to mention that he dosed down to 5 Braftovi and 3 Mektovi at this point.

I am so sorry you aren’t feeling well. Hopefully that will be resolved soon. The doctor took my husband off the pills for about a week..and the pain went away…so that is why she feels it is the medication. She has him to an initial heart and eye screening before getting started. Please let me know how your scan goes..he will most likely have one in the next few weeks as well.

Thank you!

Thank you for your post. It is hard watching loved ones in pain. Hopefully we can all get the correct dosage and feel better at the same time. Will be praying!

Thank you Ed. I really appreciate your reply and links you shared. I looked at both of them. I think it is all good information to know. We met with my husbands oncologist today. I really like her..she just recently came to our location from MD Anderson. She was fine with my husband dosing down. She said that with this new combo they had dosed higher than the previous combo so he is actually takin the same dosage as the previous combo. So praying he can be without any more side effects and stay on this dosage. She said if he does well for the next month we may try dosing back up. He has a scan in a month. Trusting God for healing and a cure for everyone. Again..thank you for sharing! P.S. I still haven’t gotten approval for the FB page you suggested?

Thank you so much for responding. Right now my husband is taking 4 Braftovi and 2 Mektovi. He tried 5 /2 and then went 4/2…seems to feel better yesterday and today on that dosage. His doctor told us that you have to play around with dosage to find what works for you. We go and see her tomorrow. That is very interesting what your doctor said about 4 Braftovi being as effective as 6. Why would they put anyone on 6 if four works? I am so sorry you are having all these issues. Will be praying for you as well. Thank you again for getting back to me.

Thank you!

I requested to join the FB group and answered questions..but when I pushed submit..it would not go through.

Thank you for your help. He hasn’t had any eye issues..a little dry…but his eye doctor is wonderful and did a basic exam. She wants him to come back in about 2 months to examine him again. Praying for a perfect scan for you!

Thank you Ashley! I will do that. I so appreciate your help.

Celeste..thank you so very much! As I read through other posts, I realized there were not many on this new combination. Thank you again! Blessings to you too.